Arthritis & IBD

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Auntie Sea
New Member


Date Joined Oct 2006
Total Posts : 2
   Posted 10/27/2006 1:16 PM (GMT -7)   
Hi this is my first time using a chat room so please excuse me if I make any mistakes.
I have been diognosed with AS and RA and am now on Enbrel for the past 3 weeks.  Plaquinil did't work and I am afraid of the Methotraxate because of my sensitive stomach.  My question is concerning stomach problems which I have had since birth.  I have 1 sister with Chrons and another who has MS.  I have had stomach trouble for as long as I can remember.  I have been reading quite a bit about alot of people who have IBD have Arthritis as well and that by treating the underlying condition ie; the stomach diease people have found releif for both IBD and Arthritis.  I'm starting to think this is my problem.  Years ago my Doctor thought I might have Celiac diease which is autoimune diease responce in the stomach and put me on a gluten free diet.  I was on the diet for a number of years and it did not do much to improve my stomach problems so I went off of it and a year later the arthritis blew up on me something fierice.
 
Anyone out there with both and any one find improvement with a gulten free diet or have had major flares after going off a gluten free diet?
 
Thanks
 
Auntie Sea

curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 10/27/2006 3:28 PM (GMT -7)   
Auntie Sea,

Welcoem to HW.I am sorry that you have RA and AS I have both my self and I seen that you were afraid to take Methotrexate they do make an injectable (sp)version of Methotrexate and it does not make you sick to the stomach like the pill version or at least not for me and my dad.But you do have to remember that every one responds differently with meds.But you may want to at least ask.

I have been tested for Celiac disease and I tested negative but I do have ea friend that has it and she has to stay on a very stricted diet.But she is doing so much bettr than she was.

I would like to ask if you have or your Doctor ever disgussed maybe trying you on Remicade or Humira(I'm on Humira)or even Emberl these are some wounderful meds the Embrel you take a shot every day verces Humira is usally taken every other week unless your Doctor thinks you need more or less and both come with friendly needles that are better made and so that people with arthritis can grip the handles on the needle makes it easier to inject the med.

Remicad is an fushion and it is either done in a clinic hospital or even your doctors office and it useraly takes about two hours to adminster the Remicade.It has helped alot of peoplee.

How long were you on Plaguinil?This med (I'm on this one to)this one can take up to three months or longer before you start feeling the effects of it.i do no my Rheumy makes me get my eye's checked every six months because of this one.

I really hat that you have a sister with MS and one with Crohns it's just not fare to see any one suffer from these diseas.I can totaly relate to you sister that has crohns because I have this as well,Lucky girle arnt I.

Please let me know how you are doing and know you are welcome any time.
Thanks
Curley......
a.k.a.Mela...........


Auntie Sea
New Member


Date Joined Oct 2006
Total Posts : 2
   Posted 10/27/2006 3:44 PM (GMT -7)   
Hi Curley:

SOrry to hear that you suffer as I do with AS and RA. Yeah I am on Enbrel for three weeks now, not much improvement so far. I was on Plaqunil for months and months I think about 8 and it did nothing for me. I really am afraid of taking the Methotraxate, never had much luck with meds lots of bad reactions over the years. I would rather return to the gulten free diet which is miserable than take the Methotraxate. That is why I am wondering if there are other people who have used diet to try to find improvment instead of so many drugs.

Thanks

Auntie Sea

curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 11/5/2006 11:03 AM (GMT -7)   
Hi,I have crohns so I have to watch what I eat,I have found that keeping a dairy of the food's I eat I can weed out the foods that I can't tolrate. This system has helped big time.I do no that every drug has it's side effect's but I did well on Methotrexate but do understan your fear of this drug.I do hope that you can find some relief if it be meds or a diest.
Thanks
Curley......
a.k.a.Mela...........


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 11/7/2006 12:31 PM (GMT -7)   

:-)  dear Auntie Sea,

LOVE THE NAME!

i have found that the inflammatory bowel disease i have gets WAY WORSE when i stop the RA meds (Enbrel/Humira in the past & now Remicade).  so i believe, they're great for controlling both.

hey you know you could do the MTX Injections! bypass the stomach!

i've similar issues as you, and believe me, it took a lot of trial & error with the meds! oy!

WELCOME TO HEALING WELL!

glad to have you,

erin


Active Severe Rheumatory Arthritis. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures. MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Previous Lymes Disease for 10 years.
Meds: Remicade infusions; Intra-articular knee injections; Imuran; Mesalamine; Prednisone; Meclizine; Reglan; LidoDerm; Diazepam; Restaril; Dilaudid; Avinza and too many others. 


elcamino
Veteran Member


Date Joined Sep 2005
Total Posts : 1744
   Posted 11/7/2006 12:55 PM (GMT -7)   
My rheumy has told me he thinks I may have this problem as well.  I've been taking the biologics (humira and enbrel), and now have added methotrexate, for my arthritis.  My lower GI symptoms disappeared when I started taking the biologics (last January).  I wonder what would happen if I stopped taking enbrel--I'm afraid to find out.
 
erin is right.  Many IBDers bypass the stomach and use mtx injections.  if you're already injecting a biologic, like enbrel, what's another weekly injection?  I also have a sensitive stomach and was terrified to try mtx.  but I take it prior to going to bed at night and I haven't had any major nausea.  My appetite is suppressed a bit for a couple of days, but I can afford to miss a couple of meals :)
 
elcamino
Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Aciphex, Ultracet, Zyrtec, Allavert-D, Zantac, Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan


Alice Jane
New Member


Date Joined Nov 2006
Total Posts : 1
   Posted 11/11/2006 3:05 PM (GMT -7)   
Auntie Sea is having a flare-up after d/c'ing her gluten-free diet. Interesting. I have just the opposite experience. I started a gluten-free diet one month ago. After the first few days, I entered a flare-up that is the worst I have ever had. I had heard that people with auto-immune disease may have gluten intolerance. I'm exhausted, I feel terrible all over, and my arthritis is so bad it's very hard to drag myself out of bed and go to work every day. I'm doing my regular exercises - I have the habit of making SURE I do them when I'm hurting. It normally helps. But nothing is helping me right now - I'm just worse. My doctor put me on methodone for pain but I don't like taking all the drugs I take for arthritis pain. I came to this forum to look for answers but I haven't found them yet!

Auntie Sea, I do hope you find good health and well-being soon! For me, being on a gluten-free diet has worsened my arthritis pain.
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