I"m not sure which would be the best route if you just can't take a medical leave of absense for starters.
As for the 'time of the month' - yes, I get much worse! I flare something awful for a good week and major fatigue with it. For at least 2 days before I am in a LOT of pain and also get insomnia (doesn't help the flare or the fatigue!) I can feel it in my joints and muscles, and tissues. Sometimes, if I'm really lucky, I'll get a flare when I ovulate too! Isn't that nice!?
Bloo, I'm sorry you're having a rough time of it lately. And it does bite when people don't even try to understand. I was just telling my husband that the other day. How can I get support from friends and family when I look perfectly healthy on the outside, and them most days I limp but some days I don't? I'm sure we can all understand where you're coming from on that one.
Don't know much about the injections; I assume you're referring to cortisone injections? I've never had them, never needed them.
With respect to your job, the bottom line is you need to do what's best for you. Employers don't always understand employee situations, and quite frankly, they don't have to although it would certainly be nice if they all did. I know if it came down to it and I had to quit or take a leave of absence from my job, I would do it regardless of what my supervisors thought. It might mean giving up my career job, but then how much of a career is it if you don't feel well enough to handle it? My identity is not tied to a career so it really is not as big of an issue as it would be for some.
IN any case, I truly hope you get the answers you need from your doctor and that the injections help you.
I give up. Didnt get to see the doc today. Had the NP who decided since I feel okay we wont do anything now. I don't feel okay. I told her that. Wants to wait until I have another flare. I don't want to have one. I couldn't even walk with this last one. I called they didn't want to see me just prescribed a medrol pack. I couldn't even walk. She doesnt know what it is like to wake up having to go to the bathroom and you can't even get up to get there. I don't want to go through that again. I am going to end up losing my job. She mentioned plaquenil but then said no because I was feeling more than 50% better than two weeks ago. I can't keep doing this. I just want to give up.
I agree with Yalinda. Can you possibly go to another rheumatologist? This one is obviously too busy to take on your case. I have a difficult time understanding why your verbalizing your pain to the NP didn't result in the doctor giving you something, even advice to take motrin (or the equivalent).
I hope you feel better soon.
I know it is frustrating all the way around, but don't give up. You will eventually find your way, although I am sure it doesn't look that way now. I just received a diagnosis after 10 years of waiting and going through what you are going through. Even now, the doctor says he wants to reserve his opinion because of new symptoms I've developed. Either way, I found it best to just take things easy when I get a flare and remind myself that eventually it will get better. After years, I can now take it in stride, knowing that there will be good times and bad times. Life is like that. The worst part for me was how others perceived what I was going through and attacking me as a person. Until the diagnosis, everyone acted like I had "control" over what was happening to me. I have never been lazy, an attention seeker or a complainer, but even my best friends and family called me these things. My mom even asked if I did drugs or was an alcoholic, knowing completely well I abstain from everything. They were looking for anything they could blame on me or that I could "fix". They were uncomfortable with my disease, as was I. I started questioning my own sanity after a while and became depressed. As I tell everyone, because it took a while for me to learn, I am me not what anyone thinks or doesn't think I am. Nor can I be compared to anyone else. This illness or others perceptions doesn't change who I am as a person, only I can change who I am. I deserve the same respect as a human being irregardless and I will accept nothing less than the respect I deserve. If someone doesn't respect me or my limitations from the illness, I'll explain my case. If they still have a problem, I walk away from them. Their problem is their choice and I can not change that, but I give everyone the opportunity to think things through to make that decision. My choice is whether or not I want to deal with them or not under the circumstances... whether it be work, family, friends, etc. That, I do have control over.
One thing I did learn. I had to accept me having this illness and not being freaked out over it before others could accept me and not be uncomfortable around me. Attitude makes a huge difference. Especially at work. If you are good at your job, happy, easy going and flexible at work, chances are your employer won't mind a few adjustments. It is really unfair of us to expect an employer to make huge adjustments. But most of the time, these are little adjustments. Being direct with your employer is good. But approach it as a problem with a solution. I realize I'm missing time from work... Is there a way I can make this up to you? I realize I can't get to a file or something...can we move some of the filing over here where I can get to it. Problem...Solution. Most employers are concerned with performance, dependability and the bottom line. Your attitude and how you approach situations is key. It's a journey. I wish you the best. - Kris
Post Edited (erin kachmar) : 6/1/2006 9:40:48 AM (GMT-6)