I guess I have had just a bit more time to process things and am wondering now what I need to know overall. I actually don't have a definitive diagnosis but just Autoimmune Inflammatory Arthritis. They say at some point the bloodwork will vere one direction or another. Basically, I am told either Lupus or RA or even both because of the butterfly rash. Here is my question, I have had problems for nearly 15 years maybe even more. I already have significant destruction in the bones of my feet. I am only 31. The prednisone doesn't work like it used to but it is definitely still considered significant improvement in my eyes and makes life bearable. I was talking to the doctor yesterday about how in 15 years I don't think I will be walking and she said that I was being optimistic. I kinda felt and knew this but now it feels so real, but it is still possible even with significant damage that I can walk 15 years from now right? They didn't elaborate, they just said they were sorry. Are they just going on stats of people who start with problems so young and progress so quickly. They did call this progressive are there other levels? What can I expect with Methotrexate can it stop the progress or only slow it down? Since I am one that can withstand a significant amount of pain (still went to work even when I could only take 1/4 inch steps at a time) does that mean anything? Are there any tips, suggestions, ideas? Is there surgery for the feet? The affected joints are feet, ankles, knees, hips, wrists, and starting in the hands? How do I tell if my jaw is affected it hurts and feels tight but when I hurt I bite down hard all the time, not really grinding but I think enough to bother the jaw. I told them nothing was wrong with my jaw but I think I might have been mistaken. Does my case sound severe? Severe enough for them to say I was being optimistic about walking in 15 years? Can anyone tell me about clubbing of the fingers and toes? They said my finger tips are clubbing which indicates pulmonary disease. I do smoke and am going to quit, but they said it could be from the inflammatory disease aswell? Anyone else have this? Can someone help me with this, it seems to have actually hit me and now I am a bit scared.
Thank you all for responding to my last post too.
dx: Systemic Juvenile Rheumatoid Arthritis: otherwise known as Adult onset Still's Disease. Asthma, hypertension, hypothyroid
Meds: Indomethacin TID, Neurontin 600mg, Maxair, Advair 250/50, Diovan HCT 160mg/25mg QD, Synthroid .1mg QD, Women's One a Day, Ultram PRN.