so i'm content. i made my motives clear that all i want is to be able to work at least 2 or 3 days a week, that's it...no cartwheels or fancy bells & whistles.
so wish me luck tomorrow in tracking down a DHL truck to set up shipment of my blood vials! ewwww. lol.
goodnight all...Erin's retiring for now...i'm beat!
Erin, so glad you have a good GI doctor. Glad to hear that you know exactly what you want (working 2-3 days a week). I'm sure that is a realistic goal--you will get there. Good news about your liver as well.
You know...I "feel" so much more at ease now. Every time I see him & get a sense of "everything is going to work out eventually".
Deejane: I see that now you take Remicade. Why aren't you on Imuran? I thought Imuran was supposed to be continued while on Remicade? Can you tell me a bit more about how your sessions go? Like can you do it on weekends? How do you feel right after the infusion?
The GI doc brought that up again as well...with me still having to take the Imuran @ therapeutic levels while on Remicade.
Thanks "El"! Yeah, the one thing I learned in nursing school that I apply to my life as well...is to set attainable, realistic goals! LOL
It's a very nice feeling to completely TRUST someone? And I don't trust easily (easy to figure out why!)...so to be in the conditon I'm in now & trust someone like this is really important and I'm glad it happened. Was feeling way too vulnerable w/ just the rheumatologist not really helping me. And even the GI agreed with me...when dealing with a younger person it's really unfamiliar territory when it comes to AI and Rheumatic diseases for most rheummies.
So here am today, August 10th 2006...with a ton of confidence!
Oh, got the DHL truck with no problemo! The lady on the phone was super helpful, it was easy to set up pick-up. So it goes out Monday the 14th around 12noon after I get the blood drawn.