Yikes!! That must be kind of scary seeing an actual niche in your leg!! My wasting is even and is occuring bilaterally. Like I said, it's not real bad, but I hope to get in front of whatever is going on here if it is at all possible.
Regarding teeth, I gueesing you can visually see the loss of the enamel or is it only something you can feel? I don't believe I have any issues with my teeth right now. I was at the dentist a month ago and the hygenist didn't say anything, but I didn't see the doc that day.
Indeed, let's join forces! I have id'd some metabolic possibilities like polymyositis, which is scary, but I found that as one of a few things doctors look at if a CPK blood test comes back elevated. I guess that test indicates increased muscle proteins in the blood from the breakdown, but I am not totally clear on it. I have not, though, been able to find anything on-line indicating a relationship between AS and these conditions. When I get time, I'll try to do more checking. Let me know what you find out! Also, are the docs just baffled or are any of your meds hopefully trying to help this??
Let's keep in touch on this! Thanks, Ides, and best of luck with this all. Icky!
DX W/AS 1995
Tentative DX of CD 8/2006
Taking: Pentasa (1 Gram 4 x Day)
Humira (1 Shot Every Other Week)
Ultram as needed for Pain
Advair for Asthma
Synthroid for Hypothyroidism
Metoclopramide as Needed for GP Nausea
Metamucil (4 caps daily), Multi-Vitamin, Calcium & Vit D Tabs, Milk Thistle