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erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 8/20/2006 2:20 PM (GMT -7)   
ok, i was mildly frootlooped for a few days...but i owe that to starvation & lack of sleep. lol
doing better.  tire easily but what the heck? right?
so i went to the ER monday after NOT having a BM for 9 days & increasing ab pain, fatigue & fever.  5 hours of hell waiting to get into the ER, ugh, and @ 12am was admitted.
CT scan & XRAYS showed i was FOS  (let your imagination figure that funny one out!)
so with a small bowel obstruction i served 4 days inpatient.
no solids or liquids the 1st 3 days!  i think that made me bonkers!  no food + no sleep + no liquids=erin's a zombie.
loaded up w/ steroids IV / antibiotics/ pain med shots to the stomach (which worked quite well).  had to tackle fevers, enemas, and being a pin cushion....but what can ya do.  the blockage is slowly getting better.
very happy to be home, battling shakes & tremors & fevers still.  fatigue is bad.
 
oh, the Promethius test showed i can up my Imuran! 75mg i can do now, i wasn't at therapeutic levels.
my GI doc and PCP were saints in the hospital.
that's about it. Ducky covered it all (thanks babe!)  and thank you everybody for the well wishes.
i remember how to spell correctly (thank God) i was seriously stupid for a few days! forget where all my crap was...how to get around my house, shower, dress....i guess very disoriented.
so here's to better days.
i'll be reading posts & catching up.
again, (((((big hugs)))))) to all & thanks for all the support.
erin smurf
Active/Severe Rheumatory Arthritis. Crohns. AS. Chiari Malformation & Right Brain venous anomoly. Partial complex seizures. Emphysema. Rheumatic Lung & Heart. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg Q 4 days; Prednisone 20mg; Pentasa 4G daily; Imuran 50mg; Dilaudid 4mg; Diazepam 5mg; Avinza 60mg; Reglan; Antivert 25mg tid; LidoDerm; MiraLax & too many others.


yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 8/20/2006 2:56 PM (GMT -7)   
welcome back!!!!!!!!!!!!!!   tongue tongue tongue    missed you! yeah take it easy and rest up ~*yalinda

Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 8/20/2006 3:16 PM (GMT -7)   
Take it easy girlie! Don't over-do it... love you
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea

curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 8/20/2006 6:41 PM (GMT -7)   
that goes for me as well.Glade to hear from........................................
Thanks
Curley......
a.k.a.Mela...........


missie1227
Veteran Member


Date Joined Nov 2005
Total Posts : 751
   Posted 8/20/2006 11:15 PM (GMT -7)   

yah erin made it back ok!!!! yeah yeah yeah now then girl....when you are up to eating again, make sure it is prunes and all bran!!!!!!!!

 

gosh that musta been uncomfortble....take it easy!! we miss you


9-02 crash w/ C-5-6-7 anterior/posterior fusion in neck w/11 screws and 4 metal plates. multilevel HNP at T & L section. FMS, PA in dec 05. on SSDI after 2.5 yr wait. sezuires, CTS, IBS ( C & D). norco, xanax, predisone shots. i dont know what else is wrong with me and neither does anyone else!!!


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 8/21/2006 9:24 AM (GMT -7)   
ick...PRUNES & BRAN??!!! mad no way!!! LOL.  ok, still on yogurt & eggs.  anything else is pretty painful to digest.
thanx so much for the kind homecoming party. yeah everyday is getting easier/a little better/ little stronger.
still have a hard, basketball like tummy, some nausea & WIPED OUT!
 
was @ my honey's for the weekend, that did a world of good.  the sooner back to normal scheduling the better. and today pretty much feels like any other Monday.
 
oh! i forget to put in my post that i blew chunks on my nurse! tongue
she didn't believe me that somethin' was wrong...well, i sure changed her mind when i chucked. (tee hee hee) ah, sweet revenge. tongue
 
recovery is hard man! my balance is whacky.
and 2 weeks without the Humira injections (i take em every week normally) left me today unable to hold just about any small object & forget about sleep last nite.
ankles & hands are shot, useless really.  i hope i get my shipment this week...this stinks.
 
this was scarey too.  i was afraid of a major setback but i feel like i've just been in a bad flare....so i'm hoping for the next 2 weeks to be promising & and working hard on getting my stamina (the little i clung on to) back.
 
so yeah...definitely want to avoid this from ever happening AGAIN. it was torture.
here's to an OK day. :-)
Active/Severe Rheumatory Arthritis. Crohns. AS. Chiari Malformation & Right Brain venous anomoly. Partial complex seizures. Emphysema. Rheumatic Lung & Heart. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg Q 4 days; Prednisone 20mg; Pentasa 4G daily; Imuran 50mg; Dilaudid 4mg; Diazepam 5mg; Avinza 60mg; Reglan; Antivert 25mg tid; LidoDerm; MiraLax & too many others.


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 8/22/2006 2:31 AM (GMT -7)   

redface  boy am i gettin' the crap end of the stick! lol.  not a nice day AT ALL!!!! mad

wasn't supposed to take any prednisone today but the joints were just too bad. so took 40mg. no sleep. blah.

and Lord have mercy what a difference in my joints without having had my injections for 3 weeks! left hand is deformed! thumb is tucked almost all the way in...and my 2 big toes and that big joint around them is killer, plus ankles & knees & shoulders & elbows! holey toledo.  the Imuran & pred aren't cuttin it.

MEDICAID now covers my Humira supply...but Abbot oh so nicely forgot to inform me of that and also that i'm no longer recieving my shipments. so now i have to get it like any other RX...just bring the script to the pharmacy.

rheummy is mailing it to me. so i pray i get it today.

stuff like this scares me, so much terrible pain...and severe/acute to boot! sad, all the dilaudid i took, prednisone, tylenol and it barely helped it. (not to mention the narcotics aren't helping the obstruction neither.) can't win.

so all today i just hung like a Koala. too rough o' shape for anything.

not liking this!!!!  may today be better. i hope.

have like 5 bags of ice all over my legs...should just go in the tub. tongue

spoke to a friend of mine today and he said it in a nutshell, "exactly how much are you suppose to take of this?"  really goes to show how serious and severe this gets and could get.

wishing all a happy day. thanks for listening.

erin


Active/Severe Rheumatory Arthritis. Crohns. AS. Chiari Malformation & Right Brain venous anomoly. Partial complex seizures. Emphysema. Rheumatic Lung & Heart. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg Q 4 days; Prednisone 20mg; Pentasa 4G daily; Imuran 50mg; Dilaudid 4mg; Diazepam 5mg; Avinza 60mg; Reglan; Antivert 25mg tid; LidoDerm; MiraLax & too many others.


missie1227
Veteran Member


Date Joined Nov 2005
Total Posts : 751
   Posted 8/22/2006 6:35 AM (GMT -7)   

sad   sad gosh poor erin- i am praying for a breeak for you wit hall this goings on...how about a nice movie to try to take your mind off all this afor  a few hours.... sad sad

i fee lso bad for you sweetie.....i wish i could do something for ya,,,,,prunes and all bran woirks real good though


9-02 crash w/ C-5-6-7 anterior/posterior fusion in neck w/11 screws and 4 metal plates. multilevel HNP at T & L section. FMS, PA in dec 05. on SSDI after 2.5 yr wait. sezuires, CTS, IBS ( C & D). norco, xanax, predisone shots. i dont know what else is wrong with me and neither does anyone else!!!


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 8/22/2006 8:43 AM (GMT -7)   

:-)  awe thanx missie.  you'll be happy to know i did have raisin bran last nite. tongue

so far not so bad today.  no sleep, a terrific bit of pain still. packing legs with ice now.   i think i'll do that...definitely rent a DVD tonite.

this too shall pass...


yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 8/22/2006 4:01 PM (GMT -7)   
erin keeping you in my prayers, i would go with a comedy if i were you!

oh it is one thing to eat the bran it is another to ... shall we say dispose of it... hope u r doing ok in that dept too.

has anyone heard from camama? i dont think i have read any posts from her lately? camama if ur out there i hope u r ok!

take care everyone yalinda

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 8/22/2006 4:24 PM (GMT -7)   
yeah where's camama?
erin's hangin' in there. it's slow...but steady. had rice today! ooooh. some wicked abdominal pains, no sleep and tremendous joint pain (enough to make ya cry) but looking forward to sleep tonite, hope i get it!
oh and as for the film, i got "BRICK" i think it's a IndieFlick...up my alley. don't know if i'll make it throug tonite...but watched "Raising Helen" and that was cute.
ok...i'm off.
Active/Severe Rheumatory Arthritis. Crohns. AS. Chiari Malformation & Right Brain venous anomoly. Partial complex seizures. Emphysema. Rheumatic Lung & Heart. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg Q 4 days; Prednisone 20mg; Pentasa 4G daily; Imuran 50mg; Dilaudid 4mg; Diazepam 5mg; Avinza 60mg; Reglan; Antivert 25mg tid; LidoDerm; MiraLax & too many others.


starrnr
Veteran Member


Date Joined Dec 2005
Total Posts : 1782
   Posted 8/26/2006 7:55 AM (GMT -7)   
Erin, how are you doing now? I know you had me worried sick before you finally went to the ER. Are things getting better for you now? Do they know what caused your obstruction? Any plans to investigate further once you're all better? I'm sort of going thru what you went thru, but not as bad. I'm trying desperately to avoid an ER trip!!! I so under the "FOS" comment --

Did you finally get your Humira? I have my Remicade infusion on Monday and I'm so ready for it -- everything is wacky; it's worn off!

Hope you're doing much better now. Keeping you in my thoughts (you really had me worried).

Sherree
"My "Trifecta" - CD, AS & RA...

Co-Moderator Crohn's Forum


Momf3boyz62
Regular Member


Date Joined Aug 2006
Total Posts : 21
   Posted 8/26/2006 10:13 AM (GMT -7)   
Hi Erin,
Im there with you on the RA pain in the hands, legs and no sleep cause of pred. and sometimes it not working, plus the turning in of the fingers, gosh its so annoying!
Youre in my thoughts.
Cheryl :-)

Diag. with RA/Felty's Syndrome January 99.
Previous meds-Methotrexate,(killed my immune system for 2 years) Enbrel,(didnt work) Humira, Ibuprofen, Arava,(allergic to?) Prednisone, Folic Acid.
Now only on Prednisone because of an allergic reaction they can't figure out, so Im heading to U.of I hospitals and clinics in Sept. for testing, new meds!? Who knows, who cares! Just want off steroids so I can lose weight.


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 8/28/2006 9:44 AM (GMT -7)   

Thanks guys!

Sherree, thank you. Yeah, I was end to end FOS. tongue Pretty awful.

But 10 out of the hospital & I think I'm making leaps n' bounds considering what I was like & what bad shape I was in.

Keeping to soft liquid diet for now.

Waitin' still for my Humira RX to show up. eyes

Been studying for an exam I have to take. (continuing in my nursing degree...or trying that is) It's hard to keep up, but granted I'm still not half way there in my recovery, so as the weeks go by I'm hoping everything will be alright. I remain terribly optimistic!

Hey Cheryl...had a few rough nites the past few days too. Joints get so bad it feels as if someone took a bat to them.  Lost a few nites sleep too, that's what's the worst...horrid. Not nice to suffer.  You hang in there too!

Peace,

Erin :-)           HERE'S TO BETTER DAYS


Active/Severe Rheumatory Arthritis. Crohns. AS. Chiari Malformation & Right Brain venous anomoly. Partial complex seizures. Emphysema. Rheumatic Lung & Heart. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg Q 4 days; Prednisone 20mg; Pentasa 4G daily; Imuran 50mg; Dilaudid 4mg; Diazepam 5mg; Avinza 60mg; Reglan; Antivert 25mg tid; LidoDerm; MiraLax & too many others.

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