Anyone have Sjorgen's?

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Regular Member

Date Joined Jul 2006
Total Posts : 38
   Posted 8/22/2006 7:02 PM (GMT -6)   
I'm usually dealing with Crohn's but in the last little while I've progressively dried out -- I hardly have any saliva anymore, my eyes itch, the inside of my nose is dry, I ache. I haven't been officially officially diagnosed but I fear it's Sjogren's. I was wondering if any members had experience with this and especially what they do about an extremely dry mouth and throat. Is anything effective?

Veteran Member

Date Joined Mar 2005
Total Posts : 3148
   Posted 8/24/2006 10:28 AM (GMT -6)   
hi onPEI,
i believe Curley deals with Sjogrens Syndrome, i'm sure once she sees this she might be able to throw you some good tips.
since Sjogrens roots are systemic, the treatment is really to help the symptoms w/ lubricants, lozengers, eye drops, etc... be sure to bring up your reservations to your doc about this.
one tip i can give is to avoid any mouth agent that contains will only dry out the mucus membranes further. LUDEN'S cough drops are great, they have no medicine in them & just fruity enough to get the salivary glands going without being overpowering.
take good care,
Active/Severe Rheumatory Arthritis. Crohns. AS. Chiari Malformation & Right Brain venous anomoly. Partial complex seizures. Emphysema. Rheumatic Lung & Heart. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg Q 4 days; Prednisone 20mg; Pentasa 4G daily; Imuran 50mg; Dilaudid 4mg; Diazepam 5mg; Avinza 60mg; Reglan; Antivert 25mg tid; LidoDerm; MiraLax & too many others.

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