so many changes so many questions

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yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 5/17/2006 4:22 PM (GMT -7)   
hi :-) if anyone is out there? i am newly diagnosed with RA and having my first pity party.  i started methotrexate and prednisone plus a few other chemicals a month ago and was doing fairly well enough to deny my blood work results, but since friday i have been going down hill and today i had to phone the doctor for more meds as not only were my arms and hands useless but my legs were going bad.  i am reading and searching for answers like crazy and came across this site.  it seems like a group of people who r supportive to each other, maybe what the doctor ordered.  i dont think my family understands my fears and concerns.  MOM is super and can do everything! please tell me its not going to be too bad! i need more denial less reality.

RAGirl
Regular Member


Date Joined May 2006
Total Posts : 28
   Posted 5/17/2006 5:02 PM (GMT -7)   
Hi Yalinda. I'm sorry to hear about your diagnosis, but know that you are not alone. It is good that you are already starting on methotrexate. Sounds like your doctor is on top of things. The prednisone will hopefully kick in and help you soon. I have been on 10mg of Pred for months and just had a flare up last week and had to up it to 30mg. There is a lot of trial and error in trying to find the right mix of meds for you, so try to have patience. I know it's hard while you are in pain, as I am going through the same thing and know how you feel, but I'm learning patience is a necessity. I still have breakdowns, like yesterday..lol, but then I get strong again and want to fight it. Every case of RA is different so I can't tell you if it's going to be bad or not. You will certainly have good days....and some bad ones. We just need to learn how to roll with it and celebrate the good days as much as possible.

yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 5/17/2006 5:22 PM (GMT -7)   
hi RA girl, thanks for the support.... i still cannot believe this is all happening so quickly. seems like in early february i went to the doctor because my eye was tearing so painfully from iritis which led to my arms weakening and extreme pain and now my legs. take me back to january please! a few blood tests later and whala! positive RA. plus those darn xrays created a scandal with my lungs that resulted in further ctscan to confirm possible sarcoidosis. seems when i spoke to my doctor today he never got the results from 2 weeks ago, i thought no news was good news. everything was just getting back to painfree on the meds and here i am again. who would have guessed an inflammed eye was the start of this crazy painful ride? trust me i know i am a novice and have not endurred all you may have. but about 7 years ago i saw a rhuematologist for pains in my legs and he said i had fibromyalgia, and wanted me to take an antidepressant.... i never went back to him and have dealt with low levels of joint pain and fatique all this time but nothing like what i have now! my new doctor says it might have been early RA that tested negative at first? who knows? but u r right i do feel i have a good doctor who looked me straight in the eyes and told me i needed to listen to him, and i mean straight in the eyes! so i am listening in hopes all will go well. thanks for your listening, or reading hahaha

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 5/18/2006 1:40 PM (GMT -7)   

:-)  oh Yalinda, Yalinda!  i will totally embrace you in the arms of denial! tongue LOL.

                              **sometimes ya gotta live off of it for a wee bit**

but professionally speaking, you're way past denial.  why?  you're taking control and you're aware.  might not seem or feel like it, but you've already got a lot of ammo under your belt!  and hold on to it...you'll need it.

humor goes a LOOOONG way. probably the best coping mechanism.

the hardest thing that comes with RA are those acute periods that come suddenly; an increase of severe pain/swelling/fever/fatigue etc mad ... and those?  they can be short lived or sometimes even last weeks or months. mad there is no book or pamphlet or anything that makes this easier.  but here...HW makes it easier.  we're all in the same boat. more insight, education, and healing goes on among people who have RA that talk together than probably anywhere else.

go through the threads here and even go back through the archives. it's helpful.  sometimes you'll read your life, but it's written by someone else!

i've been dealing with RA over a decade and been through many meds.  just the past year i finally got a decent medication regime that JUST started to help get a grip on the RA (also have Crohns).

RA affected my lungs and heart too.  (i wonder if it can effect the brain? confused mmmm? LOL...would explain many half a** things we do! tongue LOL)

it's an hour by hour thing some times living with RA.  please, post whenever & whatever.  you've come across a great crew!

sincerely,

erin 


Active, Severe RA. Crohns Disease. Chiari Malformation & Right Brain venous anomoly. AS. Emphysema. Rheumatic Lung. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg every 4 days; pred; Pentasa; Imuran; dilaudid; diazepam; Avinza 30mg; MiraLax & too many others.


RAGirl
Regular Member


Date Joined May 2006
Total Posts : 28
   Posted 5/18/2006 6:08 PM (GMT -7)   
I hope you get your results soon. I know what you mean about this crazy ride. My RA came on suddenly with some wrist pain one night, and waking up the next morning in severe pain in all of my joints and swelling. I am as much of a novice as you are and still trying to learn alot about RA. You know, you grow up thinking of arthritis as a disease of older people and just a few joints hurting. I had no idea how much RA affects your entire body. You just don't hear about RA as much as you do about other forms of arthritis. Good luck with everything.

yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 5/18/2006 6:27 PM (GMT -7)   
RAGirl you may think ur a novice on RA but not on providing support! thanks for responding and good luck to you too! any advice is well taken that you can share as i am driven by pain to search this web of info and learn as much as i can. funny thing i have worked my whole life with disabilities empowering others now searching for my own within and out there! thanks again and stay well, as u can! yalinda
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