wow, the best of wishes to you.
so are these like really bad infection? bad enough to stop Enbrel?
i had bouts of strep, thrush, and skin infections while on Enbrel but remained on it till i found it did really nothing for the RA after almost 2 years.
the Humira has caused blood dyscrasias in me and just recently a pneumonia...but it is helping the RA finally.
would you be able to do Kinaret and MTX? not sure if that's a combo. what about Imuran?
how long have you been on enbrel again?
well, i hope all goes OK & the right decisions are made.
Thanks everyone. Erin, what is blood dyscrasias? It sounds perfectly evil :) I got a lot of bruising and those ugly red spots (petechiae) when i was taking humira, but I don't actually know what my blood counts were. No, the infections I have had have all been relatively minor infections. But there have have been so many of them, and my rheumatologist told me he wants to see a definite benefit before leaving me on the enbrel. I've only been taking it for 3 months now, but I was on humira for 3 months too. Rheumy says I should have felt much more benefit after the combination of those two drugs.
Honestly, I don't care what drug(s) I take as long as they help. If enbrel isn't doing it's thing soon, I may be ready to give up on it. My lack of response to all of these drugs may be slightly genetic (according to rheumy). My mother didn't respond to a lot of drugs, and other drugs affected her blood counts. They only had remicade back then, so she never did try any of the tnf-inhibitors, but I think she tried just about everything else. the only thing that really helped her without lowering her blood counts was prednisone. So that evil drug became the mainstay of treatment for her.
Thanks for the encouragement Curley. As long as I find a drug that works for me, I don't really care much the form it comes in; injection for me has become routine. I think it helps that me and my husband were in fertility tx to conceive our twin daughters and I had to do follistim injections for a while (which are daily for the first few days of your cycle).
Erin, no wonder blood dyscrasias sounds like such an evil thing--it is. Hopefully, it won't evolve into leukemia for you; I understand now why you have to have weekly monitoring. I suppose you have to weight the costs and benefits of every type of tx versus the actual condition. From previous posts, I've learned that your RA is out of control, and I'm sure you're in a lot of pain. In your situation, it may very well be of more benefit to continue with the humira with close monitoring, especially since it seems to be working for you right now. My problems sound a lot less serious than your's. I would probably still be on NSAIDS if I could take them (can't because of significant GI issues).