Hi-

I'm new here, just found the site and am posting here and on the migraine board. I'm 38 and have ankylosing spondylitis also. Mine isn't anywhere near as severe as yours sounds but I can relate a bit. I don't know if I'm in the early stages or it's not progressing very fast. It hurts to lay on my hips at all, my left more so than my right. The pressure feels like needles (or screwdrivers) are being jammed into them. I also have the same pain in my lower back on my sacroiliac joints. I have a hard time sleeping. I was on methotrexate for a while but took myself off because I couldn't afford the copay for bloodwork every 6 weeks and my neurologist at the time thought it might be contributing to my headaches/migraines. I'm taking 3-325mg aspirin twice a day and Celebrex, that's it. When I go back in October I'm sure we'll talk about other options as my x-rays revealed a slight worsening. I don't want it to get any worse. My grandma had RA and was in pain all the time. She was such a trooper, up every morning at 5 and doing stretches and taking codliver oil, yuck. Her hands and feet were so mishapen, knowing what I do now, I really don't know how she did it. She was a talented piano player but wouldn't play often because she couldn't stretch her fingers out far enough for some of the chords. She also crocheted and taught me how. She hated her hands. I used to tell her how pretty I thought they were. I wanted my hands to look like hers. I loved her hands.

Sorry, got carried away there for a minute. I hope things get better and you can find something to take that will help ease your pain.