Tests for ankylosing spondylitis

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Cyborg Ninja
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Date Joined Jan 2006
Total Posts : 660
   Posted 7/13/2006 5:07 PM (GMT -7)   
What physical tests are done exactly? Like does a doctor make you bend over and try to move around and if so can you give me details on the procedure and what the doctor checks for?
"The path to enlightenment is littered with the bodies of the ignorant." - Musashi Miyamoto

Whoever disabled my website link here - I'd appreciate you explaining why before taking such a measure.


missie1227
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Date Joined Nov 2005
Total Posts : 751
   Posted 7/13/2006 6:58 PM (GMT -7)   

they look for fused SI joints by xray and give you a blood test for the gene HlaB27 sometimes people ahve it and sometimes people dont have it. also he will ask you about pain and if anyone else has it in your family and. i ahve it or a similar type of condition as my end plate vertrebre all ahve a lip like bone formation taht goes from one end plate vertrebre to the next one down and so forth, it somes on differently for women than it does for men. women tend to get it in ther neck first and lumbar later, i have it in my thoriacic and neck area and dont ahve it in the lumbar section yet.

you can get this from trama, ops, and inherited, sometimes diets help to cut out starches and refined sugar. for me nothing seems to help it


9-02 crash w/ C-5-6-7 anterior/posterior fusion in neck w/11 screws and 4 metal plates. multilevel HNP at T & L section. FMS, PA in dec 05. on SSDI after 2.5 yr wait. sezuires, CTS, IBS ( C & D). norco, xanax, predisone shots. i dont know what else is wrong with me and neither does anyone else!!!


jan2003
Regular Member


Date Joined Jul 2004
Total Posts : 92
   Posted 7/13/2006 7:47 PM (GMT -7)   

Here are two great websites for info on the spondyloarthropathies: (Ankylosing spondylitis being one of them)

Spondyloarthropathies: Using presentation to make the diagnosis

http://www.ccjm.org/PDFFILES/Brent304.pdf

Spondylitis Association of America; click on the "about Spondylitis" link at the upper left hand section.

http://www.spondylitis.org

Hope you find what you're looking for.

Jan

 


curley
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Date Joined Mar 2005
Total Posts : 4305
   Posted 7/13/2006 8:44 PM (GMT -7)   
I have AS and I as well have tested posative for the HLA-B27 gene and my dad tested posative as well.I have it in the lower and mid back.
Thanks
Curley......
a.k.a.Mela...........


Cyborg Ninja
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Date Joined Jan 2006
Total Posts : 660
   Posted 7/14/2006 8:20 PM (GMT -7)   
Thanks for the information, Jan. It helped a lot. I would like to know more about physicals and not blood and radiology tests.
"The path to enlightenment is littered with the bodies of the ignorant." - Musashi Miyamoto


jan2003
Regular Member


Date Joined Jul 2004
Total Posts : 92
   Posted 7/15/2006 7:01 AM (GMT -7)   

Ninja,

Okie dokie, I found a couple of other sites that have good info. These two tests are used for diagnosis: Gaenslen test, Schober test.

Sorry, I don't have time (very busy morning) to go into detail about them, but you can look at these websites yourself.

http://www.rheumatologychannel.com/ankylosing/diagnosis.shtml

http://www.emedicine.com/med/topic2700.htm

http://www.aafp.org/afp/20040615/2853.html

Are you seeing a rheumatologist? AS can be very difficult and tricky to diagnose.  I don't have that diagnosis myself, but it's likely I have some type of spondyloarthropathy (I'm HLA-B27 positive with a history of iritis, and my IBD diagnosis is currently under scrutiny, long story.) My rheumy believes I have simply seronegative rheumatoid arthritis, (I don't believe that) but I'm very lucky to be on Enbrel, which has helped me 98%, so I'm not going to argue with him.

The following message board is excellent, and it seems that the struggle to find a knowledgeable rheumatologist and to get a diagnosis for AS is similar to that in finding a good GI doc and getting a proper IBD diagnosis.

http://bbs.spondylitis.org/cgi-bin/ultimatebb.cgi   (see General Message Board for...)

Good luck.

Jan

 

 


erin.K
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Date Joined Mar 2005
Total Posts : 3148
   Posted 7/17/2006 10:00 AM (GMT -7)   
hey Cyborg! did you get seen by the rheummy yet? how's it going?
Active, Severe Rheumatory Arthritis. Crohns. AS. Chiari Malformation & Right Brain venous anomoly. Partial complex seizures. Emphysema. Rheumatic Lung & Heart. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg Q 4 days; Pred 20mg prn; Pentasa 4G daily; Imuran 50mg; Dilaudid 4mg; Diazepam 5mg; Avinza 30mg; Reglan; Meclizine; LidoDerm; MiraLax & too many others.


elcamino
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Date Joined Sep 2005
Total Posts : 1744
   Posted 7/17/2006 10:05 AM (GMT -7)   

I have a question about AS.  Is it always seronegative?  I have long suspected that AS is similar to what the heck is wrong with me.  Rheumy believes I have undiagnosed IBD which is currently being controlled by enbrel.  HOwever, I have a positive RF, which messes everything up.  My official dx is RA, but I've never had the joint swelling and deformities associated with RA.

Thanks,

Elcamino


Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Aciphex, Ultracet, Zyrtec, Allavert-D, Zantac, Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan


jan2003
Regular Member


Date Joined Jul 2004
Total Posts : 92
   Posted 7/18/2006 8:51 AM (GMT -7)   
elcamino,
 
From what I understand, the majority of people diagnosed with AS have negative results on the rheumatoid factor. Did you have a chance to read through those websites I posted above? Look in Key Points, third paragraph:
 
It looks to me as if AS can occur in many of the same areas as RA, so a misdiagnosis could be possible, in my opinion. See the next site and click on the diagram. AS and the spondyloarthropathies usually affect the spine, but "other areas of the body can also be involved. Spondylitis does not follow the same course in everyone."  (I can't get the direct link to work, so click on "about Spondylitis", then "Complications of Spondylitis")
 
Also, that website, Spondylitis Association of America is a very comprehensive, EXCELLENT site. Many of the topics can be accessed without paying or becoming a member. http://www.spondylitis.org/main.aspx 
Their message board is also good:  http://bbs.spondylitis.org/cgi-bin/ultimatebb.cgi
 
Regarding Enbrel for Crohn's, I've only read one article on PubMed that showed Enbrel had some benefit for Crohn's patients.
 
All other articles I've seen indicate that Enbrel works for the arthritis symptoms in Crohn's patients, but not the digestive symptoms:
 
There's even one that suggests that Enbrel  "may have contributed to the development of clinically significant inflammatory bowel disease."
Go figure!!
 
Oh, by the way, I had a remarkable response to my first Enbrel injection in December 2004. My previous rheumatologist, who first prescribed it, didn't believe me when I told him I noticed a difference within three days. After one month, my ESR had gone from 46 to 6. Our insurance plan was switched (not by choice!) in 2005, so I had to find all new docs - GI, rheumatologist, ophthamologist, GP, what a pain in the neck, literally!
 
My current GI suggested once that Enbrel may be benefitting my questionable IBD. My last ileo-colonoscopy in Nov' 05 showed no abnormalities macroscopically or microscopically. His other theory is that my so-called IBD could be the result of the nsaids I was using for my inflammatory arthritis at the time of my first bowel flare (diagnosed by my previous GI doc as moderate-severe UC in January 2003, even though the pathologist report suggested Crohns, due to granulomas, chronicity, and the patchy nature of inflammation.) The following study was submitted by my current GI doc, who believes the use of nsaids can cause damage to the small intestine and/or the colon.
 
In another post you mentioned a similar situation, so maybe your GI doc has been conversing with mine...!!
 
So I have no answers for any of this, only never-ending questions and continued searches for bits and pieces of the giant PUZZLE, as I continue to inject my treasured Enbrel and enjoy relatively good health.
 
Good luck to you, elcamino.
Jan
 
Current dx: seronegative rheumatoid arthritis first diagnosed in 1991,
                (or a spondyloarthropathy, tested HLA-B27 positive in 2004)
                recurrent iritis, one episode of papillitis, Raynaud's, 
                 questionable IBD (UC, Crohn's or none)
Current prescriptions: Enbrel
Past prescriptions: plaquenil, naproxen, relafen, piroxicam, vioxx, imuran, methotrexate, entocort, asacol, prednisone, flagyl

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 7/19/2006 9:06 AM (GMT -7)   
Hey Cyborg & everybody,
The physical assessments that my rheummy does to check out the AS is poke around my lower back.  The area all around the tailbone.  Supposedly it is to feel "spastic" and also is how he described it.
That's about the only "physical" test I can think of that I have been exposed to.
confused   confused Good question.
Active, Severe Rheumatory Arthritis. Crohns. AS. Chiari Malformation & Right Brain venous anomoly. Partial complex seizures. Emphysema. Rheumatic Lung & Heart. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg Q 4 days; Pred 20mg prn; Pentasa 4G daily; Imuran 50mg; Dilaudid 4mg; Diazepam 5mg; Avinza 30mg; Reglan; Meclizine; LidoDerm; MiraLax & too many others.


starrnr
Veteran Member


Date Joined Dec 2005
Total Posts : 1782
   Posted 7/27/2006 9:02 PM (GMT -7)   
I have AS & RA. I'm B27 positive and seronegative for the RA factor. Bear in mind that RA typically affects joints on both side (both hands, both feet, etc) and quite frequently (not always) the peripheral joints. AS on the other hand, doesn't necessarily strike in 2's, doesn't always hit the peripheral joints and generally will hit the neck, spine (Cervical down to the Sacral), and feet. You can be B27 negative and have AS, you can be B27 positive and NOT have AS. Enbrel worked for me for a long time, but it does nothing for IBD's or Iritis. Since I have AS, RA & CD, I've been switched over to Remicade. A good percentage of people with AS will have IBS or IBD to go along with it.

The best way of diagnosis for AS truly is through some sort of Xray or scans. Blood tests do not always tell the real story. My sed rates and related tests are generally normal, even in the midst of my worst flares. Look at my xrays though and I'm a mess! Sacroilitis is the hallmark of AS and we women generally have SI involvement more frequently than men.

There are great references listed above, but I wanted to add my two cents as well. Hope you don't mind.
"My "Trifecta" - CD, AS & RA...

Co-Moderator Crohn's Forum


Cyborg Ninja
Veteran Member


Date Joined Jan 2006
Total Posts : 660
   Posted 8/3/2006 3:38 PM (GMT -7)   
Sorry I'm so late in posting a reply. I was gone for a week or so on vacation. I still haven't seen a rheumy because I'm still away from town, but hopefully I can in about a month. I called one doctor's office and he wants a referral. I told the office worker I had CD and my symptoms and I could mail my related medical records but she wouldn't have any of it. Irritating. So now I have to call my GI (dunno if I even have one, only saw an NP) and hope he (or she?) will give me a referral without forcing me to wait to see him (or her?) in person, even though I plan to anyway.
"The path to enlightenment is littered with the bodies of the ignorant." - Musashi Miyamoto


mikey20
New Member


Date Joined Aug 2006
Total Posts : 5
   Posted 8/5/2006 7:56 PM (GMT -7)   
Recently I was diagnosied with AS . It took 15 years and many docters and a lot of pain . I am reluctant to try emberal . I was wondering if anyone has a suggestion.

Mike
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