What the heck is Myositis?

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sharmur
New Member


Date Joined Aug 2006
Total Posts : 8
   Posted 8/11/2006 3:49 PM (GMT -7)   
I just received an invoice from Physical Therapy and the diagnosis is : MYOSITIS. What the heck is this?
 
I have osteoarthritis and possibly fibromyalgia and am going to PT to get some help with with range of motion and to get my muscles going. This is yet another new diagnosis to add to the pile or don't they have a dx code for osteoarthritis? Anybody know about this one?
 
You would not believe the long list of stuff I have in diagnosis, I just give up.

DX: Osteoarthritis, C-spine; multi-level spondylosis, foraminal stenosis by osteophytes C4-C5. L-spine; The only good part is L1-2 which are normal. "Multiple Pain Syndrome". Quickly lost respect for most doctors when they did not respect me. My primary care physician is a saint.


yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 8/11/2006 4:03 PM (GMT -7)   
hi sharmur and welcome to HW! Myositis is inflammation of muscle tissue, especially the muscles that control movement of the body. There are several types of myositis, such as one that also causes a rash (dermatomyositis) and one that occurs throughout the body (polymyositis).

Symptoms of myositis include muscle pain and weakness. Treatment includes anti-inflammatory and corticosteroid medications, rest, and physical therapy.

hope that shed a little light on the subject for you ~*yalinda

sharmur
New Member


Date Joined Aug 2006
Total Posts : 8
   Posted 8/11/2006 4:40 PM (GMT -7)   

Thanks for the explanation. Do you know how they diagnose this one?

Hmmm, well this is a new one on me. I am going for PT for lumbar and cervical spine degeneration hopefully to get some range of motion going but this Myositis is new to me. Guess I just add it to the list along with the Multiple Pain Syndrome my gp has diagnosed me with as well as the OA. I wonder if the neurologist and my gp have talked or if the physical therapy place has just picked this out of the list of possibles. Well, I can ask them next week.

By the way anybody try pt for osteoarthritis? It's really causing me some pain and it's not supposed to. Only doing some stretching and posture correction. I am going for 45 minutes at a time have been twice and I am just wiped out after the sessions. Anybody experience improvement?

 

 


DX: Osteoarthritis, C-spine; multi-level spondylosis, foraminal stenosis by osteophytes C4-C5. L-spine; The only good part is L1-2 which are normal. "Multiple Pain Syndrome". Quickly lost respect for most doctors when they did not respect me. My primary care physician is a saint.


Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 8/11/2006 4:48 PM (GMT -7)   
Hey there... try going to this website, and see if this helps answer your questions any... PT always wipes me out too.. and I don't have OA... I have PA... I know it's supposed to help, but yeah... I almost feel worse afterward... Good luck to you and hang in there... Duck
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea

sharmur
New Member


Date Joined Aug 2006
Total Posts : 8
   Posted 8/11/2006 5:05 PM (GMT -7)   

Well, I just checked out Myositis and I have not been tested for this nor has a physician diagnosed me with this, not with my knowledge anyway. The neurologist that did the EMG (bilateral all extemeties) said the outcome was normal. I have not had a muscle biopsy and my blood work is all normal I've had: sed rate, a UA, HBV, HCV, Antineutrophil (ANCA), Beta-2 Glycoprotein, Anticaridiolipid Ab, Complement C4, C3, Lupus, HLA B 27, Lyme, CBC, Antinuclear Antibodies, RA Factor, Comp Metabolic Panel, Serum TSH. I have had MRI C-spine, MRI L-spine, MRI-Brain (just for good measure I think or the neuro wanted to make sure I had one). I think that is all the tests I have had.

Maybe the physical therapy place has just made a coding mistake. Which scares me because I don't have a dx for this from a physician so I hope that BCBS doesn't refuse payment for the PT based on possible wrong coding that is an uphill battle trying to get things fixed with them.

 

Yeah, PT is a drain and I am not doing that much just stretching but my neck is stiff, my low back hurts and everything else is sore.

 

 

 

 


DX: Osteoarthritis, C-spine; multi-level spondylosis, foraminal stenosis by osteophytes C4-C5. L-spine; The only good part is L1-2 which are normal. "Multiple Pain Syndrome". Quickly lost respect for most doctors when they did not respect me. My primary care physician is a saint.


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 8/12/2006 10:57 AM (GMT -7)   
hi sharmur,
is the PT place doing any TENS therapy? message? weight lifting/stretching/muscle work? because many times for PT they but myositis as a DX code so treatments are covered. a chiropractor or physical therapist can put myositis in the DX box when sending in for reimbursement through the ins. co. typically for people with fibromyalgia, myositis & fibro can switch-a-roo on the paperwork w/ PT. if there are 2 DX more treatments can be covered.
and most times, if you have OA or Fibro or anything really...one os bound to have sore or inflammed muscles at one time or another.
it's nothing to be worried about, especially if no tests were performed specific for myositis that is of serious nature. myositis is normally benign and the name is thrown around a lot...just like "fatigue". but my thoughts are that they are just using it as a "general" term in conjunction with your OA for coverage. but it woudn't hurt to inquire about it. you do have the right to know.
the best to you.
erin
Active/Severe Rheumatory Arthritis. Crohns. AS. Chiari Malformation & Right Brain venous anomoly. Partial complex seizures. Emphysema. Rheumatic Lung & Heart. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg Q 4 days; Prednisone 20mg; Pentasa 4G daily; Imuran 50mg; Dilaudid 4mg; Diazepam 5mg; Avinza 60mg; Reglan; Antivert 25mg tid; LidoDerm; MiraLax & too many others.


razzle51
Veteran Member


Date Joined Jan 2005
Total Posts : 763
   Posted 8/12/2006 11:29 AM (GMT -7)   
Well who diax you with it ? I would have some testing done first not just take somebodys word for it especially someone not a dr.
Syringomyelia T4-T10
Chiari Malformation
Decompression Surgery 1999
 
We are normal people, trying to live normal lives,
with bodies that have forgotten what normal is
 
 
"Remember I'm pullin' for ya, we're all in this together" Red Green


missie1227
Veteran Member


Date Joined Nov 2005
Total Posts : 751
   Posted 8/15/2006 8:06 PM (GMT -7)   

hi after being away for a sabatticle...only kidding...trying to fight medicare and my former united health care who USED to be my primary which is now my secondary, blah blah blah.....

anyways...i tried the pt thing and it made me feel worse not better, so after 6 weeks of it i gave up, i mean who can afford 30 dollars x '3 week =90 a week anyways?

not meee.

that pt was good though. he tried really hard he did. in fact i thought he knew more about my condition than my reg docs knew.

he was the one who told me that my lumbar was curving to the convex left and he told me he thought i had either AS or Psa..from looking at my xrays! he has been a PT for 25-30 yrs and worked with a dozen or more of the patients that the doc who operated on me, and so he knew how bad of a doc she was, he told me this superior told him not to take any more of dr bl--d's patients b/c they were not responding well to PT when they should have been. it was the technique of the doc that was why and they didnt want to be  charged with any wrong doing by the lawyers who sued my old doc.

the up side to all this was i found out so far my old NS who did this to  me is now not working anywhere in fl. which is good and means she cant hurt anyone else.

now i was on cymbalta, which did lots to help me but i got hives all over my body from it and had to stop taking it,,,,so now i am back on the  zoloft.

am sleeping way to much and depressed as usual. but at least i got my klid back home from overseas where he was in harms way.

so now i sit and wait. hoping to heck that since i got my ssdi and applied for a student loans forgiveness taht it will go through.

i cant work and i cant pay back all that money i borrowed a long time ago. anyone have any stories to tell on student loans and forgivness for being on ssdi?

 


9-02 crash w/ C-5-6-7 anterior/posterior fusion in neck w/11 screws and 4 metal plates. multilevel HNP at T & L section. FMS, PA in dec 05. on SSDI after 2.5 yr wait. sezuires, CTS, IBS ( C & D). norco, xanax, predisone shots. i dont know what else is wrong with me and neither does anyone else!!!


yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 8/16/2006 8:49 PM (GMT -7)   
hi missie ~ i vaguelly remember a few of my clients at work trying to get their student loans forgiven. here in our town there is an independent living center. they are across the nation i think in every state. they work with people who have all types of disabilities. anyway besides support groups and activities our local location has a legal representative that works with clients on ssdi and bankruptsy including studnet loans and i think it is a free service. if you cant find a ILC near you perhaps neighborhood legal services which is income based can offer you assistance if things dont go through? hope that helps a bit.

~*yalinda
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