HI, again. Guess I will be venting here for a while since everyone else I know in the real world seems to think I can just deal with it. I started on the pred 4 days ago and got a lot better. My worst joints are in my feet and I can walk so yes, much better. But, today for some reasons my hands have hurt more than they ever had. This is a bit concerning to me. Do people with RA get inflammation in all joints, I was kinda hoping that the hands would hold off some they only in the past would hurt occassionally or get a hitch when trying to perform certain tasks. Actually it is my fingers not really my hands that are bothering me, they are tight and hurt when I bend them and even type today. It is strange but my joints overall feel better but my muscles hurt now and I still feel so washed out. Appetite is back that is for sure and I did really well at work today so definitely I should be being more positive but my hands really ache. Can it just be the weather change? What are the odds of developing heart and lung complications with this disease. I might actually have the start of lung issues (told I have clubbing in my fingers and toes) which could be either from the disease, from smoking, or from chronic asthma. Ugghh. Do I ever feel like I am falling apart.
How do I get my manager at work to understand me? That I am slower because I hurt not because I am lazy? Will a note from the doc stating that I don't have restrictions but may need a break every couple hours suffice? I want to protect my job and I am afraid they are looking for a way to fire me.
dx: Systemic Juvenile Rheumatoid Arthritis: otherwise known as Adult onset Still's Disease. Asthma, hypertension, hypothyroid
Meds: Indomethacin TID, Neurontin 600mg, Maxair, Advair 250/50, Diovan HCT 160mg/25mg QD, Synthroid .1mg QD, Women's One a Day, Ultram PRN.