time to christen a new moanin' thread.
in hoping i sleep till noon tomorrow...goodmoanin'.
Hmmm, I haven't gotten updates in days.....either the threads I was on are through, or I forgot to check "notify me...."
Hope everyone is well....I have had a busy and trying month and haven't had much PC time - I'm doing my best to take care of myself as July/August is usually the beginnings of the "bad part of the year" for me. I've got some joints complaining, but I have to say, this is still the best July I've had in many many years. (knock knock) I just hope and pray this is a good sign and the rest of the year will go better as well compared to the last few 2nd halves of the year where I'm pretty much in tears and barely making it through the days from early July until December/February.
It has been soooo unbelievably hot and HUMID here in SD...it was 105 in the shade Saturday afternoon! We actually had lighting late Saturday night...but, still no relief on the humidity. Though the humidity is uncommon, this high heat is even early as well.
I hope everyone is feeling better......
Post Edited (CaMama) : 7/24/2006 11:07:57 PM (GMT-6)
I've mentioned some things in passing to my 2 co-workers (one being my supervisor) in conversation, but no - I never brought it up in the interview, I considered putting it down on my application as "disabled" but decided against it not knowing if I needed an official 'label' from the government or something to say that. The boss, I don't think, has any idea. Working only 24 hours has been a big help in helping me take it easy when necessary (and working 30+ these last 3 - 4 weeks really gave me a good reminder WHY I want and NEED only 24!)
My husband is still waiting for me to get sick again and have to quite. He refuses to feel comfortable with my income and saying I work in fear as soon as he does, I'll be out. Though I understand where that is coming from, the negative energy isn't very helpful. He's got enough stresses w/his own health after the June 30th incident and the fact his work is so unstable these days....
How are you doing these days, Erin? You weren't sounding too good at the end of V12.
Forgive me as I have only been on these boards a few months, but is this thread for general griping, letting off steam, venting about anything, etc?
If so, then I will be back to vent my frustrations.
hey, you knew i slept? oh yeah that's right...because i didn't write anything here @ 4am, lol, that's how ya know i'm in la-la land. oh it was GRAND! 6 hours! weeehooo.
oy! some major power outages in CA mama huh? heard on the news. here too. they'll be looting and rioting soon in Queens. lol. here's to one day at a time. may everything remain slightly steady (take what we can get) for ya Camama!
Well Marcia....I mean Yalinda.....ahem... Have a GREAT time!
<knock on wood> I have been spared the power outage thus far.....we've had a slight break in the humidity....well, not break per se, but it's lightened up a tad. Nonetheless, when it's over 80 degrees out before 9 a.m. you KNOW it's going to be one icky day!
I heard St. Louis had/has been going through a 10 day outage? As well as other places around the country. I didn't realize how bad the heat and weather has been globally. WOW.
Erin, you mentioned you slept in a post somewhere.
hah! i slept in a post somewhere! i hope i was ok. lol
um yeah friday nite! 6 hours!
be safe everybody & keep cool.
lousy nite. severe pain kept me up till the wee hours of the morning. ugh!
this is getting way too exhausting.
hi everyone..... its marcia, marcia, marcia . havent been online since thursday? made the friday night bash but over did myself and have been in bed all weekend, i know pity party for yalinda..... and everyone else here.
attempted to go to the picnic affair on saturday but could hardly walk or hold anything.... my fault i came early friday to set up and stayed late to clean up after evryone left. what was i thinking..... dang RA! ok i vented. i thought a couple times to go online but when i sat in at the computer i just wanted to go back to bed!
it is gonna be hot here, today high ninties tomorrow in the hundreds, with our humitity added .... ugh. i think we need to do something about this global warming thing. but i guess it is better than an ice age. hehehe
well just thought i would drop in and send a greeting out to everyone and let you know i had a great friday night. other than that .... everyother day has su****. threw up twice at work today i think from the increased mtx? better now .... as far as that goes.... well i am going to figure out how to water the flowers with as little energy as possible! take care everyone and i hope everyone has a great night and day tomorrow ~*yalinda (((((((hugs)))))))
I've had a couple of good days here--took enbrel on Saturday (combined with the mtx), but today I feel like the problems are starting again. I'm still very hopeful the mtx will make the difference, but I'm still on a fairly low dose (7.5 mg/week) right now. Rheumy will not increase it until I see him next (end of August). This weather really bites. I would love to get out and walk, but as soon as I stick my head out I lose my breath, it is so hot and thick (I live in a very humid climate). Allergies are very bad too--most days I lose my voice completely (unless I stay in air-conditioning).
I know this is a bit of a whine, but I'm so tired of feeling like crap and not getting any answers. I have RA; I don't have RA. I have Lupus; I don't have Lupus. I have IBD; I don't have IBD. My rheumy leans towards IBD, but he can't diagnose that--he's not a GI doctor. The first GI doctor I went to found ulcers in my colon, but would not diagnose anything (found out this is typical of him--he has a reputation for not being a diagnostician). Second GI doctor I went to did another scope and colon is normal (ulcers have healed). She said I definitely do NOT have IBD, despite the fact that I've taken medication that can potentially control IBD (enbrel, humira, sulfasalazine); currently still taking enbrel and have added mtx. Why can't I find a GI doctor that is willing to listen to all of my symptoms instead of waiting for major damage in my colon for a diagnosis? Of course, my rheumy could be wrong and I don't have IBD. But then, I question where all those ulcers I had came from. Plus, I believe the pattern of my joint distribution is typical of the arthritis associated with IBD. Rheumy said it is possible for the arthritis to be the major symptom and the colitis is actually secondary. I'm so confused and I just want answers.
Erin and Yalinda, I'm so sorry you're feeling poorly right now. HOpe it gets better for both of you.
CaMama, blowtorch heat does not sound any more appealing than the wet heat we have here on the east coast!
Well good moaning use gize :)
Marcia, those Friday night frolics are gonna get ya!
Erin I am worried about you, because I know you are very sick.
Docs are very powerful in our society. They won't diagnose anything, unless it jumps up and bites their a*ss. Anything they say can and will be used against/for you at some time later. They have to keep the workforce working, else their stock in the "Bunch of Hard Workers Inc." will fall. They are afraid that people will actually try to get SSDI! WHOA, can't have that. Need um working.
Listen to this; I had an infectious disease doctor that ordered a brain mri for me. The imaging place sent me the interpretation. The ID doc got me an appointment with a neurologist. I took the interpretation of the mri with me. The neuro explained all the findings (white matter disease, lesions from strokes. changes in my brain due to small vessel disease (SVD) and each sinus had a growth or something unidentifiable).
Ok, so this ID doc sends me a letter that says all was well regarding my mri, except that I needed to get my sinuses checked out....He didn't realize that the neuro had went over it with me. He also told me that having a chronic, active infection with the EB virus meant nothing, even though the diagnosis sheet said chronic fatigue and arthralgia. Every doc that I mention this ID doc to, says that the guy is the smartest man they have ever seen...He is just too smart to tell patients the truth. I have since found out that having a chronic, active EBV is very serious. It is associated with lots of crap.
What I am really po'ed about, is that I found out that I have had the he*ll irradiated out of me! I have received massive amounts of ionizing radiation (x-ray & Gamma ray) from 8 cardiac catheterizations and the big, big irradiator is the newest "64 slice Coronary Artery CT Scan" that I had in August of last year. This one test gave me 75% of the equivalent amount of radiation that a nuke power plant worker can receive in a YEAR! This is in accordance with the federal rules enforced by the NRC (nuclear regulatory Commission). I worked in this industry for over 20 years.
I read where a cardiac cath is the highest source of radiation a patient can receive, compared to all nuclear medical test. I think this was written before they came out with this "64 slice CT Scan", which is new.
I had 2 stents inserted into my coronary a's about a week after the scan. The more time you are on the cath table, the higher the dose. This is called fluoroscopy. The radiation is emitted from underneath you and a nuclear camera is above you. Basically the x-rays shoot through your body and this camera picks up the images, thus guiding the doc's probe.
I had a cath on a Thursday in one hospital, this March. They said I needed bypass surgery. I asked could it be stented at UAB hospital. They called and chatted with docs at UAB (U of Alabama in Birmingham), and said they could. My lad was 95% blocked and I was in very bad shape (not far from kicking the bucket). The next Tuesday, I spent 1.75 hours on the cath table while they performed rotoblational arthectomy in my left main and Lad. Part of the darn instrument came lose in my Lad!
I was totally conscious, but sedated with a tad of Valium and Versed, an amnesia drug that never works on me. I always remember the caths. So I received a massive dose during 1.75 hours on that table. They had a cath in my femoral artery, and a cath in my femoral vein simultaneously. They had hooked up a pacemaker inside the right part of my heart while working in the left side. Dang, if I had known all this, I would have had the bypass surgery...At UAB, you always have a student doing the work, overseen by an associate professor or professor. The professor told the student to get back from the controls and let him retrieve the lost part of the roto blade. He did and I am alive, I think.
I spent the whole day yesterday researching the radiation deal. I read of cases and saw pictures of what can happen to the skin, lungs and heart. Now I am wondering what this new pain in my chest is. Is it RA or something due to the radiation?
Who is watching over us? No one but ourselves.
I am sorry for this long, off topic rant, but I do feel better telling you my story.
Forgive me and all of you have a great day :)
P.S. I had another cath about 2 months ago due to chest pain. Nothing had changed...Take a look at these pictures...
Post Edited (Aldo) : 8/1/2006 8:46:36 AM (GMT-6)
moanin' el. yeah, we're still alive. i guess i'm making the best of things?
hmmmm...Ducky? she may be in margaritaville. lol. lookin for er' lost shaker of salt.