Good Moaning Healing Well V13

New Topic Locked Topic Printable Version
49 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 7/24/2006 4:31 PM (GMT -7)   
V12 can be reached here... please carry on...
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 7/24/2006 7:08 PM (GMT -7)   

time to christen a new moanin' thread.

in hoping i sleep till noon tomorrow...goodmoanin'.


CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 7/24/2006 9:51 PM (GMT -7)   

Hmmm, I haven't gotten updates in days.....either the threads I was on are through, or I forgot to check "notify me...."

Hope everyone is well....I have had a busy and trying month and haven't had much PC time - I'm doing my best to take care of myself as July/August is usually the beginnings of the "bad part of the year" for me. I've got some joints complaining, but I have to say, this is still the best July I've had in many many years. (knock knock) I just hope and pray this is a good sign and the rest of the year will go better as well compared to the last few 2nd halves of the year where I'm pretty much in tears and barely making it through the days from early July until December/February.

It has been soooo unbelievably hot and HUMID here in SD...it was 105 in the shade Saturday afternoon! We actually had lighting late Saturday night...but, still no relief on the humidity. Though the humidity is uncommon, this high heat is even early as well.

I hope everyone is feeling better......

***

 



 

Post Edited (CaMama) : 7/24/2006 11:07:57 PM (GMT-6)


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 7/24/2006 10:33 PM (GMT -7)   
Oh wow...you're in my prayers that your stamina keeps up well enough! You're a real hero Camama & I applaud the effort you're putting in.
Does your work know anything about your health?
Take care,
erin
Active/Severe Rheumatory Arthritis. Crohns. AS. Chiari Malformation & Right Brain venous anomoly. Partial complex seizures. Emphysema. Rheumatic Lung & Heart. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg Q 4 days; Prednisone 20mg; Pentasa 4G daily; Imuran 50mg; Dilaudid 4mg; Diazepam 5mg; Avinza 60mg; Reglan; Antivert 25mg tid; LidoDerm; MiraLax & too many others.


CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 7/25/2006 9:06 PM (GMT -7)   

I've mentioned some things in passing to my 2 co-workers (one being my supervisor) in conversation, but no - I never brought it up in the interview, I considered putting it down on my application as "disabled" but decided against it not knowing if I needed an official 'label' from the government or something to say that. The boss, I don't think, has any idea. Working only 24 hours has been a big help in helping me take it easy when necessary (and working 30+ these last 3 - 4 weeks really gave me a good reminder WHY I want and NEED only 24!)

My husband is still waiting for me to get sick again and have to quite. He refuses to feel comfortable with my income and saying I work in fear as soon as he does, I'll be out. Though I understand where that is coming from, the negative energy isn't very helpful. He's got enough stresses w/his own health after the June 30th incident and the fact his work is so unstable these days....

How are you doing these days, Erin? You weren't sounding too good at the end of V12.

***

 

 

 
 
 


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 7/26/2006 9:14 AM (GMT -7)   
scool  moanin'
wow Camama...what a drag that he feels that way. geesh...give some credit to ya at least man! it's 10 times more difficult to work any career or job when ill.  well, i really praise & applaud you because like so many other's here i know how hard it is to put in a few hours a day when you're not fit to do so.  i was really struggling at the end of working last year.
 
today's better than yesterday. BECAUSE I SLEPT! yeah hooray! it was a weird sleep.  dozed off @ 0230am, woke up at 3am and back for good till 1024am.  thank God!
i don't feel "hungover" for the 1st time this week!  zero hours leaves me feeling like i've been on an all nite booze cruise! tongue minus the good time!
so here's to a semi-decent day.
goal for today is to learn some material (some nursing math) that i couldn't this week (no sleep=no brain activity) :-) .
you take care ok?  and blow off anyone throwing you toxic vibes.  do this for yourself & your kids. (are things between you & hubby sour still?)
have a good day all.

Baybreeze
Regular Member


Date Joined Oct 2005
Total Posts : 315
   Posted 7/26/2006 6:02 PM (GMT -7)   

Hi all,

Forgive me as I have only been on these boards a few months, but is this thread for general griping, letting off steam, venting about anything, etc?

If so, then I will be back to vent my frustrations. confused


Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 7/26/2006 6:33 PM (GMT -7)   
Let it fly Baybreeze.. just let it all out!
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea

Baybreeze
Regular Member


Date Joined Oct 2005
Total Posts : 315
   Posted 7/27/2006 5:11 PM (GMT -7)   
Ok, here goes.....
 
I don't how much longer I can keep my sanity & humor. Long story short - aside from my lupus flares, 3 yrs ago I started getting back pain, which I never had before. Never thought much of it, but it was getting worse & worse. Sometime in January it all hit hard...a flare and excruciating, nauseating back pains. Finally found out this Feb I  I have DDD, Osteoarthritis, herniated discs, and severe lumbar spinal stenosis. I cant stand or walk for more than about 2 minutes and when I do walk I have to bend way forward at the waist. Have tried every treatment under the sun including Medrol dose pack & epi steroid injections, which only lasted a month. I still work full time, though don't ask me how with all this pain. Now from all this time walking funny, I am getting horrific spasms in my neck, shoulders, even throat and face. I had to stop taking the only med that helped my pain A LITTLE, Vicoprofen, due to developing severe bruising all over my body..so now I have nothing for pain, just my plaquenil for lupus. I already used up most of my alloted physical therapy b/c I had to do that first to see if it would help. Nothing helped & now I need surgery. Was finally ready to schedule surgery, then my Gyno herself calls me and says she's very concerned about my latest Pap and I have to have some colscopy (spelling) and probably biopsy. I cant even get the various gyno appts needed that quickly so I had to delay my spine surgery til late September. (oh, before this when I had my back MRI, they also found a ton of cysts in my ovaries which I still havent had a sonogram for)
 
Then last week a great friend (neighbor suddenly died of aggrssive kidney cancer). A few weeks ago my old car's blower fan & A/C stopped working;last week an axle broke off one of my wheels while driving and I almost smashed into a fence; I went to call triple A and found my cell phone dead.   confused    Then earlier this week my windows became stuck closed!! THe past couple days I almost felt was going to pass out driving home from work sitting in a closed car that's about 120 degrees. Mind you, I desperately need a new car but cant go to look due to me not being able to walk or stand at all.....but i dont care anymore. Im gonna just have to bear it and look around for one this weekend. My appetite has been lost since mid June and I don't even get hunrgy at all....this is not on purpose, I get nauseous from pain and just have no appetite. And with this, ya'd think I might at least lose a few pounds, but NOOOOOOO.
 
ANd now my brain's all jumbled & cant remember what else I wanted to let fly <LOL>. Im not even sure if made any sense above. I just don't know how much longer I can stand all this  <screeeeeeaaaammmm>. Well, thats enough from me....at least I got most of it out.
 
Thanks for letting me get some of this off my chest.
 

Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 7/27/2006 5:16 PM (GMT -7)   
Holy cow... Ok, 1st off... you need to either get your car fixed, or get a new car... you've got work and doctor's appts to meet, and with this summer heat, you need a car that you can drive and not suffer from a heatstroke in.. Is you cell phone dead dead or just the battery?

Is part of the gyno biopsy related to the ovarian cysts? They may be able to kill 2 birds with one stone on that one... Then you can have your surgery in September right?

Now as far as you not eating, well, I'm not gonna harp on you for that you know you need to eat to keep up your strength to deal with all these issues.. so 'nuff said...

Hang in there.. you weren't kidding when you said you needed to vent! All will work out, I promise... let us know how you are.. Duck
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea

CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 7/27/2006 8:59 PM (GMT -7)   
Baybreeze - Wow, you are going through a LOT right now and the heat is NOT helping I'm sure of that! (nice of me to state the obvious, eh?) Seriously, do try to eat a little something at least when you take your meds, taking them on an empty stomach is bad enough but when you add the heat on top of it.....forget about it!
 
Are you able to take any time off to get some rest, get out of the heat, stretch, and rest your body and mind?
 
Oh boy, I'm not even equipt to help with advice here - I've been there, though. It's a tough ride to get through. We're here for venting any time you need it!
 
 
Erin - so glad you got some rest!!! YEAH!!!
 
I'm hanging in there....hubby and I are doing okay right now....we'll see how long it lasts. I really don't know if some of our issues come about beause mentally I'm such a mess that I can't let certain things 'roll off my back' like I can do when I'm a little more stable. Who knows......
 


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 7/28/2006 9:28 AM (GMT -7)   

  cool moanin' Camama,

hey, you knew i slept? oh yeah that's right...because i didn't write anything here @ 4am, lol, tongue that's how ya know i'm in la-la land.  oh it was GRAND! 6 hours! weeehooo.

oy! some major power outages in CA mama huh? heard on the news.  here too. they'll be looting and rioting soon in Queens. lol.  here's to one day at a time.  may everything remain slightly steady (take what we can get) for ya Camama!


yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 7/28/2006 1:21 PM (GMT -7)   
tongue  so how is the weekend looking for everyone?  any special activities........?
 
me? why yes, glad you asked. hehehehehe  i am meeting up with a bunch, 62 to be exact, of old friends tonight from my days as a boy scout. devil    Yes, boy scout, and no i have not had a sex change operation.  tongue   can yalinda be a boys name?  manly yes, but i like it too!  actually it was called explores.... we explored .... hehehehe   ok keep it G rated for general audiences right?
 
30 years ago marcia brady and i had a common quest and i succeeded! redface   i havent seen some of these guys in 30 years, crazy!  
 
 i am looking forward to it ~peps are coming from far and wide i think TX the lone star state might be the furthest? so anyway that is my exciting weekend and i have t minus 2 hours to get ready so tata for now.... tigger aka ~*yalinda smurf  
 
ps hope everyone else has a good weekend?  yeah i love art therapy

RandomDave
Regular Member


Date Joined May 2006
Total Posts : 164
   Posted 7/28/2006 4:00 PM (GMT -7)   
Ever have a step-brother named greg break your nose after hitting you in the face with a football? Me either.
-SLE, RA & PA....it's all about the acronyms!

-Current meds: Plaquenil, Sulfasalazine, and a little NSAID du jour for flavouring. Mmmmm NSAIDs.


CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 7/29/2006 1:51 AM (GMT -7)   

Well Marcia....I mean Yalinda.....ahem... tongue   Have a GREAT time!

<knock on wood> I have been spared the power outage thus far.....we've had a slight break in the humidity....well, not break per se, but it's lightened up a tad.  Nonetheless, when it's over 80 degrees out before 9 a.m.  you KNOW it's going to be one icky day!

I heard St. Louis had/has been going through a 10 day outage? As well as other places around the country. I didn't realize how bad the heat and weather has been globally. WOW.

Erin, you mentioned you slept in a post somewhere.

**


 


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 7/29/2006 12:58 PM (GMT -7)   

hah! i slept in a post somewhere!  i hope i was ok. lol tongue

um yeah friday nite! 6 hours!

be safe everybody & keep cool.


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 7/31/2006 8:00 AM (GMT -7)   

sad  lousy nite.  severe pain kept me up till the wee hours of the morning. ugh!

this is getting way too exhausting.


Active/Severe Rheumatory Arthritis. Crohns. AS. Chiari Malformation & Right Brain venous anomoly. Partial complex seizures. Emphysema. Rheumatic Lung & Heart. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg Q 4 days; Prednisone 20mg; Pentasa 4G daily; Imuran 50mg; Dilaudid 4mg; Diazepam 5mg; Avinza 60mg; Reglan; Antivert 25mg tid; LidoDerm; MiraLax & too many others.


yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 7/31/2006 6:02 PM (GMT -7)   

hi everyone..... its marcia, marcia, marcia tongue .   havent been online since thursday?  made the friday night bash but over did myself and have been in bed all weekend, i know pity party for yalinda..... and everyone else here.

attempted to go to the picnic affair on saturday but could hardly walk or hold anything.... my fault i came early friday to set up and stayed late to clean up after evryone left. what was i thinking..... dang RA! ok i vented.  i thought a couple times to go online but when i sat in at the computer i just wanted to go back to bed!

it is gonna be hot here, today high ninties tomorrow in the hundreds, with our humitity added .... ugh.  i think we need to do something about this global warming thing.  but i guess it is better than an ice age. hehehe  tongue

well just thought i would drop in and send a greeting out to everyone and let you know i had a great friday night.  other than that .... everyother day has su****.   threw up twice at work today i think from the increased mtx?  devil better now .... as far as that goes.... well i am going to figure out how to water the flowers with as little energy as possible!  take care everyone and i hope everyone has a great night and day tomorrow yeah    ~*yalinda   (((((((hugs)))))))


CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 7/31/2006 11:03 PM (GMT -7)   
Yeah, you all really need to take it EASY, they say you're getting the scorching heat we've just had here in CA. It was AWFUL. And as bad as the humidity was here, I have a feeling in your more humid climates, it'll be even worse there.  The news today defined it the best "blowtorch heat" and that's exactly what it felt like walking outside! You'd just get scorched the second you'd walk outside (assuming you had A/C.) And the worst thing was, it just wasn't letting up!
 
We went from extreme, out-of-the-ordinary heat and humidity to un-seasonal rain and funky weather. Of course, my joints have been complaining....I just can't win! First it's WAY too hot then it's too cold. Well, it's not exactly cold, but the weather is affecting me that's for sure.
 
Erin and Yalinda - feel better soon.
 
Dave, how ya feeling these days?
**
 


elcamino
Veteran Member


Date Joined Sep 2005
Total Posts : 1744
   Posted 8/1/2006 4:52 AM (GMT -7)   

Hi all,

I've had a couple of good days here--took enbrel on Saturday (combined with the mtx), but today I feel like the problems are starting again.  I'm still very hopeful the mtx will make the difference, but I'm still on a fairly low dose (7.5 mg/week) right now.  Rheumy will not increase it until I see him next (end of August).  This weather really bites.  I would love to get out and walk, but as soon as I stick my head out I lose my breath, it is so hot and thick (I live in a very humid climate).  Allergies are very bad too--most days I lose my voice completely (unless I stay in air-conditioning). 

I know this is a bit of a whine, but I'm so tired of feeling like crap and not getting any answers.  I have RA; I don't have RA.  I have Lupus; I don't have Lupus.  I have IBD; I don't have IBD.  My rheumy leans towards IBD, but he can't diagnose that--he's not a GI doctor.  The first GI doctor I went to found ulcers in my colon, but would not diagnose anything (found out this is typical of him--he has a reputation for not being a diagnostician).  Second GI doctor I went to did another scope and colon is normal (ulcers have healed).  She said I definitely do NOT have IBD, despite the fact that I've taken medication that can potentially control IBD (enbrel, humira, sulfasalazine); currently still taking enbrel and have added mtx.  Why can't I find a GI doctor that is willing to listen to all of my symptoms instead of waiting for major damage in my colon for a diagnosis?  Of course, my rheumy could be wrong and I don't have IBD.  But then, I question where all those ulcers I had came from.  Plus, I believe the pattern of my joint distribution is typical of the arthritis associated with IBD.  Rheumy said it is possible for the arthritis to be the major symptom and the colitis is actually secondary.   I'm so confused and I just want answers.

Erin and Yalinda, I'm so sorry you're feeling poorly right now.  HOpe it gets better for both of you.

CaMama, blowtorch heat does not sound any more appealing than the wet heat we have here on the east coast!

Elcamino


Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Aciphex, Ultracet, Zyrtec, Allavert-D, Zantac, Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan


Aldo
Regular Member


Date Joined Jan 2006
Total Posts : 289
   Posted 8/1/2006 7:29 AM (GMT -7)   

Well good moaning use gize :)

Marcia, those Friday night frolics are gonna get ya!

Erin I am worried about you, because I know you are very sick.

Docs are very powerful in our society. They won't diagnose anything, unless it jumps up and bites their a*ss. Anything they say can and will be used against/for you at some time later. They have to keep the workforce working, else their stock in the "Bunch of Hard Workers Inc." will fall. They are afraid that people will actually try to get SSDI! WHOA, can't have that. Need um working.

Listen to this; I had an infectious disease doctor that ordered a brain mri for me. The imaging place sent me the interpretation. The ID doc got me an appointment with a neurologist. I took the interpretation of the mri with me. The neuro explained all the findings (white matter disease, lesions from strokes. changes in my brain due to small vessel disease (SVD) and each sinus had a growth or something unidentifiable).

Ok, so this ID doc sends me a letter that says all was well regarding my mri, except that I needed to get my sinuses checked out....He didn't realize that the neuro had went over it with me. He also told me that having a chronic, active infection with the EB virus meant nothing, even though the diagnosis sheet said chronic fatigue and arthralgia. Every doc that I mention this ID doc to, says that the guy is the smartest man they have ever seen...He is just too smart to tell patients the truth. I have since found out that having a chronic, active EBV is very serious. It is associated with lots of crap.

What I am really po'ed about, is that I found out that I have had the he*ll irradiated out of me! I have received massive amounts of ionizing radiation (x-ray & Gamma ray) from 8 cardiac catheterizations and the big, big irradiator is the newest "64 slice Coronary Artery CT Scan" that I had in August of last year. This one test gave me 75% of the equivalent amount of radiation that a nuke power plant worker can receive in a YEAR! This is in accordance with the federal rules enforced by the NRC (nuclear regulatory Commission). I worked in this industry for over 20 years.

I read where a cardiac cath is the highest source of radiation a patient can receive, compared to all nuclear medical test. I think this was written before they came out with this "64 slice CT Scan", which is new.

I had 2 stents inserted into my coronary a's about a week after the scan. The more time you are on the cath table, the higher the dose. This is called fluoroscopy. The radiation is emitted from underneath you and a nuclear camera is above you. Basically the x-rays shoot through your body and this camera picks up the images, thus guiding the doc's probe.

I had a cath on a Thursday in one hospital, this March. They said I needed bypass surgery. I asked could it be stented at UAB hospital. They called and chatted with docs at UAB (U of Alabama in Birmingham), and said they could. My lad was 95% blocked and I was in very bad shape (not far from kicking the bucket). The next Tuesday, I spent 1.75 hours on the cath table while they performed rotoblational arthectomy in my left main and Lad. Part of the darn instrument came lose in my Lad!

I was totally conscious, but sedated with a tad of Valium and Versed, an amnesia drug that never works on me. I always remember the caths. So I received a massive dose during 1.75 hours on that table. They had a cath in my femoral artery, and a cath in my femoral vein simultaneously. They had hooked up a pacemaker inside the right part of my heart while working in the left side. Dang, if I had known all this, I would have had the bypass surgery...At UAB, you always have a student doing the work, overseen by an associate professor or professor. The professor told the student to get back from the controls and let him retrieve the lost part of the roto blade. He did and I am alive, I think.

I spent the whole day yesterday researching the radiation deal. I read of cases and saw pictures of what can happen to the skin, lungs and heart. Now I am wondering what this new pain in my chest is. Is it RA or something due to the radiation?

Who is watching over us? No one but ourselves.

I am sorry for this long, off topic rant, but I do feel better telling you my story.

Forgive me and all of you have a great day :)

Rj

P.S. I had another cath about 2 months ago due to chest pain. Nothing had changed...Take a look at these pictures...

http://heart.bmjjournals.com/cgi/content/full/81/3/308

Post Edited (Aldo) : 8/1/2006 8:46:36 AM (GMT-6)


elcamino
Veteran Member


Date Joined Sep 2005
Total Posts : 1744
   Posted 8/1/2006 8:14 AM (GMT -7)   
RJ,  You have really had quite the time of it.  Makes my little whine pretty insignificant (albeit still important to me).  I hear you about the whole malpractice thing, the politics of medicine, etc...  At least my rheumy is treating me for both the colon symptoms and the arthritis.  And yes, I've read that a chronic EBV infection is a problem that needs to be addressed. 
 
Erin, how are you doing lately?  Haven't heard from you in a while.  Ducky, what about you?  Is everyone having a bad week?
 
Elcamino
Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Aciphex, Ultracet, Zyrtec, Allavert-D, Zantac, Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan


Aldo
Regular Member


Date Joined Jan 2006
Total Posts : 289
   Posted 8/1/2006 11:43 AM (GMT -7)   
No Mam El C....my experiences and troubles in no way diminish what you guys suffer. I am a little nutty from all the reading I done yesterday on radiation from cardiac caths. I just had to let it go somewhere....I hope it's not like I spewed chum here! sad eyes confused
 
I can't imagine all the pain you guys have. I am ok compared to y'all. I just know that I don't have a long time to hang around. I have too many bad habits and fouled up arteries. That hain't no pity pot talk (it sure sounds like it). It's just statistics....I've already had one heart attack. The old classic kind where you meet your maker and have a lot of very strange pain in your chest, jaw and arm, and you really moan and writhe. It doesn't bother me though. I take one day at a time, like so many :-) .
 
Rj

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 8/1/2006 12:04 PM (GMT -7)   
hey Rj,
wow! you know what?...thank you for that story.  seriously!  i've taken part in 2 cardiac catheterizations @ the cath lab (it is my FAVORITE of all surgeries...sorry!) but then again...it's not me on that table. i tell ya though, fascinating.  the best one i worked in was where there was a Rep from the SilverEagle, the roto-rooter they thread through ya, i'm sure you're familiar. and it got thread through this poor guys central clavicle artery (by his neck! geesh!) and they got down all the way to just about his knee. from the knee down was completely occluded from CAD, artherosclerosis and OA and RA deformity. but that Eagle buzzed it's way through, vacuumed & sucked up cholesterol too!  the cath lab nurse let me take  home a little piece of cholesterol plaque to my mom in a baggy to "scare" her into stop smoking! pretty cool. ewwwww tongue
 
i'm worried about me too.  taking all of those steroids yesterday helped the joint pain, and i got to sleep last nite. :-) so today's much better.  dealing with this disease is really getting more difficult for me to do.  and ya know...it's affecting my boyfriend more & more as well, so it's a multifacited ordeal here.  sad i really miss nursing and working & everything.  i'm grateful for the things i do have...in some aspects i am way more fortunate than some "healthy functioning" people in that i have so much love & support from my friends, boyfriend & family (as little family they are...they make up in heart what we lack in numbers).
but i'm sure you can understand how i feel the feelings of "unstableness and insecurity" being that i'm petrified as to what is to become of my future.  boy, they're right in saying autoimmune disease hits ya at the prime of life.
the good quality i have is that i never lose hope & year after year, even though it doesn't happen, or at least hasn't happenned yet...i still say "this year's going to be better than last year".
so, this year's gonna be better Rj!
wishing all a good tuesday.  be safe, stay cool, wear sunscreen! cool   

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 8/1/2006 12:08 PM (GMT -7)   

cool  moanin' el.  yeah, we're still alive. i guess i'm making the best of things? eyes

hmmmm...Ducky? she may be in margaritaville. lol. tongue lookin for er' lost shaker of salt. :-)

New Topic Locked Topic Printable Version
49 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Wednesday, December 07, 2016 5:09 PM (GMT -7)
There are a total of 2,734,354 posts in 301,204 threads.
View Active Threads


Who's Online
This forum has 151324 registered members. Please welcome our newest member, worldviews.
352 Guest(s), 10 Registered Member(s) are currently online.  Details
Psilociraptor, Jasperilla, mikeb2308, northerner, Ides, Teamchris, Scaredy Cat, jdcd57, U B Tough, Suffering34


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer