Judy, I really don't have any advice for you, but I did have a similar experience with humira. I took it for 8 weeks, and my arthritis symptoms worsened considerably. I went in to see my rheumy and he switched me to enbrel right away. I simply did not feel right at all on the humira--it may have started to affect my blood counts. I haven't had the same issues with enbrel. Although, I will warn you that I had to take enbrel for a good 5-6 months before I saw any effects, and even now after 8 months, it's still not perfect. Rheumy says that every patient responds differently to different tnf-inhibitors. the only way to know is to try them all.
I hope you get some relief soon.
Yes, I did get the red spots on my arms--actually on my torso and legs too. I believe they are petachiae (sp), and can be an indication of low platelets. That's why I feel the humira may have been affecting my blood counts negatively. Please mention them to one of your doctors; they may be meaningful--perhaps not, but it can't hurt to ask anyway. I started with bloodwork every 4-6 weeks on the tnf-inhibitors; now I've graduated to 8 weeks, next on to 3 months. It probably depends on how you do.
Enbrel is also self-injection, but it's 1-2X /week as opposed to once every other week like humira. I take 50 mg once a week in pre-filled syringes. I understand they have the pens available now which may be easier, although I don't find the syringes difficult to deal with at all. For psoriatic arthritis, I believe enbrel is approved up to 100 mg/week. My rheumy wanted to put me on 100 mg (I don't have PA, but enbrel just wasn't working as well as we wanted it to), but insurance refused to pay for it because I don't have PA. You will probably be started off on 50 mg/week, though.
I have no complaints about enbrel. It has not affected my blood counts in ways I can tell, it has given me tons of energy, and it does decrease my joint inflammation mostly. Combined with other DMARDs, enbrel is proven to be quite effective. Best of luck to you.
it's so hard with these AI meds! the failure of them can really get ya down. with me, i would slowly respond to a TNF injection, plateau, then get worse after a 12 - 16 month period. rheummy says the RA is too advanced & the RA meds aren't strong enough. i grow tolerant to them after about 12 months.
the good thing is that there are a whole lot more options now than there was even a year or two ago. new meds for AI arthritis are popping up every year.
oh, and i hate the joint pain that follows a pred reduction. ouch!
you hang in there. you'll move onto a new med, give it time, and there are always different things to try if one fails.