oh STINK! bad labs.

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erin.K
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Date Joined Mar 2005
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   Posted 7/27/2006 7:40 PM (GMT -7)   
man! all this time i was flyin' under the radar with constant labs. of course a lot of suppression & immunocompromised...but my hepatic panels came back el-stinko today.
praying this doesn't pull me off Imuran or Humira.
i mean, i knew i was a little yellow...but dangit, total & direct bilirubens were high over normal limits. boo!
so, talks of hemolytic reactions (whatever). maybe why i've been as ill as i have since June??
think i'm going for a break. no sleep, too many steroids, too much pain. just too much.


what's the cut-off point for the liver regarding meds? personally not familiar, never had this issue.
funny thing...would it be stupid for me not to care? i don't know...guess i'm so desperate for a remission or just anything.

on bright side: bought Emu-Oil for my scalp (those lesion thingies) and it's good stuff on the cuticles too! time for a mani???

off to me honey's tomorrow nite (hopefully). need some rejuvination (he has a TempurPedic Mattress).
goodnight ya'll.
does Emu oil come from Emu's?

Post Edited By Moderator (Admin) : 8/23/2010 4:31:24 PM (GMT-6)


CaMama
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Date Joined Mar 2005
Total Posts : 1884
   Posted 7/27/2006 9:12 PM (GMT -7)   
hee hee - you are hilarious.....I have no idea where Emu oil comes from ! tongue
 
In all seriousness, Erin, the liver enzymes is not good. I don't know how "high" you were, but take it from someone who has been dealing with that same problem for 3 years now....not a good thing.   And YES, that is VERY likely why you've been sick since June and my personal opinion is take a rest from the meds (I know they are just starting to kick in but the effects of being sick are going to override their help in time if they haven't already.)  I stopped taking Remicade one year ago May and it took almost an entire year for my body to level out. I couldn't go even 3 months w/o getting another infection......
 
I will warn you, my rhuemy was reluctant to say Remicade had ANYTHING to do w/my liver issues and said, 'it's your choice if you want to get off it." My PCP had other things to say to argue back. I personally felt, after 6 months of constant sickness, continually declining labs, and debillitating flares that the meds were very likely a culprit and/or an accessory to my ill-health and I made the choice to stop. I was sick pretty much non-stop until this past February.
 
Moral: don't take these lab results lightly!!!!
***
 


erin.K
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Date Joined Mar 2005
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   Posted 7/28/2006 9:21 AM (GMT -7)   

sad  oh Camama i knew YOU were to be the one to reply because i know how badly you've been dealing w/ hepatic issues.

detail: BILIRUBIN, TOTAL (3.3)   {0.1 - 1.0 normal}

             Bilirubin, Direct  (0.9)  {0 - 0.3 normal}

so the hepatics are triple above normal?

ketones in urine (small amount)

urobilinogen in urine (2.4 units)     {0-2 normal}

crystals and bacteria (moderate amounts)   {normal=none}

all my docs explained  when i went on Imuran in combo w/ everything else that i'de need bloodwork every 3 weeks to watch liver function & wbc's. they said we had to be careful and watch the liver panels.  i'm very immunosuppressed with wbc's (at 2.5) but i RARELY catch any infections! (rarely get exposure to stuff so that could be why!) only had that pneumonia in April.  so actually getting "sick" from viruses/bacteria isn't really an issue so far.

all of the chemotherapy actually gave me a "slight" time from April to the 2nd week in June of "betterness".  the RA for that while wasn't getting worse and i was doing about 30% better than i had in 2 years.  but as you know that ended in June! and everything progressed for the worst. mad

i think i'de have a nervous breakdown if they pulled all of the RA meds. 

but!...i will NOT think of that now, perhaps it's nothing.  GI on the 9th will decipher what to do.  i think a repeat of the labs is a good idea (maybe they let the blood sit too long). Yes...I'M BARGAINING!

geezaloo...Camama thanks for your insight, i'll be more vigilant regarding everything i promise.  but i can't let myself think too much about stopping the Imuran because i feel it's helped (or did help) and i'll wait to hear what GI dude thinks.

 


yalinda
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Date Joined May 2006
Total Posts : 1179
   Posted 7/28/2006 1:23 PM (GMT -7)   
stay away from the margaritas!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! "me"

CaMama
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Date Joined Mar 2005
Total Posts : 1884
   Posted 7/29/2006 1:47 AM (GMT -7)   
Definitely get those opinions and decide for yourself what to do. Once you DO catch something - that's it. At least in my experience. Though, I had a lot of exposure to virus's (having kids) and lots wearing my body out (full time work, kids, meds, already weak immune system) working against me.
 
keep us informed.
 


erin.K
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Date Joined Mar 2005
Total Posts : 3148
   Posted 7/29/2006 12:56 PM (GMT -7)   
hey ya'll,
thanks for all of your support on this.  oh and just for the record, i haven't had ANY alcohol in geesh?...since July 4th.  and that was 2 margaritas.  honestly, haven't felt well enough to even want a drink...not appealing lately either.  so i can rule out a liquer binge as cause for the liver labs.  boo! sad wish i could blame that however.
really wiped out. 
i wonder if this is why i've been running fevers too?
Camama...any insight on that?
they've been for the past 3 weeks 99/ 99.8/  100.8...nothing over 101 though.  and nightsweats galore! holey toledo!  drenched!
but...relaxing w/ me honey & having a pleasant saturday (thank God)
:-)  
Active/Severe Rheumatory Arthritis. Crohns. AS. Chiari Malformation & Right Brain venous anomoly. Partial complex seizures. Emphysema. Rheumatic Lung & Heart. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg Q 4 days; Prednisone 20mg; Pentasa 4G daily; Imuran 50mg; Dilaudid 4mg; Diazepam 5mg; Avinza 60mg; Reglan; Antivert 25mg tid; LidoDerm; MiraLax & too many others.


elcamino
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Date Joined Sep 2005
Total Posts : 1744
   Posted 7/29/2006 1:24 PM (GMT -7)   

Erin, I would defer to camama's judgement on this issue.  Bad liver labs are nothing to mess around with.  Isn't that the reason we all have to have routine bloods drawn?  And you were taking more than others...Don't have much experience with this personally (thank God), but one of my daughters was severely jaundiced right after my c-section.  They kept her in the NICU over night on that one, and we had to bring her back to the hospital 3 times that first week for bloods. 

I'm sure your doctors will not leave you high and dry with no meds at all.  There are probably more tricks up their sleeves than you realize.  Best to you.

Elcamino


Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Aciphex, Ultracet, Zyrtec, Allavert-D, Zantac, Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan


erin.K
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Date Joined Mar 2005
Total Posts : 3148
   Posted 7/29/2006 3:33 PM (GMT -7)   
awe thanks El. yeah, i'm sure it's just a matter of closer monitoring. my GI guy specializes in liver issues so that's good for me!
Active/Severe Rheumatory Arthritis. Crohns. AS. Chiari Malformation & Right Brain venous anomoly. Partial complex seizures. Emphysema. Rheumatic Lung & Heart. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg Q 4 days; Prednisone 20mg; Pentasa 4G daily; Imuran 50mg; Dilaudid 4mg; Diazepam 5mg; Avinza 60mg; Reglan; Antivert 25mg tid; LidoDerm; MiraLax & too many others.


CaMama
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Date Joined Mar 2005
Total Posts : 1884
   Posted 7/30/2006 8:17 AM (GMT -7)   

My guess is yes on the fever and sweats. Plus, when your liver is bad, you can REALLY stink when you sweat....not the normal sweaty stink. It's disgusting and embarrassing.

my body temp typically runs low (96.2), but when I wasn't feeling well like that - I ran a low grade fever constantly as well.  And the fatigue - whoa.....it felt like I must have had narcolypse (spelling?) or at least mono yet again - I was terrified to drive because I could literally fall asleep with the blink of an eye.***


 


erin.K
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Date Joined Mar 2005
Total Posts : 3148
   Posted 7/30/2006 11:23 PM (GMT -7)   
oh no! ever since i've been on heavy meds, i've noticed that i actually smell "chemically" i smell like my meds! i never sweat unless it's a nightwseat, but it IS AWFUL you're right! not like when i was young. much different.
ok...graphic but it's reality: i am a very clean and orderly person, but when i have extreme pain, can't use my joints, can't stand...i don't make it into the shower some days and at it's worst for example last week...i was so sick that it was 2 days before i was strong enough to get into the shower. and what an ODD odor my skin has! it's not even B.O.! it's some weird toxic smell! kinda like burnt plastic or something. ewwwwww.
fevers have been 99 to 99.8 to 100.8 but i'm immunosupressed so i'm scared that the steroids and immunospupressants are giving a false read on the temp y aknow? it could really be 103!
this weekend has been sleepy so far; hah...but not right now. can't sleep, 230am. but i's a fatigue where it's like, "of i don't lay down RIGHT NOW i'm gonna fall down." it's a very difficult time.
blown up like a baloon from the steroids...yuck! feel like a sausage. not very attractive....it would be nice if they actually made me feel great physically then i wouldn't care if i looked bloated, pimply, and balding!
oy!
Active/Severe Rheumatory Arthritis. Crohns. AS. Chiari Malformation & Right Brain venous anomoly. Partial complex seizures. Emphysema. Rheumatic Lung & Heart. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg Q 4 days; Prednisone 20mg; Pentasa 4G daily; Imuran 50mg; Dilaudid 4mg; Diazepam 5mg; Avinza 60mg; Reglan; Antivert 25mg tid; LidoDerm; MiraLax & too many others.


CaMama
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Date Joined Mar 2005
Total Posts : 1884
   Posted 7/31/2006 5:30 PM (GMT -7)   

Just wait on the stink - you're about to get the heatwave we just had - it's a doozy! People were taking 3-4 showers a day and still disgusting!

Let's talk about the brain fog you get from the liver: I was attempting to make dinner last night and I forgot to set the oven to broil. I put dill instead of chives in my potatoes. I reminded myself not to overflow a pot, and did 2 seconds later. I put a pot on the wrong burner - or at least, I turned on the wrong burner. I put the dried seasoning in the fridge instead of the pantry. The list goes on.....it's a wonder we had any dinner to eat and didn't get food poisoning from what we DID eat! The smallest of tasks were impossible to do right the first time. Unbelievable. tongue


 


Aldo
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Date Joined Jan 2006
Total Posts : 289
   Posted 8/1/2006 6:19 AM (GMT -7)   
ERIN !!!!!

You need more testing done! Shame on your doctor, or did I miss where he was to do more testing? I have been reading about abnormal Lefts, and am dizzy from all the chemical names...

Limit your Tylenol (can't spell acetaminophen), like NONE. Believe it or not, Milk Thistle is good for the liver. I heard a great doc (cardiologist) that comes on tv every Sunday, answer a question from a viewer about whether this supplement is good for your liver or not. He said that tests had proved it to be. You can get it anywhere. I take it....

Your bile duct could be stopped up!!!! As per usual, RA can affect the dang test. Is there anything RA (T) doesn't affect?

Are you retaining fluid in your abdomen (ascites, sp?)? Lady, that is hard on your heart, and comes with liver disease (water retention). Cut down on the salt some. It couldn't hurt. I know the last thing you need is another medicine, but every now and then I take a dose of Lasix, a very potent diuretic. It will flush you out! How is your blood pressure and resting pulse rate? Are your eyes and body yellow?

Here is some info or quotes and some links that you can read, if you are not prone to dizziness...I sure hope that you are feeling better. You have made me sad and worried :( This is ever so serious......

P.S. Are you taking any medicine (statins) to lower your cholesterol?

-------------------------------------------------------------

Bilirubin: this test is useful in determining if a patient has liver disease or a blocked bile duct.

Increased direct bilirubin usually means that the biliary (liver secretion) ducts are obstructed.

The other frequently used liver enzymes are the alkaline phosphatase (alk. phos.) and the gammaglutamyltranspeptidase (GGT) that indicate obstruction to the biliary system, either within the liver or in the larger bile channels outside the liver.

Fast 4 hours before the test? (I never heard of this)

http://www.liverfoundation.org/db/articles/1077

http://www.aafp.org/afp/990415ap/2223.html

Post Edited By Moderator (Admin) : 8/23/2010 4:27:25 PM (GMT-6)


erin.K
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Date Joined Mar 2005
Total Posts : 3148
   Posted 8/1/2006 12:33 PM (GMT -7)   

awe...Rj...you're the best. thank you for going out of your way & looking up all that stuff.

to start: went today @11 to see my nurse @ my PCPs office. (had to have repeat bloodwork & PPD test). i showed her the labs from last week.  and yeah she confirmed they were high (bilirubens...) she also explained that both she & my PCP are shocked that i held on for THIS long!  given the medications i was on in the past and the meds i've been on the ast 3 years, most people go downhill fast!  she also stated that the elevation is of course due to my medications for RA and Crohns.  no one wants to pull me off of anything yet...so there's a relief.

hmmm? good questions you raise. Yes, i look jaundiced. in whites (or yellows tongue ) of eyes and in my face.  edema? that's a toughy because currently i've been holding water weight from the prednisone...but normally my abdomen is flat as a board.  the past 4 weeks it's been bloated, a little fattier/fleshier, also gets very rigid and just running my hands down my waist & sides HURTS! very tender, the flank area too.

my BP fluctuates. many times it's 90/60 and more often than usual it's been creeping up to the 130/70 area...that's the highest it's been. my pulse resting is normal (60 to 70) but when on prednisone it's a lot faster (resting 90-110) so that really is annoying!  i have an OTC diuretic for water weight gain from the steroids...never had an RX for lasix.  nope...no statins either.  however, my total cholesterol has been lowering!!! yeah yeah! went down significantly in the past 2 months! now 220!!! been taking CorOmega Fish Oil & i'de like to give that the credit.

oh yeah...no salt here! especially when on steroids. i never add table salt to anything. the only packaged food i eat are Cheez-its, as a snack when i'm starvin'! i eat very bland; yogurt, farina, spinach, egg whites, bakery fresh italian bread/bagels...i don't do so swell with eating (pain, diarrhea...)

thanks so much for everything. lots of doc appts next week so you'll be kept posted!

erin 


Active/Severe Rheumatory Arthritis. Crohns. AS. Chiari Malformation & Right Brain venous anomoly. Partial complex seizures. Emphysema. Rheumatic Lung & Heart. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg Q 4 days; Prednisone 20mg; Pentasa 4G daily; Imuran 50mg; Dilaudid 4mg; Diazepam 5mg; Avinza 60mg; Reglan; Antivert 25mg tid; LidoDerm; MiraLax & too many others.


Aldo
Regular Member


Date Joined Jan 2006
Total Posts : 289
   Posted 8/1/2006 2:30 PM (GMT -7)   

AHH....you so sweet, lol  :) You just aren't so sweet to your liver. Liver smiver......I'm worried bout them thar bile ducts.......Boy is this a conversation or what? My modem is going whacko on me....I have been trying to fix hit...

I got lots of info on ya now. You seem to have it together so far as being a human being....Ha ha ha. I just hope things will improve for you. Get ya some of dat Milk Thistle now! Takem care,

Rj


erin.K
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Date Joined Mar 2005
Total Posts : 3148
   Posted 8/1/2006 3:07 PM (GMT -7)   

yes'em...you gots it mistah'... 

Milk Thistle. will do. i once prescribed that to a HepC patient i was caring for (at home service). don't think she ever went on it though. eyes i'll have to tell my old employer to order up some Milk Thistle. he's very into supplements...i think he owns stock in LifeExtension. tongue  

what do you know about this stuff: my X-el-boss-o ordered for me:

                                                       LifeExtension

                                                    SUPER CURCUMIN

                                                    WITH BIOPERINE

and yes, the label looks EXACTLY like that thank you very much. :-) lol.  it contains tumeric (which is great in cooking & for an antiinflammatory). he thinks this is "the cure". bless his little heart for he tries to make it all better.  but i emailed em' back...the bottle says do not take with anti-cancer drugs. and some of the meds i take for RA are anti-neoplastics! it also says to do not take if you have biliary duct obstruction (oooh creepy) confused  guess this bottle is going back to him! but...it's a great cardiovascular support supplement so i read. maybe look into it?

**on my labs it is the "direct" biliruben count that's effected.

ugh...no Tylenol?????? eyes (and i say that as whiney as a 25 year old possibly can) see, i've been trying NOT to take as many morphines & dilaudids (bowel obstructions) so that means i use more Tylenol. @ the most 500mg 4times/day usually late evening.  think that's tipping me overboard?  my GI & rheummy started this consitant bloodwork monitoring when i started the Imuran.  he said if the bone marrow and liver is going to go...Imuran will be the one to do it.

i counted how many pills i swallowed yesterday: 35 total! yuck! the killer is the 16 mesalamine capsules plus 4 steroids and there ya have 20 already. poo!

yeah, i have to say...as far as being a human? not too shabby.

have a pleasant evening Rj.


Aldo
Regular Member


Date Joined Jan 2006
Total Posts : 289
   Posted 8/2/2006 8:31 AM (GMT -7)   

Well Kiddo smurf , what a pleasant surprise this moaning....BUT it breaks me ole heart to see how many medicines you/y'all take!!! I have been down a very crazy road with heart disease medications. Beta blockers come with fatigue, raise your blood glucose and prevent you from exercising sometimes, malaise and depression. ACE inhibitors cause edema and after taking them for three years, I suddenly developed the notorious cough and upper respiratory/throat problems. That really blew my mind (which would only take a tiny firecracker).

Statistics show that heart attack survivors live longer if they take ACE inhibitors. Well, they whipped up a new class of meds that do the same as ACE inhibitors called ARBs (Angiotension Receptor Blockers), but in a different way. I am trying to take an ARB called Diovan at this time. It sounds like a singer or something, lol. I am having the same side affects as with the ACE, except not nearly as severe.

Something is changing in my ole bod. I had bad reactions to both drugs in 2 types of  medicinally coated stents I have. One is for cancer, Paclitaxel (Taxus stents, gots 2 of them). The other coated drug is Sirolimus (Cypher, gots 2 of them). Gee, once they put these into you, that's it. You can't take them out....The Einstein ID doc told me that I was having a reaction to Paclitaxal. Said it wasn't uncommon. The meds go away after about a year. They prevent scar tissue and clots from forming.

I am really boring myself here, ha ha ha. I think that I am snoring....I could go on about a few more medicines, like statins. I have hypercholesterolemia, an inherited disorder. about 7 years ago, the doc called me and said in 19 years of practicing medicine, he had never seen anyone with such high numbers. My total C was 487, triglycerides were 2008. He started aggressive statin treatment that almost kilt me.....I can't take any kind of drug to lower my lipids. So, I have tried all the supplements. I am the best customer of S*wanson's vitamins, online shopping.

I will check out the supplement you mentioned....It sounds toxic...Ha ha ha. Your Boss is trying to knock you off!  When ya get time, go to that site and get the "Liver Essentials". BTW I hope all of you take your vitamins, and I mean mega doses of the non-toxic types. Stuff like zinc, magnesium, selenium, coq-10, B-12, folic acid, B complex, fish oil (w/o the mercury), vitamin C, careful with potassium, calcium. Some of these are toxic at high doses like potassium and magnesium. More might be...

Use olive oil only for fried foods. Stay away from the fast foods. Eat a Mediterranean type diet. Keep the cheap carbs down. No tater chips...Fresh fruits, vegetables fish and chicken. A steak ever now and then. Raw ALMONDS are great for you.

I know that y'all know this stuff. BUT you are just 25! If you guys eat right, and take your supplements, it will help fight any disease. You know, it cost a lot to really eat right. So we get a lot of processed food at the grocery store. Good orange juice cost around 3 bucks for 1/2 gallon. We try to keep our grocery bill down but we shouldn't. Look at the movie stars! Some are 50 and look 35....They have chefs that cook only the best food!

I really feel for you guys :-) . The medicines you take are so much more dangerous than the ones I take. 35 pills!!!!!!! That's the problem with RA, Lupus and other autoimmune diseases, is there are no good medicines without harmful side affects, or it seems that way to me.

Well Erin, the ole man is through preaching.....lol. Love and peace to all from an old hippie confused

Rj


erin.K
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Date Joined Mar 2005
Total Posts : 3148
   Posted 8/2/2006 5:08 PM (GMT -7)   

:-)  dear Rj,

you know what?...even though it's second nature for me to know all of that information & provide it to patients (when i was working)...it's awful nice to hear for my own good.  so thanks, for lookin' out for me.

i find it actually cheaper to eat healthier! i'm not a vegetarian (i will eat veal if it looks great enough @ restaurants, twice a year if that); but i'm a parimeter food aisle shopper. i have an odd thang with fish & spinach, (i suppose because i watched POPEYE everyday when little!) hah. my indulgence is CHEEZITS or a sorbet. (totally lost my appetite for red wine since May).

hey that was helplful...cardiac was & still is my weakest area of knowledge. so all of that was great.

i'm fortunate that i've had a lot of livin' in my first 21 years! God works in weird ways.  i played hard & worked harder.  traveled the globe, college, had my hay-day in NYC, met fantastic people & had great experiences.  the past 4 years have been...stagnant.

so at this point i'de really like to be taking care of other people & putting my education to good use; it'll come i'm sure.  maybe not right now, maybe not soon....but someday.

thanks Rj.


Active/Severe Rheumatory Arthritis. Crohns. AS. Chiari Malformation & Right Brain venous anomoly. Partial complex seizures. Emphysema. Rheumatic Lung & Heart. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg Q 4 days; Prednisone 20mg; Pentasa 4G daily; Imuran 50mg; Dilaudid 4mg; Diazepam 5mg; Avinza 60mg; Reglan; Antivert 25mg tid; LidoDerm; MiraLax & too many others.


CaMama
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Date Joined Mar 2005
Total Posts : 1884
   Posted 8/3/2006 9:31 PM (GMT -7)   

Hey Erin, RJ gave you lots of good advice. Taking a B complex is very good for you - and it is not toxic to your liver. However, if you do take vitamins, stay away from the A, K, D, and E's - they can be toxic as an unhealthy liver cannot process them properly. Take a look at this site http://www.liverdoctor.com/Section2/07_liverdysfunction.asp - it gives some good liver information. Of course, she's trying to sell books and such, but her site is still quite informative regardless.

I forgot about Milk Thistle, maybe I should go and get myself some.

Drink lots of water.

I am shocked myself that you are doing so well with the liver issues - I went down for the count rather quickly and it took me over a year to stabalize.

Stay away from as much medication (including vitamins) as you can. Motrin, Tylenol, and the likes are all going to make things worse.

**


 


erin.K
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Date Joined Mar 2005
Total Posts : 3148
   Posted 8/4/2006 9:24 AM (GMT -7)   

cool  hey thanks Camama {luvs my mama!}

thank heavens my liver was/is....was, a healthy one.  probably why i've tolerated such high doses of meds & so many drugs with no problems.  owe it to veggies, no meat, low-LOW fat, and rarely alcohol (saturday w/ me honey really).  so that's probably been a BIG allie going for me.

i got my mail just now...big envelop from my PCP.  eyes  let's open it. 


erin.K
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Date Joined Mar 2005
Total Posts : 3148
   Posted 8/4/2006 9:40 AM (GMT -7)   

:-)  ooh hoorah!  so nice to read "negative" news! NO GLUTEN ANTIBODY! yea. 

thank God...they drew a Celiac Disease lab for testing.   so 8.4  and that's good news! reads that @ 10.0 there starts to show antibodies.

this one had me sweatin'! tongue i live off of breads!  so the thought of changing what i eat was horrifying.

what a relief.  past labs had made them consider a celiac sprue, so that's why i was tested for celiac's.  yipeee!

boy...i should have this done every week along with going to the Gyno....i always have negative everythings!  so nice to have negatives!


Active/Severe Rheumatory Arthritis. Crohns. AS. Chiari Malformation & Right Brain venous anomoly. Partial complex seizures. Emphysema. Rheumatic Lung & Heart. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg Q 4 days; Prednisone 20mg; Pentasa 4G daily; Imuran 50mg; Dilaudid 4mg; Diazepam 5mg; Avinza 60mg; Reglan; Antivert 25mg tid; LidoDerm; MiraLax & too many others.


elcamino
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Date Joined Sep 2005
Total Posts : 1744
   Posted 8/4/2006 11:07 AM (GMT -7)   
Congrats on the good news Erin!

Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Aciphex, Ultracet, Zyrtec, Allavert-D, Zantac, Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan


erin.K
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Date Joined Mar 2005
Total Posts : 3148
   Posted 8/4/2006 12:27 PM (GMT -7)   
yeah right? at least something good came out of all this mess.
will be celebrating tonite with toasty Italian Bread w/ olive oil & herbs!
Active/Severe Rheumatory Arthritis. Crohns. AS. Chiari Malformation & Right Brain venous anomoly. Partial complex seizures. Emphysema. Rheumatic Lung & Heart. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg Q 4 days; Prednisone 20mg; Pentasa 4G daily; Imuran 50mg; Dilaudid 4mg; Diazepam 5mg; Avinza 60mg; Reglan; Antivert 25mg tid; LidoDerm; MiraLax & too many others.


CaMama
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Date Joined Mar 2005
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   Posted 8/4/2006 9:11 PM (GMT -7)   

That sounds yummy!

Glad you don't have celiacs!

***


 


missie1227
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Date Joined Nov 2005
Total Posts : 751
   Posted 8/15/2006 8:31 PM (GMT -7)   

good news erin with the celiac...i too was tested it was the TTG blood test they gave me which was neg, my mom had illiac sprue and man did she suffer with that one.....none of this and none of that to eat only meat fish chicken veggies and fruits no breads nearly of any kind!!!! no bran and ceareal, etc....i am glad for you!! and mee tooo!!! YAY!!!!

 

also----

i had cholestrol that was upwards of some 575 when my GP asked me if i wanted an ambulance now or later for i wasnt going to live much longer with these kinda numbers. so he put me on zocor, couldnt take it, tried simvastatin, and lipitor etc i had bloody noses and was sick form it all. now i read in the local health fod store about celadrin and salmon oil.

i took it for my Psa not for cholestrol, my numbers were last time down from 575 in 2000, to 375 three months ago which i thought was pretty good for me, but then after taking the celadrin i was rested and it was 211!!!!! WHAT i never been 211 before in my life!!

docs asked me which statin did i put you on as he flipped though the pages ( notebook file thati have now) and i told him i was on salmon oil celadrin he said well waht ever you are doiong dont stop it!!! so normal for me is probably 211 and i can be happy with that.

that is about the only thing that my life has turned around from though.

had to get off the cymbalta b/c it gave me hives although it wroked well for my FMS.

am trying more homopathic stuff now erin!!

when i was on soma for muscle spasms, i had the stink taht doesnt wash off so i know what you mran when you say your bod has an odor from the meds. it  is your bod's way of  saying stop please dont take any more of those meds taht are doing this to you.

as soon as i went of fth soma which i had WD's from by the way, i stopped stinking and wne t back to my normal body odor whic h is none really.

so please if you can cut back on some of those and try more natural stuff !!! erin we want to make sure you are still around!! the liver thing is not good so this means you can not have ANY BOOZE at all. booxe with tylenol = skull

tylenol is max allowable 4 grams per day which translates to 6 500 mg a day but that is on the high side so try to keep it down to 1000-2000 mg a day max.

this stuff bulids up in your body over time if you are taking this much keep that in mind. i am down to about 650 mg a day on norco 10-325.

even so with thati am not happy.

right now i am fighting a bd sinus infection from back up gerd and nearly choking to death at night i suppose this means i will have to cut down on my food intake sincee my stomach is slow moving and so acid for me a problem. now on AX omnicef

i never heard of it anyone ever take it? already i got the hershey squirts from it after one day.....i got 8 more days to go on  it and taking acidpholis pearls to help my intestines handle this, i dont was a rule do well with AX....take care cookie...you be careful and no BOOZING AT ALL!!!!!!!!!!!!!!!not even on elittle drinky erin this can put your liver into failure and there is a long list of peeps looking for livers out there!!!! NO BOOZE OR I WILL COME OVER THERE AND BY GOSH SPANK YOU



9-02 crash w/ C-5-6-7 anterior/posterior fusion in neck w/11 screws and 4 metal plates. multilevel HNP at T & L section. FMS, PA in dec 05. on SSDI after 2.5 yr wait. sezuires, CTS, IBS ( C & D). norco, xanax, predisone shots. i dont know what else is wrong with me and neither does anyone else!!!

Post Edited (missie1227) : 8/15/2006 9:39:38 PM (GMT-6)

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