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kimbernascarfan20
New Member


Date Joined Aug 2006
Total Posts : 5
   Posted 8/31/2006 4:30 PM (GMT -7)   
:-)  HI everyone,I am new here.My name is kimber. I am 38 years old, married and I have a 13 year old son who i love  more than anything in this world. Don't most of us feel like that about our children and if some of us out there doesn't we should be asking ourselves what is wrong with me?? Anyway I was diagnoised with RH about 9 years ago.For me, i found out by accident.I was in a very bad car accident and they found out that I had it while i was in the hosiptal.I was on medication for a few years then i stopped taking medicine because i was really feeling better.And i didnt want to have to take medication all the time so I decided to try to live with the pain.But at that time my RH wasnt that bad. I experienced alot of pain from the injurys i sustanined from the wreck. I was doing really good until a few months ago. I have pain 24/7  most of the time.one day its my right leg/foot the next day its the other foot. also my hip and wrists hurt .And i have morning stiffness EVERY morning. And every time i sit down in a chair for a few minutes and then get up the pain sometimes is so bad i want to cry. I am waiting on my medical records from the hosiptal  so i can give them to my regular doctor so  she can refer me to a reuhmotoligst. sorry i am the best speller as you can see. Well i came on here to find some new friends. I dont know anybody else who has Rh and as you know people  who dont have arthrtis have no idea how you feel. I do exercise about 3 times a day and  as for now i take aleive(did i spell that right.I have to honestly say the aleive helps alot!Nice to meet you all.

Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 8/31/2006 4:44 PM (GMT -7)   
Hi Kimber!  Welcome to Healing Well!  I see that you are a Tony Stewart fan... very cool.. I myself am a Kevin Harvick fan... always nice to meet a fellow NASCAR fan! tongue
 
Anyways - your arthritis, sorry to hear about your wreck!  Did your doctor say that she would refer you to a rheumatologist?  I hope so, so that you can get put on some better medication.  The one thing that I can say, is please stay active!  That is one of the biggest things, try not to give in to the pain and not be as active as you used to be.  Staying active helps to fight the arthritis... stronger muscles help protect the bones... I say this, 'cause that's what I did, and let me tell you this is a long road!  nono
 
The Aleve will help some, also try heating pads and ice packs, those can be lifesavers!  Keep us posted on what happens with you.. good luck! :-)
 
Duck
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea

kimbernascarfan20
New Member


Date Joined Aug 2006
Total Posts : 5
   Posted 8/31/2006 4:57 PM (GMT -7)   
Hi ducky! well after i had my wreck I went back and forth back to the hospital to the pain clinic. I And i was always seeing different doctors one of them may have been a rh doctor. I stopped going because again as i posted i was tired of taking medications and i had to weine myself off of morphine. I was in the hospitla over 2 months .I had spinal cord injury and i was told i would never walk again but I proved them wrong!  haha. I try and walk  at least 3 times a week(2 miles) if my legs will let me. I know that exercise is the best treatment for Rh or at least it is for me. My sister is also experencing some arthritis. she says her toes and wrists  bother her at times. I heard its hereditary. well thanks for your thoughts and hope to hear from you again.

Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 8/31/2006 5:15 PM (GMT -7)   
Wow 2 miles is GREAT! Arthritis can be hereditary, does either of your parents have it? How old is your sister? I hope you get to see a rheumy soon! Keep posting, we're always here!
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea

kimbernascarfan20
New Member


Date Joined Aug 2006
Total Posts : 5
   Posted 8/31/2006 5:51 PM (GMT -7)   
My sister is 37. We are only 14 months apart. She is a RN and she takes very good care of herself. She exercies alot too. I dont anyone else in our family who has it. As for my moms side goes she has connection with her dad's side. Her dad died a young age and her mom moved the family away so she doesnt know  anything about her aunts,uncles,cousins and etc. My mom is 57 years old and looks like she is in her 40's! she has never been sick a day in her life! she said she feels 20! I wish i could say that. My mother is the one who keeps me going. she pushes me all the time. I wouldnt be doing as well as I do if it werent for her. My dad died this past Jan from a heart attack. He too had never been sick a day in his life. He was 59 and he also looked like he was in his 40's. We found out he had heart disease. And we never even knew it. So i am trying to take real good care of myself for so many reasons.

Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 8/31/2006 6:51 PM (GMT -7)   
Hey Kimber... My parent look and act young for their age too... I always get the .."when I was your age..." and "you shouldn't have this yet..." tell me about it! I applaud you for be pro-active in your care and well being... hang in there and keep it up, there will be days when you'll want to give up, but don't do it! It'll pay off in the long run!

Duck
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea

kimbernascarfan20
New Member


Date Joined Aug 2006
Total Posts : 5
   Posted 9/1/2006 9:01 AM (GMT -7)   
Hey thanks for your input ducky! Its so easy to get discourged at times. I ask myself sometimes "why me at this age?" I am too young to have arthtis. But I know too I am being selfish. THere are alot of people out there who have it much worse than i do.I think about that when i start to feel sorry for myself.No matter how bad someone has it there is always someone worse off than you. And i know  I could still be in a wheelchair.When i was in the wheelchair  a few years ago My family would remind me that there were much more people worse off than me. Someone may say well that sounds mean to tell someone in a wheelchair but they told me this because i was at a stage where i  didnt want to live if i had to live in a wheel chair the rest of my life. And at that time my son was only 3 years old. I thought how i would never be able to play ball with him or  run and play tag with him. It was one of the worst times of my life. This year has been the hardest becasue my dad died about 8 months ago. But what can a person do? All you can do is either feel sorry for  yourself which will only make you AND your family miserable or you can take one day at time and do the the very best you can...

yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 9/1/2006 12:28 PM (GMT -7)   
hi kimber and welcome to HW! tongue   we all have good and bad days here but your attitude keeping positive is what counts.  i am certain once you get back to see a rhuemy you will be feeling like new again real soon, but i dont have to tell you that... you've been there done that already once before. yeah
 
Right now i am weaning off prednisone cuz i am sick of taking that drug and have decided right now its the best time for me to try and tolerate what i can just on MTX. i understand the feeling better wanting to get off meds story. i am taking tylenols alot lately instead but who's counting :-)
 
....... well welcome aboard and heres to a wet weekend on the east coast!  smurf (blue from all the water?)
 
lata  yalinda tongue

Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 9/2/2006 9:43 AM (GMT -7)   
Hey Kimber, how are you? You're right, it is SO easy to get discouraged, but never give up hope... You'll have good days and bad days, you just gotta roll with the punches and know that it will get better! Hang in there... Keep posting! Duck
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea

kimbernascarfan20
New Member


Date Joined Aug 2006
Total Posts : 5
   Posted 9/2/2006 2:59 PM (GMT -7)   
Hey yalinda. Its very nice to meet you. I am glad your'e doing better and right now i am trying to stand tall and keep my chin up...

yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 9/3/2006 9:57 AM (GMT -7)   
you go girl! have a nice and wet weekend........ turkeys cooking! ~*yalinda

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 9/5/2006 3:24 PM (GMT -7)   

:-)  hi Kimber!

so sorry it's taken me so long to say "hi."  i'm a slow poke!  geez...you talk about age?  I'M 25! tongue LOL.  unfortunately, like i teach many patients i talk with, RA and all the rheumatic and autoimmune diseases do not age discriminate!  

it's hard isn't it?  it is a struggle to just complete a day.

i have RA, pretty severe.  i can walk a little better now...but i was close to fully disabled for a LONG time, with bedrest as my daily life (not too exciting). i went on Enbrel and was able to go through nursing school.  now on Humira and a load of immunosuppressants.  i'm not at where i want to be...but i can't give up the fight.

do you think you might go on the DMARDs and TNF injections? 

my advise:  early detection & early aggressive treatment drastically improves your chances of NOT becomming disabled due to RA.

keep a close journal on your symptoms too.  they help the rheummy a lot. the more specific you detail pain, stiffness, fevers, etc...the better the outcome will be when you see a rheummy.

really glad to meet you! take good care. :-)

erin


Active/Severe Rheumatory Arthritis. Crohns. AS. Chiari Malformation & Right Brain venous anomoly. Partial complex seizures. Emphysema. Rheumatic Lung & Heart. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Humira 40mg Q 4 days; Prednisone 20mg; Pentasa 4G daily; Imuran 50mg; Dilaudid 4mg; Diazepam 5mg; Avinza 60mg; Reglan; Antivert 25mg tid; LidoDerm; MiraLax & too many others.

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