argg i am getting worse in the past year

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missie1227
Veteran Member


Date Joined Nov 2005
Total Posts : 751
   Posted 6/20/2006 11:55 PM (GMT -7)   
in the past year, i have noticed that i have gotten this much worse in my health. with my back, neck, pains etc. i dont know what to do. yesterday i tried to go out on a boat ride ( big ship) for about 5 hours and by the time i got done, my neck was in such a spazz and in so much pain i was taking much more than i usually take to quiet down my neck and back.
i can not even enjoy a day or night out any more., i spent the entire day in bed today to pay for my night out of 5 hours.
 
i have more fatique, more pain than i did last year but have not upped the pain meds any more higher than last year. i am still woefully under medicated for pain. the doctors do not understand this.
i am only on norco, 10-325 2x's aday and xanax .50 mg a day, and advil when needed.
this is so bad i dont know waht to do b/c flrioda is one place you do not wan tto be if you are sick.
my life is becomoing more and more of a recluse and i am getting deeper into pain and discomfort but am feaful of trying anything drastic like the enbrel b/c with my luck i will die from it early.
i react badly to meds and have tried  many many differnt pain meds only to have to get off them for one bad side effect or another.
i will be 51 in december. some days i feel like i will not live past my 50's sicen i have no energy, and am literally exhausted all day long. when i try to do some exercise or anything at all my body goes into such a spasm it is unbearable. so i guess i will tr y another shot of steriod. my second one of the year.
maybe that wil help me.
it helped me for a bout tw oweeks last time.
i am really tired of not having a life.
what scares me most is the fact that i will be in a nursing home early on  if i cant manage at home .....
i am sorry for  this being so negative but every time i try to do something positive in my life i wind up worse for it all. if this is how it iwill be for the rest of my life, i may move to oregon when the time comes and say my good byes to all from there, as i cant live in this much pain all the time....
 
9-02 crash w/ C-5-6-7 anterior/posterior fusion in neck w/11 screws and 4 metal plates. multilevel HNP at T & L section. FMS, PA in dec 05. on SSDI after 2.5 yr wait. sezuires, CTS, IBS ( C & D). norco, xanax, predisone shots. i dont know what else is wrong with me and neither does anyone else!!!


yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 6/21/2006 4:37 AM (GMT -7)   
missie, i am sorry to hear you are in so much pain...... i do not have the answers to your problems but just wated to send a ((((hug))))) your way and tell you to keep looking for someone who can help you with the pain. if meds are not an option what about alternative medicine? i do not know tons about it but often diet can effect our inflamation. there was a posting recently by someone i read foods to eat and not to eat. i think it was here because i was just gonna buy me some eggplant and it was onthe causes inflammation list so no eggplant this summer for me! look it up it might be of some help? meditaion and relaxation techniques might also help? i know the pain is not in your head but real but with practice we are suppose, and i say suppose , to be able to zen out. also i still do my pepperment routine here soak and smell. not sure if is having any effect but i am willing to try anything! hang in there ~* yalinda

dubjean
Regular Member


Date Joined Mar 2006
Total Posts : 38
   Posted 6/21/2006 9:39 PM (GMT -7)   

Hi  Missie,  Sorry about all the pain...can't help you either, but send non-hurting hugs your way!  I'm with Yalinda..see about trying the non-inflammation foods, heat therapy, etc. to see if anything will help if you haven't tried them yet.  It's lousy when you have reactions to meds that are supposed to help you.  I had mood swings with my last one (of course, doctor had never heard of that) and with this one I've started bruising.  I haven't tried any of the "inflammation" diets, but I'm sure there's info on the web somewhere.   Good Luck and remember we're here for you when you feel isolated!!    Wendy

  


missie1227
Veteran Member


Date Joined Nov 2005
Total Posts : 751
   Posted 6/21/2006 10:29 PM (GMT -7)   
thanks gals and guys i am just venting i guess since i am so frustrated with all....i appreacitae the hugs and need them badly sad sad sad sad
9-02 crash w/ C-5-6-7 anterior/posterior fusion in neck w/11 screws and 4 metal plates. multilevel HNP at T & L section. FMS, PA in dec 05. on SSDI after 2.5 yr wait. sezuires, CTS, IBS ( C & D). norco, xanax, predisone shots. i dont know what else is wrong with me and neither does anyone else!!!

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