Best pain med for PsA?

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jonathon
New Member


Date Joined Aug 2006
Total Posts : 16
   Posted 11/7/2006 5:57 PM (GMT -7)   
Hi All,
I hope everyone is having a really good day! yeah
I am thinking ahead here to my next rheumy appt. and wondering if I should stay on my presently  prescribed pain med in the upcoming which is vicodin 10/660. It really has helped me alot and allows me to function, when I otherwise wouldn't be able to... but..... I am feeling that it just isn't giving me adequate pain management any longer...the pain has just gotten to intense and cuts right thru it......and the mornings and late nites are just real bad lately sad ...I take it, and the prednisone, which will be changed to Humira hopefully soon, and I'm not sure how I will react to the Humira. I want to be prepared to cover the pain when I stop the pred.too. Does anyone recommend something more effective for PsA and AS symptoms than vicodinhp that I could mention to my rheumy? I can't take any NSAIDS btw. They wouldn't cut it anyways with this kind of pain.
Any suggestions?
Thanks!
jonathon
 
 

PsA, AS, Trigeminal neuralgia,


Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 11/7/2006 6:54 PM (GMT -7)   
Hey Jonathon... I have PsA and AS and I am on Enbrel.. Never been on Humira... but anyways - once I got on the Enbrel, I didn't need any pain meds... The Enbrel has kept my pain at bay (for the most part)... every once in a while I get a little break through pain and I will take a pain pill for that, but I don't have to be on a daily dose at all... When do you start the Humira?
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea

jonathon
New Member


Date Joined Aug 2006
Total Posts : 16
   Posted 11/7/2006 7:29 PM (GMT -7)   
Hey Ducky thats great that the enbrel is working so well for you!
I will probably be starting humira at the end of jan. on my next dr. visit if he still
thinks thats the best way to go for me. I'm hoping humira works that well for me too....that would sure be super to not have to take anything else....the less the better if possible. Keeping fingers crossed. I just want to be prepared cause you never know how things will go etc.
PsA, AS, Trigeminal neuralgia,


judyinky
Regular Member


Date Joined Aug 2006
Total Posts : 254
   Posted 11/8/2006 1:30 AM (GMT -7)   
Hello to you Johnathon,
It's been awhile since I posted so I have not met you. Welcome to HW. I have psoriatic arthriitis, and  am on Humira for it. I started about 4 months ago, and started a prednisone wean about the same time. As I came down on the prednisone the Humira must have kicked in or I would have been in terrible pain. It took much longer for the psoriasis to start clearing up but finally it is clearing, drying and working like a charm. tongue I have had more trouble coming off the prednisone than anything. I am down to 17 1/2 mil. and have to come off of it slowly so as not to risk a relapse with my liver. I also have a an autoimmune liver disease that the pred. has been treating. OF course it also did wonders for the PA. I was never in any pain on 40mg.
 
I don't think once you get on the Humira, if it works well for you, that you will need pain medicine. I took it too, but it's' better all the way around not to if you can help it because it is addictive and very hard on your liver.
But, only you and your ruemy will be able to figure that out. How much prednisone are you on?  Are you havng side effects?  I hope you can get off it soon. It's a nasty drug.
 
Wellness to everyone,
 
Judy
"Hope is seldom found in the things we can see;it is the sweet fragrance of grace."

             

 




judyinky
Regular Member


Date Joined Aug 2006
Total Posts : 254
   Posted 11/8/2006 1:38 AM (GMT -7)   
P.S. I did want to mention that I was prescribed a medication called Diclofenac (Volatren), and it works well for moderate arthritic pain.
 
 
"Hope is seldom found in the things we can see;it is the sweet fragrance of grace."

             

 




jonathon
New Member


Date Joined Aug 2006
Total Posts : 16
   Posted 11/8/2006 10:06 AM (GMT -7)   
Hi Judy,
Nice to meet you, and thanks for posting. I am really glad to hear that Humira is working well for you! That is great to hear!  I know how hard it is to taper on the prednisone. 40 mgs is quite alot and I understand for sure how you needed to taper down. I have never been on more than 5 mg because it upsets my stomach and lower track badly if I take any more than that, and even with 5 mg its hard to taper it lower ( at least for me ). I am told by the dr. that it is ok to take it for a year, but no longer than that..... it has been effective to help me thru the past year as well as the vicodin I mentioned. I am hoping that I will get alot more relief with Humira since my pain level has gone up considerably. Since it effects people differently there's just no way to tell how I will do until I start taking it. In the event it doesn't work for me I need a back up plan....something I can take that I can live with and not be in bed debilitated,feeling completely horrible 24/7. Suffering all day in extreme pain with AS is a terrible thing, as you know, and if there are pain meds to help manage my symptoms of extreme pain I  definitely opt for that. Regarding vicodin & other pain meds, I am aware of course, regarding addiction and I know that I am not addicted. There is a difference between addiction and dependence. My body is dependent on them to function with the severity of my PsA/AS. I have weaned myself off vicodin  several times thinking it might be the best thing for me to do...suffer and put on a happy face....I was wrong...and the end result is always back to square one....feeling extreme pain, hardly being able to walk, not being able to do much of anything and being in bed most of the time. Not much of a lifestyle to say the least...I would opt for quality of life anyday when it comes to making a decision on taking the pain medication when prescribed. I have hurt long enough and if the Humira does not work  it won't be like a (choice) for me. The way it was explained to me is: Diabetics need insulin.....people with high blood pressure need bp meds, and chronic pain patients need pain meds if other treatments do not work. Unfortunately, the people who abuse pain meds have given them a bad name for those of us who are in severe pain and legitamately need them. If my rheumatologist thinks I should be taking them too, then I know I have made the right decision. Needless suffering I can surely do without.
I don't have the usual skin problem with my PsA for some reason..(at least at this point)..I have a couple of spots on the top of my foot and thats about  it...I've been lucky in that dept...they itch like crazy tho. I didn't have these when I was diagnosed with PsA....just since last june actually. Hopefully Humira will take care of that situation too.....I am hoping it works for all of it and am keeping my fingers crossed. It would be wonderful to only just have to take humira and nothing else. Time will tell. I am not familiar with the med you mentioned but I have written it down and will ask about it at my appt.....
Thanks again for posting and for the info....we disagree somewhat on the meds options for treating  this disease, when indicated,  but  I do respect your point of view.
I hope you continue to have great results with Humira and keep on feeling better! yeah
take care.
 
wishing everyone a pain free day!
 
jonathon

PsA, AS, Trigeminal neuralgia,

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