Your visit sounds like it was very frustrating. I'm not a rheumatologist, but looking at the hands is an important part of the appointment. But only a part. You cannot tell if an individual has lupus or RA, or any other CTD without bloodwork. I had a similar experience with a GI doctor. I told her I had RA, and she grabbed my hands, looked at them for 5 seconds, and said you do not have RA. I informed her I had a positive RF, and she shut up real quick. Diagnosing these diseases is very tricky and it takes a good, solid physical exam, a detailed history from an expert interviewer, and lab tests to actually come to a diagnosis. My first rheumy visit was about 45 minutes long. The longest I've ever sat in a doctor's office. Good to know that you have a good PCP. I like your plan.
Thank goodness you have a great PCP. Do as directed and find another rhuemy in your plan to have ready to see when the time is right. An ortho and MRI is great as well. Good luck
I had alot of trouble with my first rheumy, said once the insomnia gets under control the pain from the fibro would go away! Ha! He said I could not work any longer but that "he was not the guy to send the SSD paperwork to" I am now seeing a new rheumy, she checks all my joints for swelling, knots and motion. Come to find out I have RA, polyarthritis and Osteo! My RH factor is on the borderline, but she said by her physical examination that I do have RA. She placed me on methotrexate and plaqunel. If I do not improve by the next visit then she will start me on Enbrel or Humira.
Good luck to you Sarah, hope you find a good rheumy soon. I know you have been suffering for a while. I usually chat with you in the fibro chat.
Take care of you,
no, it's not bad. and believe it or not...doctors want positive bloodwork and abnormal crap to show up as well! nothing is more frustrating to a pt and an MD as a difficult-hard-to-crack treasure-hunt-case where there is no BOOM THERE IT IS IN YOUR FACE clinical findings.
Dr's like textbook pts. few like to put the energy into the search.
so the twisted as it may seem feeling of "the want for abnormal" is...TOTALLY NORMAL.
especially if there are things going on that don't exactly make sense or are odd. or rare. and autoimmune and rheumatics?...geesh, GodBless people going into that specialty. i mean, look at how complicated it is! to us!
so, in all...validation for what is wrong is kinda like....closure. and Sarah, it may take a lot of time. but if they are finding things & this doc is acting differently, you're in the right direction.
in my prayers.