is anybody without dx that lasts 1 year

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istone
Regular Member


Date Joined Nov 2006
Total Posts : 77
   Posted 11/3/2006 1:46 PM (GMT -7)   
 
hello im 9 on this board i dont have any dx that lasts 1 year nobody knows what is happend with joints. a lot of test mri my ankle joint is deformed could OA or RA?  or both ?i dont have swelling even inflammation just pain. all the joints are affected started on right knee last nov and than all the joints were affected. all tests come negative. could be RA? can teeth pockets confused cause arthritis?
could be Re do to my UTI is a mistery. im so scared.please help me
 
regards
 

Marius123
Regular Member


Date Joined Aug 2006
Total Posts : 142
   Posted 11/3/2006 2:14 PM (GMT -7)   
istone said...
 
hello im 9 on this board i dont have any dx that lasts 1 year nobody knows what is happend with joints. a lot of test mri my ankle joint is deformed could OA or RA?  or both ?i dont have swelling even inflammation just pain. all the joints are affected started on right knee last nov and than all the joints were affected. all tests come negative. could be RA? can teeth pockets confused cause arthritis?
could be Re do to my UTI is a mistery. im so scared.please help me
 
regards
 
Hmm..
teeth pockets ...probably.. It is a local infection, especially if it persists for long. What the dentists say about that, shouldn't they fixed them already?

Official dx, but I have doubts: chronic reiter's syndrome (1yr and 6 mnths).
suffer form chronic uveitis, conjuctivitis, mild arthritis, subfebrile fever and fatigue, also showing some strange kidney pain


istone
Regular Member


Date Joined Nov 2006
Total Posts : 77
   Posted 11/3/2006 2:56 PM (GMT -7)   

 

hi Marius

thank u for replay im so scared i dont know what i have if i have RA i will be terrible 

are italian? even the dentist dont know if teeth pockets cause arthritis.

i thought i have Re like u for long time but i have already joints damage so is not Re, cose Re doesnt cause joint damage. how u feel now do u take  any medicine ?

nice to meet online

iris

 

 

Marius123 said...
istone said...
 
hello im 9 on this board i dont have any dx that lasts 1 year nobody knows what is happend with joints. a lot of test mri my ankle joint is deformed could OA or RA?  or both ?i dont have swelling even inflammation just pain. all the joints are affected started on right knee last nov and than all the joints were affected. all tests come negative. could be RA? can teeth pockets confused cause arthritis?
could be Re do to my UTI is a mistery. im so scared.please help me
 
regards
 
Hmm..
teeth pockets ...probably.. It is a local infection, especially if it persists for long. What the dentists say about that, shouldn't they fixed them already?


Marius123
Regular Member


Date Joined Aug 2006
Total Posts : 142
   Posted 11/3/2006 3:26 PM (GMT -7)   
istone said...

 hi Marius

thank u for replay im so scared i dont know what i have if i have RA i will be terrible 

are italian? even the dentist dont know if teeth pockets cause arthritis.

i thought i have Re like u for long time but i have already joints damage so is not Re, cose Re doesnt cause joint damage. how u feel now do u take  any medicine ?

nice to meet online

iris

Hi again Iris,  I answered you also in How Sick Do Ya'll Get After Remicade? topic, did you see it ? But we better move here our conversation... dont answer me there, answer here please.
I'm not completely sure what exactly the teeth pockets are? I think I had teeth pocket once it was when I had wisdom-tooth growing 3 years ago. It was infection under the skin and swelling of the gum. Mine was fixed with a single procedure to the dentist and all gone. I'm not sure that we are talking about same things? Are we?

I take only herbs now, tried sulfasalazine an year ago when I had severe back bain, but sulfa was a bad medicine for me and discontinued it only in 2 weeks. No I don't have joint damage yet. I have some ligament clicking and cracking on movement in my left ankle but the X-rays shows nothing. May be it is some kind of orthopedic problem because there is no inflamation nor pain there anymore.

What do you mean your ankle is deformed? You see it deformed with your eyes or the X-rays shows it.... or both;( How old are you? ... What's your sex Iris, I could not guess for sure ;)?


Official dx, but I have doubts: chronic reiter's syndrome (1yr and 6 mnths).
suffer form chronic uveitis, conjuctivitis, mild arthritis, subfebrile fever and fatigue, also showing some strange kidney pain


istone
Regular Member


Date Joined Nov 2006
Total Posts : 77
   Posted 11/3/2006 4:22 PM (GMT -7)   
im a girl sure iris a girl name

i dont take now any med cos i dont have dx if i have pain take some painkiller
ankle damage is visible with eyes on x ray is ok cos cant see soft tissue
they said is osteo but i dont think osteo in all the joints

regards

Marius123
Regular Member


Date Joined Aug 2006
Total Posts : 142
   Posted 11/4/2006 3:41 AM (GMT -7)   
istone said...
im a girl sure iris a girl name

i dont take now any med cos i dont have dx if i have pain take some painkiller
ankle damage is visible with eyes on x ray is ok cos cant see soft tissue
they said is osteo but i dont think osteo in all the joints

regards
hmm.. have you checked your bone density recently?
about the UTIs have you made urine microbiological analysis recently, how soon?
I did not understand about the teeth pockets, what are they caused by, how they treat them?
Hmm maybe they have to examinate you with the pill cam to see if you have inflamation in your intestines which is unreachable thru the colonoscopy exam. But anyway you should have some pain, discomfort, nauseing if you have inflamation threre ?!?! But that dramatical weight lost makes me suspicious. What the docs say about food intolerances possibility?
 
Please excuse me, I wish to ask you about the ankle deformity: what the docs says about the ankle deformity?


Official dx, but I have doubts: chronic reiter's syndrome (1yr and 6 mnths).
suffer form chronic uveitis, conjuctivitis, mild arthritis, subfebrile fever and fatigue, also showing some strange kidney pain

Post Edited (Marius123) : 11/4/2006 3:44:43 AM (GMT-7)


istone
Regular Member


Date Joined Nov 2006
Total Posts : 77
   Posted 11/4/2006 4:41 AM (GMT -7)   
hi Marius
I had a colonoscopy yesterday no problem with my intestines.
pill cam I think think they dont have here. i did also my bone density no osteoporosis. i think i have a virus from UTI than cant be healed. u know some virus are resistent to antibiotics.
on 15th i will go to infection disease dr lets see what tests should do again.
about my weight i dont have apettite i eat not so much im very depressed cos my disease started so suddenly i was so healthy and now im so sick. and i think ai have malabsorbtion too. oh good so many problemes ......im dying.
but i dont have inflammation in joints just periarticular, no swelling .maybe is a degenerative process that affect my soft tissue tendons is so strange all.
and all costs so much cos on public should wait 2 or 3 months.
kind regards

Marius123
Regular Member


Date Joined Aug 2006
Total Posts : 142
   Posted 11/4/2006 10:05 AM (GMT -7)   
istone said...
hi Marius
I had a colonoscopy yesterday no problem with my intestines.
pill cam I think think they dont have here. i did also my bone density no osteoporosis. i think i have a virus from UTI than cant be healed. u know some virus are resistent to antibiotics.
on 15th i will go to infection disease dr lets see what tests should do again.
about my weight i dont have apettite i eat not so much im very depressed cos my disease started so suddenly i was so healthy and now im so sick. and i think ai have malabsorbtion too. oh good so many problemes ......im dying.
but i dont have inflammation in joints just periarticular, no swelling .maybe is a degenerative process that affect my soft tissue tendons is so strange all.
and all costs so much cos on public should wait 2 or 3 months.
kind regards
Yes Iris it is possible your disease not being inflamatory and the docs digging on wrong place now. Except for the bloodworks there are other signs that demonstrate inflamatory disease: Have you ever had fever, fatigue and/or eyes problems? There are also MRI and bone scintigraphy scans which shows places on body where inflamation is present. If these tests are negative that would categorically prove that your problem is not inflamatory, respectively not-rheumatic. But the docs knows their work. I would suggest you to not to talk to the docs things like you just said: "u know some virus are resistent to antibiotics" because all the viruses are generaly resistent to antibiotics, only bacteria may be treated with antibiotics. Even more - the antibiotics are harmful when the problem is viral. It seems like you are in depression and some people loose their appetite during depression, for me is not like that, I always eat;)), but I've heard about many cases. Try to stay calm and think positive. Don't worry about that the things will be bad for you for lifetime. Think that they will get better and you will be healthy again because it will happen for sure soon or later. And try not to loose your friends. Personally I made such mistakes and I will be sorry for life. All "good" friends of mine abandoned me after I got sick exactly because I needed them as "a life saviour" that's why they abandoned me;(, so be carefull
 
Go to infectious diseases doc and don't miss even a minor event when you are telling him about your hardships background.
 
Please keep in touch what's going on with you.
 
Marius



Official dx, but I have doubts: chronic reiter's syndrome (1yr and 6 mnths).
suffer form chronic uveitis, conjuctivitis, mild arthritis, subfebrile fever and fatigue, also showing some strange kidney pain

Post Edited (Marius123) : 11/4/2006 10:18:23 AM (GMT-7)


istone
Regular Member


Date Joined Nov 2006
Total Posts : 77
   Posted 11/4/2006 4:23 PM (GMT -7)   
hi Marius
I would like to thank u for encouragement today i had again flares, pain that migrates all over the body from knees , toes, ribs is scary. is like ghost in body im so afraid cos here r not so good dr like in america .
and i dont have so much money to spend on dr and tests. here on private they look on watch so if in 30 min they coulnd find out what i have is like casino should pay again and again. i payed almost 7 rheumatologists unable to find out what i have cose the tests and mri, xray dont say nothing. i dont have inflammation swelling my disease is very strange. but on fingers and toes and knees and ankle is visible the change they think is osteo ..and basta. and i know is not so...can be endocrinologic or infection in the body that is difficult to detect or such an arthritis from these 100... who knows? mine is not typical. im so scared that this would be change in RA cos i read that RA on 1 year doesnt affect the joints is periarticular .. tendons. ligaments soft tissue. oh my god!!! Marius if would be RA i couldnt handle this med. u know so well r so toxic and my stomach and body is so weak.u have exp. with sulphasalazine u know so well what r this med for RA is like conviction to death.are u italian? marius is european name..they told me to wait until i would have symptoms and positive tests for RA, imagine such a terror. to wait until my body is distroying and get positive tests for RA .i cant stand this anymore. days and nights with this ambiguity.u know Katleen Turner the famous actress when the dr founded out the dx after years she said is so calm cos now she knows what she has. she has nice website with all the story about her RA and now she is dancing on Broadway
but i cant compare my situation with her the best rheu. surgions, massagists etc. after 10 years is now almost in remission. how is the weather where u live? here is winter cold almost -16 horrible i wish to be on warm country kind regards and nice weekend here is almost midnight i think there is afternoon now. ciaooooo

istone
Regular Member


Date Joined Nov 2006
Total Posts : 77
   Posted 11/4/2006 4:33 PM (GMT -7)   
hi
i forgot u to tell that scintigraphy detected exactly the points means all the joints i have now problems. i did on april this year
the result - inflammatory degenerative process in all the jonts and arthrophaty. ................so sad.
could u understand can be both...? cos degenerative is osteo , inflammatory is RA could be both in the same time in alll my joints?but also exists also and inflammatory osteo i saw many with osteo with swollen knees.etc
god knows.........i dont have synovitys i did also ultrasound...in all the joints

Marius123
Regular Member


Date Joined Aug 2006
Total Posts : 142
   Posted 11/5/2006 3:33 PM (GMT -7)   
istone said...
hi
i forgot u to tell that scintigraphy detected exactly the points means all the joints i have now problems. i did on april this year
the result - inflammatory degenerative process in all the jonts and arthrophaty. ................so sad.
could u understand can be both...? cos degenerative is osteo , inflammatory is RA could be both in the same time in alll my joints?but also exists also and inflammatory osteo i saw many with osteo with swollen knees.etc
god knows.........i dont have synovitys i did also ultrasound...in all the joints
Iris,
You sound so emotional. You almost made me cry. sad sad sad .
Dear Iris I passed all the way you do pass now. May be not exactly the same - physiologicaly, but I could say psyhologicaly the same. I could say that only by listening to you. I can asure you that on this forum you will always be welcomed and followed closely. A big hug for you.
 
about your problem. I could not talk for my presumtions because I am not a doctor and I am also in doubts and not certain about many things and also the forum is not a place for diagnosing. I could only tell you that my thoughts based on my year and a half 'disease practising' that migratory pain is a sign of rheumatic problem or an infection which has also immunological based symptoms. Hope somebody else to give a comment too. BUT as I told you, rheumatic disease does not certainly mean a life time disease nor a lifetime terrible suffering. So take out of your head the ...yo know ..those thinks...bad thinks... Get them out - NOW!

about the docs in the USA, I doubt they are that perfect like you said, despite I have no personal impressions I do have impressions from the forum members telling about their docs. I personally do not approve many of the mentioned here 'american' docs. And this is our right (to all) to not be satisfied with our docs by all means, because the docs must also compete for our trusts.
 
Go to infectious dieases doc and call back here what's the result of them.

P.S.
I'm from Sofia, Bulgaria, here the weather is also cold now, so being that cold at your area (-17C)makes me think you are somewhere in northern Italy.. hmm let me guess Milano?


Official dx, but I have doubts: chronic reiter's syndrome (1yr and 6 mnths).
suffer form chronic uveitis, conjuctivitis, mild arthritis, subfebrile fever and fatigue, also showing some strange kidney pain

Post Edited (Marius123) : 11/5/2006 3:55:20 PM (GMT-7)


istone
Regular Member


Date Joined Nov 2006
Total Posts : 77
   Posted 11/6/2006 9:07 AM (GMT -7)   
hi
im from Finland,so do u have good dr there in Sofia? do u think Re could lasts more than 1 year?
i didnt ask u for dx just to share opionion with people who have same problems as mine. sorry for bothering u!!

regards

Marius123
Regular Member


Date Joined Aug 2006
Total Posts : 142
   Posted 11/6/2006 3:38 PM (GMT -7)   
istone said...
hi
im from Finland,so do u have good dr there in Sofia? do u think Re could lasts more than 1 year?
i didnt ask u for dx just to share opionion with people who have same problems as mine. sorry for bothering u!!

regards
Got ya;)
I became too wondered about -17 and Italy but however I decided that it could be possible. Yes it could be possible for nortern Italy, but not for november. Well, talking about Finland -17C is a reasonable temperature now. Here is -6, -7 up to zero max. My favourite band The 69 Eyes are finnish. I like them much. No, you don't bother me even a single second, I just can't help you with the diagnosis, and I'm mad because  of it. Specifically ReA can pass for a month. ReA can last more then an year. ReA can last a lifetime if the reaction causative agent is never found and/or could not be cured (example: if it's a latent virus is the cause). ReA may go away with no logical reason and then may recurre upon re-infection, or virus re-activation...who knows (last is mine theory)....However, that is sometimes very diffucult to establish. Same is with most of the rheumatic diseases, they all have chronic remitting recurring pattern. Some people may have a single joint ache lasting for 1 month per every 10 years (I personally know such people with such inconsequent rheumatic outbreaks) and all the remaining time are completely symptom free. Others may have constant aches and subsequent joint damage. I repeat: "rheumatic disease does not necessary mean 'lifetime' suffering, so stop getting panicky, and think it as a common disease. There are many trials and research now trying to follow the infectious trace in the etiology of the rheumatic diseases. I can tell you only that 'prognosis' and 'rheumatic disease' are currently self-excluding concepts. You can wake up tomorrow with complete absence of any symtoms and to remain that healthy for your entire life, and it will not be a medical miracle ! Just these diseases are not yet understood. They are still the biggest mistery of the medicine. about the docs, yeah there are good docs everywhere, you bet on, here also. I switched 3 rheumatologists. N1 was crap, N2 was chief, not a doctor, N3 was okay I think. You just have to look for them, but I think it is better for us to stop looking for them and start living our 'previous' lifes; ) But as the old saying says 'everything has it's concrete schedule'...lol ...how funny it sounds 'translated' in english ( by me;) ).... tongue tongue tongue  

P.S.
Take an autograph for me from the Helsinki Vampires  devil   devil   devil   devil   devil   


Official dx, but I have doubts: chronic reiter's syndrome (1yr and 6 mnths).
suffer form chronic uveitis, conjuctivitis, mild arthritis, subfebrile fever and fatigue, also showing some strange kidney pain

Post Edited (Marius123) : 11/7/2006 5:07:55 PM (GMT-7)


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 11/7/2006 12:19 PM (GMT -7)   
Ciao Iris,
((((((( big hug )))))))))) I was just thinking...have you anyone in your family with anything like this?
What about a genetic or DNA abnormality? Some genetic bone & joint diseases show negative for RA and such....but they come on & start to change the bodies joints.
Just something that ran through my head.
In my thoughts,
Erin
Active Severe Rheumatory Arthritis. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures. MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Previous Lymes Disease for 10 years.
Meds: Remicade infusions; Intra-articular knee injections; Imuran; Mesalamine; Prednisone; Meclizine; Reglan; LidoDerm; Diazepam; Restaril; Dilaudid; Avinza and too many others. 


yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 11/7/2006 2:55 PM (GMT -7)   
everything has its concrete schedule..... is that like " nothing is cast in stone" i think? meaning things change.

sry to interup your conversation, marius your a good friend to iris (and all of us)! even translated i feel your hope and compassion :) please go on dont let me interupt hehehhehehe yalinda

istone
Regular Member


Date Joined Nov 2006
Total Posts : 77
   Posted 11/7/2006 3:48 PM (GMT -7)   

 

 

hi Erin

nobody in my family suffered from arthritis. my dad died at 82. i got injured my knees 2 years ago from bike accident. i was sporty very active .now im in bed with my laptop watching tv and depressed.i think this was the reason that i got sick and than little by litte all the jonts affected. orthopeds said couldnt be arthrosis in all the joints even x ray and tests are negtive. just on right knee a small narrowing but is a mistery my disease. im so afraid to not became rheumatoid arthritis. did u got pain and swelling from the beginning? my joints never are swollen or inflammed. just cartilage degeneration. i think so. i read that on the beginning RA doesnt affect the joints, just around. im in this stage now. oh my god i pray and hope ... every day

erin did u ever see somebody with arthrosis in all the joint? i read about generalized arthrosis and i have a friend with arthrosis in all the joints. she said that i also have the same. im very pesimistic ...i dont think so. somebody told me could be a metabolic disease. cose i lost 15 kg so fast and i have strange symptoms but i dont have so much pain. i had a corticosteroid injection 1 month ago maybe this is the reason i have mild pains. but my right knee has loose bone, cartilage is affected, also my right ankle is deformed .nobody knows what's is . on my scintigraphy they founded inflammatory degerative process in all the jonts. did u know coud be both? so strange !

tell me about how u cope every day are u active have u normal life? since i got sick last nov. im so depressed is like i lost my life. i hope u will be in remission some day cose u r so young maybe after pregnancy u can get some change im sure i see so many women in remission. my friend from univ. got RA after she got a baby than she was in Metho..and sulpha...and after 10 years now is in remission incredible no more RA no deformation she has a nice girl is happy. hope u will be in the same situation. also Katleen Turner the actress is in remission now after 10 years.

so always is a hope...

my best wishes yeah

erin.K said...
Ciao Iris,
((((((( big hug )))))))))) I was just thinking...have you anyone in your family with anything like this?
What about a genetic or DNA abnormality? Some genetic bone & joint diseases show negative for RA and such....but they come on & start to change the bodies joints.
Just something that ran through my head.
In my thoughts,
Erin


Marius123
Regular Member


Date Joined Aug 2006
Total Posts : 142
   Posted 11/7/2006 5:03 PM (GMT -7)   
yalinda said...
everything has its concrete schedule..... is that like " nothing is cast in stone" i think? meaning things change.

sry to interup your conversation, marius your a good friend to iris (and all of us)! even translated i feel your hope and compassion :) please go on dont let me interupt hehehhehehe yalinda
;))
Nope yalinda, I ment we have a saying around here, says: 'anything has its definite time to happen'. I don't know if it is international..but when you think on it it is totaly correct, because you may blow your a..s  tryin' to do something and as a result - nothing happens. by doin like that You're just going stright against your destiny. And when the scheduled time for the 'thing' to heppen come, it just happens even with  not so much effort comming from your side. Have you been having this feeling?
 
Takin about that the things changes, yup that's another saying...I know it.
 
Hmm. sorry for my baddie englie ; -- )
teach me master. devil devil devil
glhf.
good night from me


Official dx, but I have doubts: chronic reiter's syndrome (1yr and 6 mnths).
suffer form chronic uveitis, conjuctivitis, mild arthritis, subfebrile fever and fatigue, also showing some strange kidney pain

Post Edited (Marius123) : 11/7/2006 5:14:18 PM (GMT-7)


yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 11/8/2006 5:44 AM (GMT -7)   
u make me laugh! which makes me cough! you speaka da gooda english .... no really you do! i am inpressed for real, seriously and i am not serious to ofter :)

i never heard that expression but i do say ""it was fate" or "destiny" not to be confused by destinys child, survivor, lets sing ................

i just cant be serious ever, always automatically say stupid stuff and never delete it! i am sorry if i annoy peps out there but everyone needs a class clown!?

Marius123
Regular Member


Date Joined Aug 2006
Total Posts : 142
   Posted 11/8/2006 6:26 AM (GMT -7)   
yalinda said...
u make me laugh! which makes me cough! you speaka da gooda english .... no really you do! i am inpressed for real, seriously and i am not serious to ofter :)

i never heard that expression but i do say ""it was fate" or "destiny" not to be confused by destinys child, survivor, lets sing ................

i just cant be serious ever, always automatically say stupid stuff and never delete it! i am sorry if i annoy peps out there but everyone needs a class clown!?
Some people are not about to laugh here may be sad
 
Hey Iris, If you prevent your self from laughing because you may think that your life has finished or being afraid of getting used to your health problem (but you don't want to). Don't prevent your self from laughing  not only because you will feel (temporary) reliefed, but because the laugh cures and you will get better, not only emotionaly. And this is not a 'blah blah'. It is proven.
Iris, tell something about your self, wats yr occupation, are you married, do you live in a city or a small town or village.... and thinks like that?
 
Yalinda: Survivor;)  lol.. Yup FATE is the right word. Thank you. yalinda what are you doing at the puter at 5:44 AM (GMT-7) or american standart's MST time. I am able to stay awaken up to 2AM then my eyes becomes hazy. Don't tell me you goes to work at that early in the morning?


Official dx, but I have doubts: chronic reiter's syndrome (1yr and 6 mnths).
suffer form chronic uveitis, conjuctivitis, mild arthritis, subfebrile fever and fatigue, also showing some strange kidney pain

Post Edited (Marius123) : 11/8/2006 12:07:40 PM (GMT-7)


yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 11/9/2006 4:48 AM (GMT -7)   
i get up 530 est for my daughters, make breakfast pack lunches throw a load of laundry etc. i go to bed usually arounf midnight here soi get 5 and half hours a night? g2g daughter calls for help! :)
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