Post Edited (Marius123) : 10/12/2006 3:25:31 PM (GMT-6)
Post Edited (Marius123) : 10/15/2006 2:13:42 PM (GMT-6)
Post Edited (Marius123) : 10/19/2006 8:31:17 PM (GMT-6)
what's up marius,
personally wouldn't jump to the conclusion that the DMARDs and biologics are a "crime". i mean, yes...the price is a crime for sure as is any costly antibiotic, new medicine, chemotherapy. but for people like me, if i were not on a TNF chemotherapy, i would most likely be crawling to bathroom & unable to walk like was 4 years ago.
now, there has never been a "promise" that these rheumatic TNF and bio's "make AI disease arthritis better" their goal is to help SLOW the progression of the disease..which depending on what a person has...can be a nasty progression.
i certaintly would not want to stop any of the dmards or TNF meds and allow the RA to effect my heart and lungs further.
and also, the whole point of immunosuppressants is to act on "too much immune" which are...autoimmune diseases.
it's complex, it's debatable....it's a MESS sure!
in all....any disease is a crime.
You are right. I did express an opinion too unclear.
I ment that the prescription of the biologics on possible wrong diagnosis, that is a definately a crime. Imagine undiagnosed lyme disease and TNF inhibitors applyed?
about the price of the biologics it's undisputable crime, It is called oligopol, it's somethink like monopol but supported by more then one company with agreement between, which is the case with the biologics producers. This is 100% crime when it's about health and judjement must define it. So Erin when we have one crime related to the people's health why we should exclude the possibility of another or many other crimes related to the people's health?, crimes like "The biologics prescriped for arthritis right away since the diease onset as if to slow down the disease progression but most likely it's because of the power of the money and how they gets transferred from the insurance companies to pharma-market monopolist". It's easy to hear the doc when he/she says - "you have to be on remicade now, to prevent your disease from progression"?? But did we question ourselfes when we talk to a lawyer do we have doubts about a particular right or other low's issue said by our lowyer. We have no doubts! We trust to our lawyers because we know nothing about low but they have the proffesion. But the lawyer may also make mistakes like you at your job, like the doctors, like everyone in their jobs. The mistake is forgiven ones if it is caused by lack of knowledge or even carelessness but it deserves jail when it's incited by the power of the money. The things still continues to put question marks are do realy the biologics prevents the disease from pregressing or even may worsen it? That is still unlear due to the lack of very-long trials (tens of years, or even lifetime trial has never been yet)..Yes they will be someday and there is no other way for this to happen.
"and also, the whole point of immunosuppressants is to act on "too much immune" which are...autoimmune diseases. "
Erin, there's currently a dispute over the medical community on whether all AI diseases are caused by "too-much immunity". There has been a clue about one of them - "crohn's disease" which is caused by lowered naive immunity, but not "too-much immunity". Here's the article, I allow myself to post the link with no special permission gained because it's healingwell news article.
That was my opinion about the biologics and the second "possible" crime, but now more clarified.We reached consensus about the first "crime", about their price. The second "crime" is controversial and very unproven and I will push you to forget it, at least for now.I hope I would not get banned for this, because of the power of the money.To all people reading this post: Don't listen to me, I'm just a wiseacre sufferer!
________________________________________________________________Nobody must try to take the people's right to have doubts.
Post Edited (Marius123) : 10/20/2006 5:10:47 AM (GMT-6)
Well said! Oh, I agree about the insurance & money being criminal...for sure. I mean, look at how many "really nice" commercials that are constantly on television! Like they don't cost a pretty penny!
What irks me?...the media shows people that are doing and looking pretty darn normal to me! I mean, talk about false hope sometimes.
I've thought about it often...if I had begun TNF or DMARD therapy "early" within the 1st year or so of diagnoses....would I be as bad as I am now? The thought of the answer "yes" makes me sick; because I was young (16) and did not get a push to start treatment & basically ignored the RA to the degree of disability until a treatment was initiated.
On the other hand, for the people to seek a doctor at the onset of their symptoms, get on a treatment program FAST, and are then able to avoid how devasting RA can get...boy am I GLAD THEY DID! And that is why I urge people to seek opionions, doctors and treatment for RA early. It progresses just way too fast and I would hate to hear of anyone waiting the way I did. And for the people who respond well to treatment and can resume normal lives? It makes these meds a true Godsend.
I don't think it'll ever be a clear cut answer to why and how these things happen...but maybe in our lifetimes we'll see it.
You take care Marius...and NO, no one will get banned from expressing an opion. I enjoy reading your input. Have a goofd day.