I've Solved The Mystery!!

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RandomDave
Regular Member


Date Joined May 2006
Total Posts : 164
   Posted 8/25/2006 2:30 AM (GMT -7)   
K, you know how rheumatologists are, for the most part, dumbasses? Well, after like 8 years of trying a bunch of crap that doesn't work, my rheumatologist finally got me on stuff that is working awesome for me. So, at my appointment last week, I thanked her for basically saving my life for the time being and told her how awesome I've been feeling. Presto-Changeo, now she takes every little thing I say super seriously. I mention that I'm worried that my fingers are becoming disfigured, she sets me up with some free place to take molds of my hands and make splints. She didn't even look at my hands! When before she probably would've said, no they aren't. Like I don't know my own fingers. I've only been picking my nose with them for my whole life!! She goes through all my bloodwork and explains every little detail I ask her about. And, this is the best part, she acts like she enjoys it!!!!!!!!!!!!!!! Then...and this is the other best part...she tells me to start backing off on the sulfasalazine, but jack it back up if I feel a flare coming on because I know my own body BETTER THAN HER!!!! Yeah, she totally said that.

I guess my only point is that everyone should go to their doctor and lie and tell them they feel awesome and what a great job their doctor is doing for them. Guess they are more likely to believe they are amazing then notsomuch. then at your next appointment say you're flaring again and need to try something else. Because you already told them how great they are, they will take you seriously maybe.

*Intended for smiles and not as actual medical advice. I am not a doctor, nor do I play one on television.
-SLE, RA & PA....it's all about the acronyms!

-Current meds: Plaquenil, Sulfasalazine, and a little NSAID du jour for flavouring. Mmmmm NSAIDs.


yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 8/25/2006 4:42 AM (GMT -7)   
dave~ knowing as little as i do about you i am certain your rhuemy finally wasnt suffering from pms and noted how u r mr personality. i have been missing your humor online great to hear from u again!..... oh and if that first joint on your finger u use to pick ur nose with is crocked, it isnt from RA but OA as i was told by my doc that RA doesnt attack that first nail joint! so it is certain OA joint damage from all the years of ur usage and or abuse? and i will leave it at that. hehehehe ~*yalinda

elcamino
Veteran Member


Date Joined Sep 2005
Total Posts : 1744
   Posted 8/25/2006 5:26 AM (GMT -7)   

Dave!  I have missed you.  You, unfortunately, have a point.  Doctors are people too, and they are more likely to succumb to sucking up, than being told they are ineffective and incompetent.  I'll have to keep that in mind when I see my rheumy next.

Is your finger hooked permanently?  Sounds like OA to me as well--send a picture and I'll tell my 4-year-old daughters this is what happens if you consistently pick your nose :)

Glad to see you back,
Elcamino
Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Aciphex, Ultracet, Zyrtec, Allavert-D, Zantac, Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan


yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 8/25/2006 3:44 PM (GMT -7)   
hehehe

hey elcamino you have twins? wow that is cool~! identical or fraternal?

RandomDave
Regular Member


Date Joined May 2006
Total Posts : 164
   Posted 8/25/2006 8:30 PM (GMT -7)   
You know I have no idea what it is. I don't think I have OA, just rheumatoid and psoriatic. The disfigurement is actually pretty minor thus far. if I stick my left index finger straight out, the end of it doesn't go straight and kinda points at some kinda angle toward the floor. My finger on the other side of the one i flip people off with kind of does the opposite and points up at the end. I forgot to mention that to her. Mostly, I just found the whole thing fascinating. Her whole everything changed. I guess they hear so many people talking about their symptoms and how they're aren't getting relief they just can't take anything seriously anymore, then when you tell them they helped you, they're like "wow" 'cause if i say good things this time, then I can't be just miscellaneously complaining all the other times. "twas fun anywho. Thanks for missing me, I've been around reading, just haven't had much to add to the conversation lately.
-SLE, RA & PA....it's all about the acronyms!

-Current meds: Plaquenil, Sulfasalazine, and a little NSAID du jour for flavouring. Mmmmm NSAIDs.


elcamino
Veteran Member


Date Joined Sep 2005
Total Posts : 1744
   Posted 8/26/2006 4:35 AM (GMT -7)   
Dave, if you notice the deformities getting worse with your fingers, you might mention it to your rheumy again. I would think the drugs you are on would prevent anymore damage from the RA, but perhaps they have stopped working?

Yalinda, my girls are fraternal. One has outrageously curly hair (like her daddy), and the other has perfectly straight hair (like me). Curly is a bit taller than her sister as well. They are fun. We took them to see fireworks last night at the local baseball stadium. They slept until after 7am this morning-- a record for them.

Elcamino
Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Aciphex, Ultracet, Zyrtec, Allavert-D, Zantac, Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 8/26/2006 6:52 AM (GMT -7)   
Dave, I had to jump in here because I saw your post - we have missed you on the lupus forum!!!! I like your approach with your doctor - I definitely think you are on to something.
Diagnosis:  UCTD (probably lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain;

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

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yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 8/26/2006 12:55 PM (GMT -7)   
el, they sound beautiful and i am certain keep you going x 2!

RandomDave
Regular Member


Date Joined May 2006
Total Posts : 164
   Posted 8/28/2006 1:57 PM (GMT -7)   
You know el, I never really cared about the deformities before. They really are quite minor, and I can still cross my fingers hoping they stay that way. I guess they seemed about halfway down a list of things that bothered me about my body and how I was feeling. So, really it's a good thing that I'm becoming concerned about them I think. Hopefully it means the other stuff that was irritating me has subsided. If this medication ever stops working I think I'll just pack myself up and send myself off to the funny farm. I know there's probably a long road ahead of me, but it's SO nice to have just a bit of a break on the trail.

Hippimom: Still reading the lupus forum too, just not a lot to add to the discussion there lately. Makes me feel kinda guilty to be feeling so good when so many are having such a hard time.
-SLE, RA & PA....it's all about the acronyms!

-Current meds: Plaquenil, Sulfasalazine, and a little NSAID du jour for flavouring. Mmmmm NSAIDs.

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