Went to new rhuemy, misdiagnosed

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New Member

Date Joined Oct 2006
Total Posts : 4
   Posted 10/12/2006 6:41 PM (GMT -6)   
Hi y'all. Im new here. Diagnosed and confirmed by 3 drs. of rhuematoid Arthritis in 12/00. On enbrel, weaning (again) off pred., methadone. Began losing approx. 20% control of my legs when walking this past weekend. Out of the blue also cant think well, no memory. I felt my old RA guy was burned out, went to new one. She said I have Fibro. and carpal tunnell!! Ive been through this before and its all crap.

I sleep like a rock and she wants to do sleep study , I guess to see why I sleep well! The fatigue I have always is pretty bad, making me quit work 12/05. $ is fine

Been reading on here some people on Enbrel are getting MS. Wonder if thats whats happening to me?

Im a young (44) single mom ,new widow with a not-helpful ****.


Veteran Member

Date Joined Mar 2005
Total Posts : 3199
   Posted 10/12/2006 9:24 PM (GMT -6)   
Hey there steelchick! Welcome to Healing Well... Hhhmmm Fibro huh? What leads this rheumy to believe you have Fibro? You may have RA and Fibro... Does she think you not have RA at all?

The sleep study is probably to find out how deep you are sleeping... Most people with fibro don't get to Stage 4 sleep, thus not as much seratonin gets released in your body... the seratonin helps to heal (or rebuild if you will) your muscles... So... if you have fibro, you don't enter Stage 4 sleep, less seratonin gets released into your body; therefore more muscle pain and fatigue... Fibro is in the muscle/tissue which the no sleep cycle that we just went through, exascerbates your condition... Some people with fibro feel like they sleep well, and are out like lights, but don't ever feel rested... (again the Stage 4 thing)....

Did your rheumy say anything about MS?
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea

Veteran Member

Date Joined Mar 2005
Total Posts : 4305
   Posted 10/12/2006 11:22 PM (GMT -6)   
Welcome to HW,glade to have you hope you continue to post here.Ducky said it best I agree with her,

Hey Curley - I edited your post.. I didn't delete anything.. just changed the "him" above to "her" tongue

Post Edited By Moderator (Ducky) : 10/12/2006 11:54:51 PM (GMT-6)

Regular Member

Date Joined Aug 2006
Total Posts : 142
   Posted 10/13/2006 3:22 AM (GMT -6)   
How all this started in 2000?
I mean, my "on duty" question is, what infections you have been checked for (example, lyme disease, hiv) ?
Did they make you enough extensive infections tests before puting you RA, or fibro or whatever else 'chronic'?

Official dx, but I have doubts: chronic reiter's syndrome (1yr and 6 mnths).
suffer form chronic uveitis, conjuctivitis, mild arthritis, subfebrile fever and fatigue, also showing some strange kidney pain

New Member

Date Joined Jun 2011
Total Posts : 3
   Posted 6/19/2011 12:55 AM (GMT -6)   
Probably MS or MS symptoms. No more enbrel or any other TNF blockers
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