Appointment tomorrow

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babybloo
Regular Member


Date Joined Aug 2005
Total Posts : 289
   Posted 5/11/2006 6:12 PM (GMT -7)   
Well, I have my appointment tomorrow with the rheumatologist group.  It couldn't come at a better time.  I hurt like heck lately.  I believe it is the weather.  It has been rainy here non stop for a while.  The pain isn't as bad as the chronic fatigue though.  Actually, I just feel heavy.  Does anyone else get this?  I actually took time off because I just felt like I couldn't catch up.  Stress isn't helping at all either.  the ex is causing trouble.  Well need to rest for a while.  Will let you know how things go tomorrow.
 
bloo
dx: Systemic Juvenile Rheumatoid Arthritis: otherwise known as Adult onset Still's Disease. Asthma, hypertension, hypothyroid
 
Meds: Indomethacin TID, Neurontin 600mg, Maxair, Advair 250/50, Diovan HCT 160mg/25mg QD, Synthroid .1mg QD, Women's One a Day,  Ultram PRN.
 
 


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 5/11/2006 8:39 PM (GMT -7)   
dear bloo,
much luck @ the docs tomorrow, please let us know how it went when you feel up to it.
many times it is BEST to be seen when we are absolute CRAP! so the more pain & uncomfortable you are when you go in, the better....so the doc can really "see" how bad you are.  so think it as a blessing.
i kinda get ya...it feels like you carry an extra 200 pounds on your shoulders.  the fatigue weighs me down to the point where i cannot make it through a shower; arms & legs feel so weighed down that it prevents me from reaching, keeping myself standing, etc...  and forget walking up stairs!
i wish you well with your appointment.
:-)  
Active, Severe RA. Crohns Disease. Chiari Malformation & Right Brain venous anomoly. AS. Emphysema. Rheumatic Lung. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg every 4 days; pred; Pentasa; Imuran; dilaudid; diazepam; Avinza 30mg; MiraLax & too many others.


Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 5/12/2006 4:08 AM (GMT -7)   
Good luck today bloo... let us know how it goes... Duck
Diagnosed January 2005 - Psoriatic Arthritis/Spondylitis
-Currently taking 50mg shot weekly of Enbrel
Diagnosed May 1998 - Graves Disease
-Complete Thyroidectomy September 1998 - While 11 weeks pregnant
Other Complications - GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes
Current Meds -  Enbrel/Prevacid/Synthroid
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots


babybloo
Regular Member


Date Joined Aug 2005
Total Posts : 289
   Posted 5/12/2006 4:34 AM (GMT -7)   
Oddly enough. I am very nervous today. It is in a half hour. I practically want to cancel the appt. I won't. I have no idea what is going to happen. things have gone so weird in the past. so basically today I will either be listened to or blown off. All I ask is they help me to be able to continue to work and even maybe get me to be able to get up every day to function semi human, to be able to be a mom to my son, to play, to exercise, maybe even moderately. I don't have to run marathons but I would like too..... I know I will still hurt, i know I will still have bad days... I just want to have more good days too... Is that too much.... gosh, why am I sooo scared? Okay, gonna go now. thanks for your wishes. Will post when I get back.
dx: Systemic Juvenile Rheumatoid Arthritis: otherwise known as Adult onset Still's Disease. Asthma, hypertension, hypothyroid
 
Meds: Indomethacin TID, Neurontin 600mg, Maxair, Advair 250/50, Diovan HCT 160mg/25mg QD, Synthroid .1mg QD, Women's One a Day,  Ultram PRN.
 
 


Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 5/12/2006 8:19 AM (GMT -7)   
Got everything crossed for ya bloo.. let us know how it went
Diagnosed January 2005 - Psoriatic Arthritis/Spondylitis
-Currently taking 50mg shot weekly of Enbrel
Diagnosed May 1998 - Graves Disease
-Complete Thyroidectomy September 1998 - While 11 weeks pregnant
Other Complications - GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes
Current Meds -  Enbrel/Prevacid/Synthroid
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots


babybloo
Regular Member


Date Joined Aug 2005
Total Posts : 289
   Posted 5/12/2006 11:09 AM (GMT -7)   

Well, by the time I got to my appt. I didnt feel all that bad.  Things seemed a bit rushed and not too thorough like at other places.  They didnt ask about overall symptoms and I didnt even get the opportunity to get them out.  I have a feeling though they might ask at the next visit??   I wasn't totally disappointed by the visit, they didn't just look at me and tell me my weight was my problem.  They did say they would like to see me when I am in a flare which I am not really, not like I was before I started the indomethacin.  The did some more bloodwork and said they wanted to run a better rheumatoid profile than had been run in the past from other doctors.  9 tubes of blood were drawn.  They repeated a sed rate too.  That is all I remember about the bloodwork.  the last thing I said to the doctor is this, verbatim,"  This is what I am asking, one month ago I almost quit work, I could barely walk, I couldnt play with my son, I had no energy and felt miserable.  since I started this indomethicin i have started to feel better and am finally playing with my son for the first time in three years.  I dont need to run marathons, but I would like to do more, I would like to continue working and playing, and having fun.  Can you help me do that?"  His response was I would like to try.  There are a lot of medications out there but first we need to know if this is inflammatory or mechanical, but we will do whatever we can to help you feel better."  I guess this means he is ignoring the other docs DX of JRA then?  We are starting over again I guess, but that is okay.  He changed the indomethacin to sustained release 75mg twice a day for now and set up an appt for a 3 phase bone scan on the 18th.  I go back to them on June 1st.  So really I guess the real appt will be on the 1st of June then huh?

thanks

 

bloo


Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 5/12/2006 11:29 AM (GMT -7)   
Sounds like a good starting point... He may take more time with you at the next appt like you suggested since he will have your labs and they will be more current. It is probably best that you start off with a clean slate with this doc, that way he isn't biased either way... Good luck to you bloo and keep us posted! Duck
Diagnosed January 2005 - Psoriatic Arthritis/Spondylitis
-Currently taking 50mg shot weekly of Enbrel
Diagnosed May 1998 - Graves Disease
-Complete Thyroidectomy September 1998 - While 11 weeks pregnant
Other Complications - GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes
Current Meds -  Enbrel/Prevacid/Synthroid
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots

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