Post Edited (Marius123) : 8/26/2006 5:22:02 PM (GMT-6)
Post Edited (Marius123) : 8/27/2006 5:40:50 AM (GMT-6)
Thank you violets.I'm very happy that you finaly has found out the cause of your problems.What tests did they make you ?
It's a stright on goal shot..this about lyme, but like you said I do not think it is exactly lyme in me;(
The reasons that I think that I do not have lyme are that I haven't been bitten by anything unusual as I remember, I haven't had the EM classical lyme rash, and the most strong characteristic is that I have no neurological symptoms, not even a minor. Like I see the neurological symptoms are with priority in lyme. However, I SHALL DO the test just to ensure. I'll post feedback when it's done. I'm planning to talk about antibiotics approach after testing for lyme and with no metter of it is positive or negative, but after 2 more months and my fever not yet resolved.
I have to say in addition to you, that my health problems all started after kissing my GF's herpeses with a an open wound on my lip (sully stupid;((( ). Immediately after, I had 2 weeks bout of mouth ulcers, high fever and swollen lymphs. Months later I was discovered to have bacterial infection in the prostate (prostatitis), penis rash and then developed transitional rash similar to pityriasis rosea, which has failed to be diagnosed unanimously. And all this happened as a consequence. It is may be just a good concentration of trigger *environmental* factors bringing up to my condition.
I spoke with a friend GI physician yesterday. We spoke about my problems hour and a half.;))) His opinion is that I realy have chronic reactive arthritis/reiter's syndrome which had gone worst last months because of gut dysbacteriosis caused by my garlic strong overdosing. He told me to take probiotics as much as I can. This is what I do, but the condition dosen't get better. Not even a bit. Only the GI issue resolved. Everything else is persistent. Doesen't move even a bit;(( In one word: I was returned back as healthy once again, even was returned by friend of mine;))) Well, I'm getting to worry about my eyes, that I may develop some eyes damage, because of severe problems time to time. He told me to visit ophtamologist to prescripe me steroid drops or somethink like that. This might interest you: I spoke with him about the viruses as a possible cause. He told me that if a virus like CMV,EVB,HHV is causing my problems this is only because of lowered / or disbalanced immune system. He asked me about HIV, I told him - negative. And he also told me that if realy a virus is the cause there is no medecine which can do the things better. Only my immune system is the resposible about that. I told him about your Valtrex issues. His opinion is that this is not effective. He told me that Valtrex and other medications of the group are 1) not fully efffective against viruses 2) only effective when the virus is dominating, spreaded all over the body. The medicament not completely inhibits the virus but may come into help to the immune system in stressfull moments. I also asked him about any examinations which I could make to determine an active virus infection. He told me that only the PCR method is reliable. The common antibody titter tests are 90% non-demonstrative for active not acute but chronic infection. For example the chronic hepatitis C infections is being masured by liver biopsy and DNA scan for the virus, the antibody titer is always elevated and this does not mean anything;(. Well since I do not know PCR tests for various virus definitions near my area to be made I should try a different approach. Violets, what do you know about the effect of Valtrex on the viruses, and which viruses ? I told my friend for my methotrexate test proposal by my rheumy. He told me that a low dose of MTX is the only test that for 4 months may determine with high realibility whether my problems are infectious of clearly immunological. If the first I should experience significant worsening after the medication discontinuation, else I should experience significant improvement or even may be a cure;) That was very hopefull. I liked that how it sounded;) However all these "fairy-tales" are usually called "speculations" by the doctors. The reumatical diseases are well known as with most blurred prognosis.
Post Edited (Marius123) : 8/28/2006 9:50:41 AM (GMT-6)
Ducky, Hi, I'm Judy. I just read that you have psoriatic arthritis. I have it too, along with autoimmune hepatitis, and diabetes ( steriod induced, prednisone) I also noticed that you were on Embrel. I was just put on Humira. I would like to communicate with you and wondered if there are many on the board that havae PA.
I am very new as you can probably tell. I hope to hear from you.