Negative lyme, positive EBV

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Marius123
Regular Member


Date Joined Aug 2006
Total Posts : 142
   Posted 9/16/2006 4:00 AM (GMT -7)   
1. Strongly negative lyme disease ELISA test. Doc says this particular result indicates more then 99,9% that lyme disease is not/and has never been present for me. No other tests needed to confirm.
 
2. Four fold higher then the norm EBV (infectious mononucleosis) IgG antibody titer. IgM within the norm. Still have no specialist's comment about that.
 
Still getting fever, frequent eyes problems and mild joint aches.
Nobody can tell me what exactly is goin on with me yet. May be the only good news is that my arthritis goes milder and milder in time, but slowly. I had severe infectious mononucleosis 2 years ago (at age 24), then prostate bacterial infection and then, as I realize it now, the one and only bad thing in my life had started;(
 
Monday I'm on GI consultation for the left side - under the ribs pain, then we will continue seeking for others specialists to continue ruling out any possible infectious cause.
 
Apriciate your suggestions, comments, ideas, support, thoughts.
 
Thank you.
 
---------------------------
Erin Kachmar, sorry for the off-topic.
Are you checking your e-mail erinkachmar2 at hotmail.com, i wrote you there.
If not : where I can write you e-mail or sm sort of private message;))) ?
 


Official dx, but I have doubts: chronic reiter's syndrome (1yr and 6 mnths).
suffer form chronic uveitis, conjuctivitis, mild arthritis, subfebrile fever and fatigue, also showing some strange kidney pain

Post Edited (Marius123) : 9/17/2006 12:41:54 AM (GMT-6)


CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 9/16/2006 9:09 PM (GMT -7)   

Hmmm, I had actue EBV/Mono 3 years ago. Hospitalized. Spleen and liver infected severely - haven't been the same since. Get pain in that upper right quadrent of abdomen just below the rib cage - sometimes burning, sometimes muscle spasm type pain. It 'acts' up....at times it hurts if I have to urinate, yet they say my kidneys seem fime, just my liver is having problems. Doctors are stumped.....

So, keep up the search and find answers. Acute EBV is nothing to scoff at and it takes a long time to recover from, longer when you have complications (like organ involvement.) Fever, achy joints, prone to additional infections could be a result of being sick and lower resistance to fight them off.

Good luck, let us know what the doc says.
**
 


Marius123
Regular Member


Date Joined Aug 2006
Total Posts : 142
   Posted 9/16/2006 11:53 PM (GMT -7)   
CaMamma,
 
Sure, I will tell what the docs says about the EBV. I am also interested. Thanks for your comments and info share.
 
I also have permanent red throat, but not sore, I mean I don't feel it as 'sore'.
Is it normal? Could it be related to EBV? I haven't noticed such a behaviour when I was healthy. Anybody alse has noticed similar phenomenon on his/her throat? I'm rising up fevers at the afternoon, at then taking down to normal at the evening and this is for months now. I was on a sea trip this week to try to forget all those things and see whether this fevers will calm down by its own. But it didn't;( I felt like 'sick' ;( I have normal blood works, that's why the docs doesen't pay to me much attention;( How horrible;(.

Have your health problems started/or complicated after having your mono 3 years ago ?

I know EBV is very common infection and the virus remains present and suppressed by your immunity for lifetime in your body after the initial contamination.
I heard that immune-suppressive therapy may reactivate EBV and cause mono like symptoms again. Was this your case? However, I am not on any immuno-suppresives and never been. But for me seems that 2 years ago had been my first EBV infection in my life;( Like I'd been living in incubator;)), but it's not true because I'd even served in the army for year;(


Official dx, but I have doubts: chronic reiter's syndrome (1yr and 6 mnths).
suffer form chronic uveitis, conjuctivitis, mild arthritis, subfebrile fever and fatigue, also showing some strange kidney pain

Post Edited (Marius123) : 9/17/2006 3:28:34 AM (GMT-6)


CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 9/17/2006 8:26 AM (GMT -7)   
I'm told strep throat is a common occurance/sign when having mono.  I hadn't heard that until recently by a few people.  Get that checked.  I came down with bronchitis and pneumonia while still very ill with Mono.
 
I was on methotrexate for a year until I came down with mono. It definitely compounded the situation (espeically for the liver.) 
 
I have had problems with my liver ever since. I had to stop Remicade (I started it after I had mono - when I was supposedly better, but I feel I started too soon) because it started acting up again and my health was declining once again. I felt like I had mono all over again. Plus, I was getting constant infections.
 
Good luck. **
 


Marius123
Regular Member


Date Joined Aug 2006
Total Posts : 142
   Posted 9/17/2006 1:54 PM (GMT -7)   
Yes!
Immunosuppresive therapy is definitely not good. I hope they will replace it with something much more safe in future. I red "funny" articles about that some AI diseases are caused by lowered immune system, not over-active like it is thought to be now. They say that the "native" immune system fails to manage with the constant invaders in time, and then in these people the "secondary" immune responce (wich naturally cause inflamation) is always engaged, witch otherwise should be in inactive mode and only if strong invaders are present to be activated (like all the healty people). They present Crohn's disease as a perfect example.
I really hope in near future the docs will know better what exactly they do when they give someone an immune system kill shots.

Hail, it's 11:58 pm here, I'm going to sleep. Have a nice day. good luck;))


Official dx, but I have doubts: chronic reiter's syndrome (1yr and 6 mnths).
suffer form chronic uveitis, conjuctivitis, mild arthritis, subfebrile fever and fatigue, also showing some strange kidney pain

Post Edited (Marius123) : 9/17/2006 2:58:45 PM (GMT-6)

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