I have been diagnosed with RA

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Harley Diva
Regular Member


Date Joined Oct 2006
Total Posts : 160
   Posted 10/24/2006 6:58 PM (GMT -7)   
Hi I am new here. I have been diagnosed with RA. My RF was 22 but anti CCP was 111. I just started on MTX 10 mg. No side effects yet. What should I expect. I have only been on it two weeks and don't feel any better.

curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 10/24/2006 7:11 PM (GMT -7)   
Harley Hi and Welcome to HW,

Glade to have you sorry tho you have to be here but know you are welcome any time.

I take by what you said you are on the pill form of methotrexate am I right if so I would like to say that since you have only been on it a couple of weeks,some times it takes longer depending on the person.

I have RA>OA>AS>CROHNS>SJERENS>I have inflamation of the lining of my nerves and muscels.I just want you to be able to see were I'm coming from.

I was on methotrexate for two years but I never took the pill typ because my dad was as well on methotrexate and he started on pill form and it would make hime sick as a dog so when I my Rheumy recommended methotrexate I told her up front that if she showed me hoy to give my self a shot I would try that but no pills.

I do want you to know that it did help a great deal as it did for my dad and we only took the shot once a week.There was no nausea with the shot like there is with the pill.

Just remember that every one is different when it comes to this disease as well as with meds.Pleaes let us know how you are doing an know you are welcome any time.
Thanks
Curley......
a.k.a.Mela...........


Harley Diva
Regular Member


Date Joined Oct 2006
Total Posts : 160
   Posted 10/24/2006 7:21 PM (GMT -7)   
Thanks for the reply. I am on the pill form....I think I may be in denial because I am ill but I don't always believe what the doctor says. I have had several misdiagnosis this year. I worry all the time and I am getting depressed. I feel like I am losing my life. I cry alot. I have changed rumys. I had a bad one that started this off on the wrong foot.......That is why I came here to get the truth

yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 10/25/2006 6:43 AM (GMT -7)   
hi harley and welcome to HW.i also am on mtx, started out slow at 10 mg and now take 20. i take it friday night so i sleep through any side effects and feel more rested sat. morning. for me mtx has been great. i am typing this will little to no pain depending on the day. that is a major improvement for me. i hope you do well with the mtx, some do and some dont it all depends but for me it has been good. i do recommend taking it like on a friday night if you work the week, elcamino taught me to take it at bedtime and that is a great rec. as i am not so tired all day saturday, you kinda sleep off the pill that way friday night. good luck and i hope it works just as well for you. yalinda

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 10/25/2006 3:29 PM (GMT -7)   

sad  dear Harley Diva,

a Harley Diva i do hope you are! :-)   i am so sorry for what you are going through, but do know that we ALL have been there as well at one time or another.  it sometimes feels impossible to handle, like it never lets up, never is easy...it's a rough time of things especially when newly diagnosed.

but do have confidence that YOU ARE getting treatment for the RA! which is great.

yalinda & curley gave fantastic advice. i've never been on MTX...but pretty much EVERYTHING else. tongue this is a great place to share & get support through disease.  there are so many fabulous people here.  and a lot of stories to share.

welcome to HealingWell.  and don't worry, things will get easier...and if not, you'll get better at handling them!

post back soon & take good care

erin


Active Severe Rheumatory Arthritis. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures. MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Previous Lymes Disease for 10 years.
Meds: Remicade infusions; Intra-articular knee injections; Imuran; Mesalamine; Prednisone; Meclizine; Reglan; LidoDerm; Diazepam; Restaril; Dilaudid; Avinza and too many others. 


CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 10/25/2006 6:59 PM (GMT -7)   

Hi and welcome!

Sorry to hear what you are going thru, as mentioned before, we have all been there (unfortunately!)

Did the docs tell you to take Folic Acid as a supplement while on methotrexate? It'll help with the fatigue. Taking a B complex vitamin will also help. I didn't feel "well" on methotrexate though not sick, it did help with the joint pain. Docs stated I wasn't technically allergic to it - but I had some problems while on it that I've never had before nor since. I know a lot of people who do just fine on it with no problems.

I believe methotrexate also takes some time to build in your system and takes a while before you see full results.

Also, it is very common to become depressed when not well - especially when you are first having to accept and adjust to the fact something is happening to you that you cannot control. If it continues to the point it is affecting your daily life, I would get help. I know we all say that "I wouldn't be sad if I wasn't in pain" but what do you do when it's taking so darn long for the pain to ease up? Sometimes, it's just finding someone to talk to on a regular basis other times you might need more. HW has been great for me, but in the past, the pain was so great that I did go on an anti-depressant to help me cope for about a year. I had great success with it - I don't know if was just helping me cope or the "pain management" actually stopped the signals of pain to my brain to be lesser as it seemed to soften the blow of agony. Maybe both. The bottom line is, you are not alone nor should you have to be so sad while trying to get better. Find support in as many ways as possible to help you get through this 'painful' time.

Take care. ***



 

Post Edited (CaMama) : 10/25/2006 8:17:06 PM (GMT-6)

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