Started meds tonight.

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babybloo
Regular Member


Date Joined Aug 2005
Total Posts : 289
   Posted 10/31/2006 9:28 PM (GMT -7)   
Hello, again.  Went to the docs this afternoon to discuss treatment.  Started Methotrexate tonight at 15mg weekly.  Also they increased the prednisone to 20mg daily until at least 6 weeks then they may consider tapering.  Apparently my CRP was very high the other day, all other labs good.  They did mention adding Remicade or other injectable after the 6 weeks if I don't feel significant improvement, gave me the info to read on three of them.  Oh right Folic Acid 1mg too.  Also, they got on me about my BP, but I haven't taken my meds for that in 3 weeks so I know the reason.  I also will be seeing my GP for the new smoking cessation drug called Chantix, they want to talk to me about it so I am not sure what that means but figure they wouldn't make a person come in if they were not going to dispense it, right?  Hope so anyway.  They wrote a note for me to have put into my employee file at work.  Very simple really just stating that I have RA and may have days when simple tasks are harder to perform.  Simple but I think will keep my job safe.
 
Anyhow, off to bed.
Thanks for listening
Theresa
dx: Systemic Juvenile Rheumatoid Arthritis: otherwise known as Adult onset Still's Disease. Asthma, hypertension, hypothyroid
 
Meds: Indomethacin TID, Neurontin 600mg, Maxair, Advair 250/50, Diovan HCT 160mg/25mg QD, Synthroid .1mg QD, Women's One a Day,  Ultram PRN.
 
 


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 11/1/2006 11:26 AM (GMT -7)   
hey Theresa!   yeah way to go with the note!  yeah that's great.  it's a fantastic C.Y.A. move in the workforce.  and ya know what?  it's good for humanity as well.  seriously!  workplaces outside the realm of medical fields, many times we'll find that coworkers/employers....can be?... naive?... to such things.
SO...HATS OFF TO YOU!  really, bringing the awareness about RA.  and we don't look nor expect  pity or excuses or to be treated differently...it's just the point that people need to be aware.  YOU MADE MY DAY! :-)
oh please, PLEASE! give it your best go with the smoking cessation. i really mean it. i WISH my mom would at least "TRY" ya know?  she's almost 60, never goes to the dr.,  nono SHE SMOKES (since age 12!), has HIGH BP! eyes oy! so me as a nurse you know i'm freakin' out about this! LOL.  her last blood sugar i made her do @ a pharmacy was phenominal!  confused over 400!!!!! confused CAN WE SAY STROKE? i was surprised (as was the tech) that she was like...walking! he's like..."i really think you should go to the ER mam'."
so really, from the bottom of my heart....i wish you the best at giving the smoking thing up...go slow! better to take baby steps than crash & rebound. but my thoughts & prayers are with you in this.  i know how difficult a thing it is to do. i've seen so many people struggle to quit.
i see you have hypothyroid & take Synthroid. that can make the heart work harder, faster HR, and could even raise BP.
ugh...good luck with the Prednisone; be careful.  smurf if you feel anything weird make sure you make your doc aware.  i have a few heart problems, and the Pred really exacerbated them...nothing grave or anything, but bothersome.
may i ask a question?  by all means don't answer if i'm crosing the line...but just curious as to your age & whatcha' do for work? :-)
take care "bloo". talk to you soon. VIEW IMAGE 
p.s.  how did the MTX go? any nausea?
erin
Active Severe Rheumatory Arthritis. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures. MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Previous Lymes Disease for 10 years.
Meds: Remicade infusions; Intra-articular knee injections; Imuran; Mesalamine; Prednisone; Meclizine; Reglan; LidoDerm; Diazepam; Restaril; Dilaudid; Avinza and too many others. 


babybloo
Regular Member


Date Joined Aug 2005
Total Posts : 289
   Posted 11/1/2006 7:46 PM (GMT -7)   
Thank you so much Erin for the response. A very cheery one at that. Well, I see the doc tomorrow to discuss the smoking medication. I am really starting to get psyched up about this so we shall see. I am 31. Went to my first Rheumy visit at 19. From there it went downhill from you are crazy to fibro to crazy, depressed, stressed, and fat. Finally found a good Rheumy it looks like. Someone who listened and didn't even let it go past two flares before starting real treatment. I started seeing them about 5 months ago. Not looking forward to long term pred but then again, I can walk and I really couldn't before. There is some pain that will not go away because of the destruction over time to my joints due to lack of treatment so I expected this. Didn't sleep at all last night and I took the pred pretty early so today i took it earlier. I would say that if this is the worst of the side effects from the methotrexate (first dose) then I can deal with it. Went to work and only dealt with waves of nausea from time to time. It wasn't constant and it seemed to happen every time I smoked so I already smoked less. I am a vet tech been doing it for 15 years and don't want to give it up. But already the doctors are calling this a disability and future predictions from them are not so great so they want me to have a paper trail and documentation in case disability is in the nearer future. When I flare I am useless at work and pain is intolerable. Then I take the meds to help with the pain and I get some nasty side effects from those and ended up in the bathroom yet getting paid for it. To give you an idea of what these people are like I was doubled over in pain, in the bathroom every 20 minutes, white as a sheet, and weak. Asked if I could go home and was told only if I can get someone to cover... Couldn't find anyone so they said no. Basically, I went into the bathroom closed the door and didn't come out until the office closed.

It was hell, and I want protection.

Thank you again

Theresa
dx: Systemic Juvenile Rheumatoid Arthritis: otherwise known as Adult onset Still's Disease. Asthma, hypertension, hypothyroid
 
Meds: Indomethacin TID, Neurontin 600mg, Maxair, Advair 250/50, Diovan HCT 160mg/25mg QD, Synthroid .1mg QD, Women's One a Day,  Ultram PRN.
 
 


yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 11/2/2006 5:36 AM (GMT -7)   
bloo, great news! how u feeling today? hopefully you slept away any side effects...... with working u may want to take it on weekends? unless u work thses too!. good luck with everything, should be feelin like dancin soon! oh and yep quit that smokin! i hear that is hard to do but ur lungs are important, take it from me!

erin ~heck with a stroke! 400 BGL!!!!! tell ur mom she's gonna see me if she dont get on a med! diabetes is the leading cause of blindness!!!!!! is she still on the other forum? she needs some talkin to. hehehehe
yalin

babybloo
Regular Member


Date Joined Aug 2005
Total Posts : 289
   Posted 11/2/2006 7:32 AM (GMT -7)   
Seems to be good today. No luck on the smoking cessation med yet. Doc wants to look into it further. BP was concerning though. It was actually lower than at the rheumies office but GP didn't like it. 128/96 guess the numbers were too close so she switched those meds increased it and added another. So now I am a walking drug cabinet... just wait until I feel all the asthma meds I haven't filled in 3 months. Uggh.... anyhow I do work weekends too so I picked the easiest workday and wanted to save Sunday for my boy.

Take it easy and get on your mom about those numbers

Theresa
dx: Systemic Juvenile Rheumatoid Arthritis: otherwise known as Adult onset Still's Disease. Asthma, hypertension, hypothyroid
 
Meds: Indomethacin TID, Neurontin 600mg, Maxair, Advair 250/50, Diovan HCT 160mg/25mg QD, Synthroid .1mg QD, Women's One a Day,  Ultram PRN.
 
 


yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 11/2/2006 5:36 PM (GMT -7)   
glad you are doing ok so far! keep u in my prayers. yalinda

leeloo67
Regular Member


Date Joined Aug 2006
Total Posts : 81
   Posted 11/10/2006 5:22 PM (GMT -7)   
Meds working ok?
 


babybloo
Regular Member


Date Joined Aug 2005
Total Posts : 289
   Posted 11/10/2006 6:49 PM (GMT -7)   
Having a bad day today. No idea why. Started off great then went to crap quick. Now I can't remember if I took my pred or not. Can I take tylenol or ibuprofen with pred and methotrexate? Can i get a new body? This one sucks. With the methotrexate my side effects don't start until day 2-3 after taking it, so not sure how to figure out the best time to take it. Will the side effects change? Lessen? Right now it is mostly waves of nausea with clammy sweats and legs that feel like they weigh 200lbs a piece with no energy.

Thank you for asking.
Theresa
dx: Systemic Juvenile Rheumatoid Arthritis: otherwise known as Adult onset Still's Disease. Asthma, hypertension, hypothyroid
 
Meds: Indomethacin TID, Neurontin 600mg, Maxair, Advair 250/50, Diovan HCT 160mg/25mg QD, Synthroid .1mg QD, Women's One a Day,  Ultram PRN.
 
 


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 11/10/2006 9:13 PM (GMT -7)   
hi there bloo,
i would advise to take the Tylenol.  the Ibuprofen sure is great as an NSAID...but, the pred is your antiinflammatory right now & the NSAID will be more rough on your gut...and the pred can already be tough enough on the stomach, so adding another harsh pill can worsen everything.  Tylenol plus some food....good combo while taking the pred.
day here is crap as well.  but this too shall pass.
how about asking for an antiemetic for the nausea? they are wonderful!  i use Reglan and Meclizine for med related nausea. the Meclizine works terrific! an OTC antiemetic i once used is called EMETROL, it's liquid, cherry...it's ok, but the meclizine really REALLY helps me out with the pukey feeling from the RA meds.
take it easy.
:-)  
Active Severe Rheumatory Arthritis. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures. MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Previous Lymes Disease for 10 years.
Meds: Remicade infusions; Intra-articular knee injections; Imuran; Mesalamine; Prednisone; Meclizine; Reglan; LidoDerm; Diazepam; Restaril; Dilaudid; Avinza and too many others. 


leeloo67
Regular Member


Date Joined Aug 2006
Total Posts : 81
   Posted 11/10/2006 9:35 PM (GMT -7)   
So does that mean they are working or not?!? Sounds like a maybe! That sucks. Just keep fighting! Compared to the 10mg I was on 20mg seems like quite a lot of prednisone but I'm no doctor...

I remember when I first started the meds it seemed like the pain would come and go almost like there was a battle going on inside my body. The pain would take weird turns and shifts and at times the pain wouldn't even feel like pain - I would just feel "weird".

The mtx only made me barf once when I was on a high dose and I was getting sick a lot at the time due to it and the pred messing up my immune system. MTX made be barf for the first time in like 8 years!

Just give it a little time and see how it works!
 


babybloo
Regular Member


Date Joined Aug 2005
Total Posts : 289
   Posted 11/10/2006 9:39 PM (GMT -7)   
Its only been a little over two weeks... today was the first day after the pred kicked in that I started hurting so much and it was kind of a downer really, but tylenol really did help except for the walking part. I know there are going to be good days and bad days, its just when you had such amazing relief and then bam it was gone... I am betting it is the lack of sleep I get on thursday and friday nights that is doing it as I think i had an issue last week too.... will have to log this more to find out... but not sure how to adjust it. I am just upset because I wanted to start getting back into exercising before I can't fit through my doorway... LOL>

Thank you so much for caring...

Theresa
dx: Systemic Juvenile Rheumatoid Arthritis: otherwise known as Adult onset Still's Disease. Asthma, hypertension, hypothyroid
 
Meds: Indomethacin TID, Neurontin 600mg, Maxair, Advair 250/50, Diovan HCT 160mg/25mg QD, Synthroid .1mg QD, Women's One a Day,  Ultram PRN.
 
 


babybloo
Regular Member


Date Joined Aug 2005
Total Posts : 289
   Posted 11/12/2006 8:33 AM (GMT -7)   
Well, I figured out why I started to hurt so bad over the last couple of days. That time of the month. For all those women out there, does this happen to you? Is there anything you can do to prevent it?

Whooped today so won't be staying online.

Theresa
dx: Systemic Juvenile Rheumatoid Arthritis: otherwise known as Adult onset Still's Disease. Asthma, hypertension, hypothyroid
 
Meds: Indomethacin TID, Neurontin 600mg, Maxair, Advair 250/50, Diovan HCT 160mg/25mg QD, Synthroid .1mg QD, Women's One a Day,  Ultram PRN.
 
 


leeloo67
Regular Member


Date Joined Aug 2006
Total Posts : 81
   Posted 11/12/2006 9:23 AM (GMT -7)   
I had the same thing with the feet - when the arthritis decided to hit me hard it just about crippled me. The foot pain was the worst area of my entire body - a 10 out of 10 for sure. Even today, over a year after I started the meds, my left ankle still has a sore spot that won't go away (aches on the inside and feels like a bruise). Still, I will take a bruised feeling over a crippled and can't walk feeling any day...
 

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