question about spondyloarthritis

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bamagal
Regular Member


Date Joined Jul 2006
Total Posts : 150
   Posted 10/10/2006 1:25 PM (GMT -7)   
Hi everyone,
I am usually on the lupus site but wanted to ask you a question.  Does anyone have any information on spondyloarthritis?  (not sure if spelled correctly)  My Rheumy is suspecting this and I have been trying to find out more about it.  Thanks!
suspected SLE, Sjogrens, spondlyoarthritis - no firm diagnosis yet
plaquenil, naprosen, cymbalta. hyzaar


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 10/10/2006 1:56 PM (GMT -7)   

hi bamagal. :-)

it would be a pleasure to help ya out!

when we're talking any type of "spondy" we're focusing in on the vertebrea or basically your spine.  it's basic definition of spondylarthritis would be inflammation of the joints of the vertebrea or better yet "arthritis of the spine".

the spondy types of arthritis are then categorized by what's causing them: degeneration from osteo arthritis, complications from rheumatic diseases which may cause an ankylosing spondylitis (a fusing type of arthritis), a bony outgrowth of the vertebrea, hypertrophy (same way a knee joint would get bigger from arthritis caused by inflammation) or disintegration.

so as with any type of inflammatory arthritis, spondylarthritis is just a way to say it's in the vertebrea.

there are official websites for spondylarthritis'...i think Ducky knows them. but i'm sure someone will come and leave them for you. it's a good site & it's approved so you will receive correct information.

did you doc say what he/she would like to do to treat it?

what kind of symptoms are you having in your back? backache, spasms?

you take good care & write back when you can.

sincerely,

erin


Active/Severe Rheumatory Arthritis. Crohns. AS. Chiari Malformation & Right Brain venous anomoly. Partial complex seizures. Emphysema. Rheumatic Lung & Heart. MVP and Tricuspid prolapse. Had Lymes disease for 10 years.
Meds: Remicade Infusions; Prednisone 20mg; Pentasa 4G daily; Imuran 75mg; Dilaudid; Diazepam; Avinza; Reglan; Antivert; LidoDerm; MiraLax; Restaril; Trazodone & too many others.


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 10/10/2006 3:27 PM (GMT -7)   

This is a great site to learn about the spondyloarthropathies: Ankylosing Spondylitis, Enteropathic Arthritis, Reactive Arthritis, Psoriactic Arthritis, and Undifferentiated Spondyloarthritis.

Spondylitis Association of America [click on the "about Spondylitis" section in the toolbar on top of the page.]

I have AS/SpA. Do you have any specific questions?


CD, Ankylosing Spondylitis, peripheral neuropathy
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bamagal
Regular Member


Date Joined Jul 2006
Total Posts : 150
   Posted 10/11/2006 9:09 AM (GMT -7)   
Thanks for the replies Erin and Ides. Just a brief history: I have had pain in my lower back for years. Now I am also hurting in the buttock area. It hurts mostly when trying to sleep and early in the morning. Several years ago I had an MRI on the lower back and was told that I had degenerative arthritis. Back in May I saw my primary doctor for extreme fatigue and pain. I had a positive ANA test and was sent to the Rheumy. I saw him a couple of weeks ago for the first time and he said that I could have spondyloarthritis, sjogrens, or even SLE. he started me on plaquenil and naprosen and I have to go back in 3 months. So, I do not have a definite diagnosis yet. My knee pain is better but I am still having a lot of pain in my lower back and buttocks. All the Rheumy told me was spondyloarthritis. He didn't tell me that there were different types. I have just been trying to find out some information. From what I have read online the low back and buttock pain sound a lot like it. I appreciate all the info.
suspected SLE, Sjogrens, spondlyoarthritis - no firm diagnosis yet
plaquenil, naprosen, cymbalta. hyzaar


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 10/11/2006 4:31 PM (GMT -7)   
bamagal, that buttock pain could be from the sacroiliac joint. If your pain is kind of located where you feel the indentation above the cheek - that's the classic place for SI joint pain. I have that on the right side and it can be so aggravating. I hope the rheumy can get to the bottom of your pain and discomfort in a timely fashion!
CD, Ankylosing Spondylitis, peripheral neuropathy
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Sha49
Regular Member


Date Joined Nov 2010
Total Posts : 27
   Posted 1/9/2011 3:05 PM (GMT -7)   
Bamagal~Did ya ever get a dx ?? Yours sounds a lot like what I have been going through. I also have sjogrens....it's the only sure dx I have right now. Just had my first rheumy appointment on jan 4th so am waiting on results of all they ran, but he thinks it is an overlap of a bunch of things with sjogrens as secondary.

Hope to hear an update!

Sha
Identical twin. 35 yo. Married w/5kids. dx sjogrens w/+ SSA, ANA, scheimer test. Joint pains/swelling, dry mouth, change in taste/hearing, dry eyes (got plugs in now), neuropathy in feet and hands, lower back pain, vibrations in back, brain fog, weird rashes that peel and look like a sunburn, fatigue, etc:p Just got 44 vials of blood drawn, xrays and lip biopsy to try to get a dx thinks an overlap

Crackles23
Regular Member


Date Joined Jan 2011
Total Posts : 96
   Posted 1/17/2011 5:40 AM (GMT -7)   
Bamagal,

Did your rheumi mention anything about being HLA B27 Positive? I have Ankylosing Spondylitis and this was a huge suspect for me, also the xrays of my lower spine confirmed it.

I had the pain in lower back for years and always put it to the work I was doing and thought my back was "pooped". Then finally decided to see my GP about it and he sent me straight up to the hospital to run some tests.

Just curious, do you get any sort of hip pain? When I was going through early stages of AS I had heavy pain in my left hip and a bad limp.

Just my 2 cents, could be totally irrelevant, good luck with your dx, hopefully its nothing :) we can only dream lol
Diagnosis - Ankylosing Spondilitis and (still to come, ill find something :P)
Meds - Celebrex 200mg Once daily - Contains Celecoxib.
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