Erin--enbrel and crohn's question for you

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Date Joined Sep 2005
Total Posts : 1744
   Posted 7/13/2006 11:18 AM (GMT -6)   
I saw my rheumy this morning.  I will be adding mtx to the enbrel, so I'm on my way to remission (yay!).  I saw my  GI doctor a couple of months ago, and she told me that I definitely do not have IBD.  To refresh, I had a colonoscopy last August and had multiple apthous ulcers throughout my colon, which is why IBD came up to begin with.  This past February, a repeat colonoscopy showed no more ulcers and an otherwise normal colon (different GI than the one last August).  In any case, she told me the ulcers were most likely caused by NSAIDS.  I told my rheumy that this morning, and he's like, yeah, right.  I swear he would have rolled his eyes if it were considered more professional.  I claimed that I have not been having any lower GI symptoms actually since starting Humira, and now enbrel for 4 months.  He said that he believes enbrel can control IBD; hence no symptoms.  I recall that you started having multiple problems when you went off of enbrel, which is when you received the cd dx.  So, do you think the enbrel controlled your cd?  Did you have lower GI symptoms prior to starting enbrel?  Or did enbrel just kick things up?  As long as I'm not having any symptoms (and I'm staying on enbrel), I'm not terribly worried about IBD.  But I am curious.  Needless to say, I will not be seeing this lady anymore.  She told me when I was in her office that she had sick people to attend to and I was wasting her time!!! This is after she told me to schedule a follow-up appt.
Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Aciphex, Ultracet, Zyrtec, Allavert-D, Zantac, Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan

Veteran Member

Date Joined Mar 2005
Total Posts : 3199
   Posted 7/13/2006 12:39 PM (GMT -6)   
Wow... nice... you know I always wondered if they taught bedside manner in med school...
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea

Veteran Member

Date Joined Mar 2005
Total Posts : 3148
   Posted 7/13/2006 1:36 PM (GMT -6)   

I absolutely 100% believe that Enbrel helped control the undetected CD at the time.

Even though it's not said to help Crohns or IBD...when I went off of it? WHAM!!  And that is what made me go to the GI and low and behold...

Given that they all work similarly...I believe it helps.  I don't think it's a coincidence at all.

So you're starting MTX?  I should jump on the bandwagon too.  Don't know if I should wait with the Imuran until I get the levels checked...and maybe a higher dose will help more.  It seemed to help me in April after 4 months of taking it...but from then on I've turned backwards and got worse. eyes

Absolutely frustrating.

Thanks El for your support about school.

And if you were such a waste of her time?...Ask for your money back because she was obviously a waste of YOUR time. Geesh.  Go work in a canning factory why don't ya. ***hole! tongue

Active, Severe Rheumatory Arthritis. Crohns. AS. Chiari Malformation & Right Brain venous anomoly. Partial complex seizures. Emphysema. Rheumatic Lung & Heart. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg Q 4 days; Pred 20mg prn; Pentasa 4G daily; Imuran 50mg; Dilaudid 4mg; Diazepam 5mg; Avinza 30mg; Reglan; Meclizine; LidoDerm; MiraLax & too many others.

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