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elcamino
Veteran Member


Date Joined Sep 2005
Total Posts : 1744
   Posted 9/22/2006 9:22 AM (GMT -7)   
Didn't really find out a whole lot new that I didn't know, but I feel a lot better about the whole thing.  Here's what I found out:
 
1) methotrexate can cause interstitial lung disease, and perhaps contributed to my mother's ILD, as she took it for 10 years prior to being diagnosed with ILD
 
2) Methotrexate most likely did not cause the peribronchial cuffing on my x-ray; the cuffing is most likely attributable to my chronic cough
 
3) Because of my mother's ILD, and the dry cough I developed on mtx, it is probably not a drug I should revisit, especially if I'm doing well on the enbrel and plaquenil (which I now am)
 
4) Even though mtx probably did not cause the cuffing on my x-rays, doctor said it was fortuitous that I was there because of my family history of ILD.  He wants to establish a baseline, and follow me.  For how long I don't know.
 
5) Acid reflux can cause interstitial lung disease.  I have severe reflux, and have had it for years.  He said reflux, which goes along with MCTD (my mother had severe reflux too), is more of a cause for ILD than methotrexate is.  Reflux may also have contributed to mom's ILD.
 
6) Pulmonologist said he will call my rheumy with his opinion on the mtx, and will coordinate with rheumy when I need to be seen again (by rheumy).  My doctors talking to one another kind of freaks me out, but in a good way.  I'm certainly not used to doctors communicating on my behalf, but at the same time it makes me feel like they actually care and are doing their job.
 
7) Scheduled a pulmonary function test and ct scan.
 
8) Follow-up with pulmonologist at the end of October.
 
9) Pulmonologist measured my oxidation (that finger clip thing), which was 100%.  Said you couldn't get much better than that.  I told him that evidently Lance Armstrong could :)
 
Happy Friday!  I'm trying to finish up my work so I can go play with my daughters.
 
Elcamino
Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Aciphex, Ultracet, Zyrtec, Allavert-D, Zantac, Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan


yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 9/22/2006 9:39 AM (GMT -7)   
elcamino that is good news i think..... do you take something for the reflux? if not maybe with your history you should start? yalinda

elcamino
Veteran Member


Date Joined Sep 2005
Total Posts : 1744
   Posted 9/22/2006 10:27 AM (GMT -7)   

Hey Yalinda.  Yes, I've taken PPIs for years.  Even doubled up on them this past year.  Plus I take 300 mg of zantac before I lay down to sleep at night.  Pulmonologist told me to also be sure and make dinner my smallest meal of the day and don't even have something to drink (yeah, right) before I go to sleep.  Me without a drink (non-alcoholic of course because alcohol aggravates the acid reflux) is a ridiculous notion.  Maybe I'll switch to water, though, from diet pepsi caffeine-free.

I've tried to back off the PPIs and the Zantac several times because who knows what kind of long-term effects theses drugs may have, but everytime I do the reflux comes back with a vengeance, in less than 24 hours after stopping the drugs.

How did your appointment go with your primary?  Do tell.

 

Elcamino


Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Aciphex, Ultracet, Zyrtec, Allavert-D, Zantac, Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan


Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 9/23/2006 4:52 AM (GMT -7)   
Hey El, that is good news! Great news that your docs are going to "consult" with each other, is always nice to have them all on the same page! Keep us posted!
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea

missie1227
Veteran Member


Date Joined Nov 2005
Total Posts : 751
   Posted 9/29/2006 12:03 AM (GMT -7)   
egads....i have had gerd for 10 yrs or more and have taken on and off achiphex and zantac nearly every day. i am up all night long b/c i eat to late at night which is a big no no and it comes up and goes into my lungs then i cough it up all night, i guess i should loose about 40 pds and stop eating at about 4 pm......i didnt know taht this could cause the interstitual pulmonary cuffing also from gerd

9-02 crash w/ C-5-6-7 anterior/posterior fusion in neck w/11 screws and 4 metal plates. multilevel HNP at T & L section. FMS, PA in dec 05. on SSDI after 2.5 yr wait. sezuires, CTS, IBS ( C & D). norco, xanax, predisone shots. i dont know what else is wrong with me and neither does anyone else!!!


elcamino
Veteran Member


Date Joined Sep 2005
Total Posts : 1744
   Posted 9/29/2006 4:18 AM (GMT -7)   

Hi Missie,

It does sound like you have problems with acid reflux.  Pulmonologist told me to not eat or drink anything after dinner--the entire night.  Even a sip of water?!  Of course, this is impossible for me to comply with.  I never eat after dinner, but I do drink.  It's kind of a cycle.  If I don't have at least water to sip on, the reflux causes a sore throat; yet, if pulmonologist is right and water produces stomach acid (which I suppose it does, but had never really thought about it), then drinking the water produces more acid that can irritate my throat even more.  Jeez, what am I supposed to do? 

Hey Duck, I noted that you take prevacid for reflux.  Have you ever had any problems with aspiration?

Missie, I hope you feel better soon.

Elcamino


Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Aciphex, Ultracet, Zyrtec, Allavert-D, Zantac, Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan


missie1227
Veteran Member


Date Joined Nov 2005
Total Posts : 751
   Posted 9/29/2006 8:10 AM (GMT -7)   

thanks you are right el-

i get the same thing back up at night then coughing and nealry vomitting up stuff from the lungs and then drinking water to help with the burning in my throat then more acid...never ending cycle...now chocloate makes it worse and caffine and anything sweet. heres waht helps me all bran fiber or fiber one. and i stay away from acid y foods. my grandma died of stomach cancer and my mom has gerd  hiatel hernia and illiac sprue which casuews havoc weith her entire system.

i have the gerd but notices it  goes away when i lose weight or back off on eating the junk food.

once last week i was up at night as usual and my hubby is an enabler and bought me a big thick piece of rich choclate cake , i mean this thing weighed in at 2 pounds and i was in an anxeity attack sat down and ate the whole thing at 3 am, then sat up all night and nearly vomitted my guts out from it all, it took me 3 days to be able to eat reg food, then i told him dont buy me this crap anymore as i cant eat it and you are killing me by buying it for me and he should know better be he himself is diabeitc

 

i came up into my lungs and nearly killed me from choking to death. not gonna do this any more to myself, although i do have a trrible weak ness for choclate cake and foods.....i even popped 2-3 zantac before i ate it thinking taht would make it right, now i come to learn  taht choc is bad for you if you ahve arthritis also!! duh i am my own wrost enemy


9-02 crash w/ C-5-6-7 anterior/posterior fusion in neck w/11 screws and 4 metal plates. multilevel HNP at T & L section. FMS, PA in dec 05. on SSDI after 2.5 yr wait. sezuires, CTS, IBS ( C & D). norco, xanax, predisone shots. i dont know what else is wrong with me and neither does anyone else!!!


Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 9/29/2006 4:04 PM (GMT -7)   
Hey El... I have since graduated from Prevacid, to Prilosec and Aciphex... Yes both of them... I take Aciphex daily and Prilosec if I need an extra boost... Oh lordy... Nothing seems to work for me :(
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea
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