Does any one..............

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curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 6/28/2006 6:31 PM (GMT -7)   
I have a question to ask.For the last few days I have been having sever joint pain and yesterday and to day I have not been able to walk or lay down or sit either it has been very painful the last few days every major joint has been what is hurting.My question does any one else have such sever joint pain?I mean my pain meds does'nt even touch the pain.Does any one have any idears as to what I can do to ease the pain?I called my Rheumy and I was told that she was booked up and that they would put me on concile list.any input would be welcome and I have just been so misserable.
Thanks
Curley......
a.k.a.Mela...........


RandomDave
Regular Member


Date Joined May 2006
Total Posts : 164
   Posted 6/28/2006 6:45 PM (GMT -7)   
That's pretty horrible. Sorry your'e feeling so bad. Only thing I can do when I get that bad is raid my aunt's hottub. Hope you feel better soon.
-SLE, RA & PA....it's all about the acronyms!

-Current meds: Plaquenil, Sulfasalazine, and a little NSAID du jour for flavouring. Mmmmm NSAIDs.


elcamino
Veteran Member


Date Joined Sep 2005
Total Posts : 1744
   Posted 6/29/2006 4:14 AM (GMT -7)   

Curley,  I have had that a few times as well, and I know it is utter H*&*&.  I'm with Dave--hottubs are the best.  I remember when I was flaring that bad, I would take a million hot baths all day long.  Heating pads help too.  I finally broke down in the middle of the night and went to the ER.  Got a couple of toradol injections and some prednisone.  Prednisone made all the difference in the world.  Can you go to a primary and get something?

I truly hope you feel better soon.

Elcamino


Current dx: Rheumatoid Arthritis
Suspected dx: Early Lupus/MCTD
Current Meds: Enbrel, Plaquenil, Aciphex, Ultracet, Zyrtec, Allavert-D, Zantac, Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan


Baybreeze
Regular Member


Date Joined Oct 2005
Total Posts : 315
   Posted 6/29/2006 5:37 AM (GMT -7)   

Hi Curley,

Sorry you're in so much pain confused . Yes, I've had the same problem many times in the past as well as over the past 2 weeks. (Mine started when my epidural steroid injections for my spine wore off & it's starting to fell better so I will wait it out)

But when I get really bad I call my rheumy & he always sees me (usually that day or within a couple days) But if you have no other choice & and it's that painful for you, maybe you should just go to the hospital? OR...do you have any of those walk-in urgent care centers around you? By me there are several - you don't need an appt, but you may sit there & wait a couple hours to get seen. It is way cheaper than the ER.

I dont have a hot tub either (but im sure a hot bath may work the same), but I do agree that heating pads do work wonders. At least while you use them it feels very soothing.


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 6/29/2006 12:16 PM (GMT -7)   

Curley we're in the same boat.  Really really severe RA flare.  The joint pain is enough for an ER visit.  Prednisone & depo-medrol injections were my only escape.  The pain meds (narcotics) don't even touch the joint pain, so only high dose steroids did the job @ easing the joints. Plus Tylenol every few hours as well.  It took about 3 days for the throbbing pain to ease down.

It came on quite sudden this one.  But week after week I thought it would get better but it only got worse & worse & worse.

How's it going?

Best Wishes


Active, Severe Rheumatory Arthritis. Crohns. AS. Chiari Malformation & Right Brain venous anomoly. Partial complex seizures. Emphysema. Rheumatic Lung & Heart. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg Q 4 days; Pred 20mg prn; Pentasa 4G daily; Imuran 50mg; Dilaudid 4mg; Diazepam 5mg; Avinza 30mg; Reglan; Meclizine; LidoDerm; MiraLax & too many others.


curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 6/30/2006 6:11 AM (GMT -7)   
Dave hi,thank's for replying I have taken severl hot bath's my problem is getting some one to help me up out of the tub because the bath tub sits low to the floor.

Elcamino hi,I bought one of those heated matteres pad's and I love it I use it all the time.I also use a heating pad as well infact over a course of four year's I have went through five heating pad's because I use them so much.

Baybreeze hi,we do have walk in clinics but the ones around here don't take my insurance and I just canot afford any more medical bill's.

erin hi,I'm seeing my Rheumy this morning to get some steroid shot's to hope fully give me some relief.I would also like to say I agree with you about the pain med's.my sister ask me the other day why I don't take my pain meds and I told her that I have been taken my pain meds but it just was not touching the pain and to top it all off I'm having sever nerve pain as well and I was put on a new med for that but I was warned that it could take a few week's to get in my system good before i noticed any differents.

I will let you'll know what my Rheumy has to say.I do thank each of you for your input it means alot to be able to poast and have people that are in the same boat are have been in the same boat and understand where i'am comeing from.
Thanks
Curley......
a.k.a.Mela...........


Aldo
Regular Member


Date Joined Jan 2006
Total Posts : 289
   Posted 6/30/2006 7:15 AM (GMT -7)   
Curley, I am new here and to RA. I feel like you do, I think. I am one big ache. I am on a Dexpac -something like DEXAMETHASONE. I am down to 2 pills, 2 times a day but seem to be having lots of side affects. Headaches, cramps, joint aches, increased BP, no sleep, stomach pain and bloating....Ok, I'll stop :) I don't know whether to continue this medicine. I have taken a lot already. It says not to stop w/o speaking with your doctor. I hate to whimp out and have to call him, lol.

Hey, I am going to hit the hot bath now, I think. I have to be careful with those because of my BP. I was in the process of changing blood pressure medicines when this flare came upon me. Now my BP is swinging like mad, I think due to changing medicines and adding the steroid. I am normally not a BP watcher either :)

I really hope that you get relief soon.

Rj

cbrossman
Regular Member


Date Joined Apr 2005
Total Posts : 191
   Posted 7/3/2006 2:59 PM (GMT -7)   
Curley,
Prednisone is all that finally helped me when I've had bad attacks.
The first time was just after ankle surgery, before I knew I had RA. I was already on morhpine and oxicodon and even had a shot of morphine in the emergency room that evening. Nothing touched it until the prednisone finally kicked in.

good luck ... Craig

curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 7/3/2006 4:16 PM (GMT -7)   
I hope every one is having a pain free 4th.I seen my Rheumy and she gave me steroids and it helped and I was just starting to feel better and wham it's back again.It will me the end of the week bfore I can see her,she did tell me that she was giving me a loading dose of 40 normal loading doese is 80 but we were trying to get by with as little stroids as possibly.I was told that if it started back up that I could get the other 40 well guess what I need the other 40.I have no energy and I just feel like crape as well.
Thanks
Curley......
a.k.a.Mela...........


Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 7/4/2006 3:33 PM (GMT -7)   
Hey Curley... sorry you are having a hard time... must be in the air huh? A lot of us are flaring right now.. hang in there and let us know how you are doing.. HUGS - Duck
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea


curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 7/5/2006 2:22 PM (GMT -7)   
Hi every on,I will up-date you'll I went last thursday I was given shot's in my joint's and we only did a 40 dose because of the impact that steroid's have on me.The pain has some what eased up that is untill yester day it it all came back with a ventiage(sp)so I called my Rhemy and I go back and get the other 40,the loading dose is 80.So hopefully it will help some what if not then I will have to go back on the evil predy for a while.
Thanks
Curley......
a.k.a.Mela...........


cbrossman
Regular Member


Date Joined Apr 2005
Total Posts : 191
   Posted 7/5/2006 7:17 PM (GMT -7)   
When it helps, it is not evil, perhaps undesirable, but not as much as the pain.

This is only temporary, you'll get help with something less evil ... Craig

Morticia32
Regular Member


Date Joined Feb 2006
Total Posts : 59
   Posted 8/28/2006 1:27 AM (GMT -7)   
Reply to an old posting
 
Yes i have severe pain in every single joint of my body at all times. And the new this is,at night my knees and elbows lock up and i wake screaming when ive tried to move. Even if i lay flat on my back straight, me knees , elbows, wrists, shoulders lock. I think its the cardledge tensing up along with the muscles around the areas
 
it really really sucks. Every moring i have to roll myself out of bed, roll and roll till i can get my feet on the floor. Then 10 mins to stand up, holding the wall for support then i stumble straight to the pain meds bottle, pop 2. Hubby brings me coffee while i sit in my lazy boy and wait for the meds to kick in. Its a daily routine for 6 months now.
 
 
Diagnosed: Hypothyroid 1990, Endometriosis 1997, Agrophobia 1998, Objective Tinnitus 2004,Rhematoid Arthritus Feb 2006.
Procedures Done: Gallbladder Removed 1994, 3 Endoscopes, 5 Laps for Endo, Hysterectomy 2003, Angiogram 2003.
Medications now: Synthroid, Lexapro, MTX, Lortab.

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