Been pretty drained lately. With the chronic GI problems to the issues with me going out and doing stuff then being down for a couple days afterwards it is wearing on me. I still hurt less than I did, but I am also finding more things stiff and hurting than did before too. My hands I believe are getting worse. I went for several days without my meds because no one would call the pharmacy. I guess they figured I could just wait till my appointment... NOT! I was hoping to lose weight before I went but diet isn't my only issue. I needed to be able to exercise and it seems I get punished for doing so. I am off the neurontin now but I feel it might have been something I needed for other issues like nerve pain and fatigue. Because ever since I have been off of that I have had major issues with those two things. Plus the headaches are horrid. I tapered it down over a months time so I know it wasn't too fast. My muscle aches are apparently related to the joint pains because since those are improved so are the muscle pains. I hate the heat and the summer sun though. I just get so sick with it, but now that I can get out more I want to get out. I am sort of looking forward to this appointment so that maybe the doc and I can work together to figure things out. I so much want to lose weight and stop smoking too and I cant seem to do that when I hurt like this. I eat more smoke more and exercise less when I hurt the most. We gotta fix this. I am seriously in need of something to help me feel better I cant go back to the way things were and I cant keep going like this either.
dx: Systemic Juvenile Rheumatoid Arthritis: otherwise known as Adult onset Still's Disease. Asthma, hypertension, hypothyroid
Meds: Indomethacin TID, Neurontin 600mg, Maxair, Advair 250/50, Diovan HCT 160mg/25mg QD, Synthroid .1mg QD, Women's One a Day, Ultram PRN.