just started a new drug....

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seechell
Regular Member


Date Joined Sep 2006
Total Posts : 362
   Posted 11/15/2006 5:07 PM (GMT -7)   
It's called sulfasalazine. I take a 500 mg tab in the am and one 500 mg tab at night. Has anyone been on this and if so, did it work?
Take Care,
               Chelle
    "God grant me the serenity to accept the things I can not change, the courage to change the things I can and the wisdom to know the difference."
  DX: ankylosing spondylitis, periferal neuropathy, chronic migraines/headaches, depression/panic attacks, bi-polar, hypothyroidism, hypoglycemia, sleep apnea
  RX: synthroid, estradiol, cymbalta, geodon, lamictal, inderal la, klonopin, seroquel, imiprimine, aspirin, (relpax, phenergan, esgic plus PRN for migraine)
  Surgeries: hysterectomy 1997, tonsillectomy 2001, deviated septum 2005, cataracts (both eyes) 2006
 
 


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 11/15/2006 5:17 PM (GMT -7)   
I hope the sulfasalazine helps you out. Many with AS get good relief from it though I think it may take some time to "kick in." I tried sulfasalazine for 3 days. I vomited 30 minutes after every dose. Turns out that I am allergic to sulfa compounds.
CD, Ankylosing Spondylitis, peripheral neuropathy
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seechell
Regular Member


Date Joined Sep 2006
Total Posts : 362
   Posted 11/15/2006 8:29 PM (GMT -7)   
Oh, that sucks! I hope this works for me, so far, do good.

Take Care,
               Chelle
    "God grant me the serenity to accept the things I can not change, the courage to change the things I can and the wisdom to know the difference."
  DX: ankylosing spondylitis, periferal neuropathy, chronic migraines/headaches, depression/panic attacks, bi-polar, hypothyroidism, hypoglycemia, sleep apnea
  RX: synthroid, estradiol, cymbalta, geodon, lamictal, inderal la, klonopin, seroquel, imiprimine, aspirin, (relpax, phenergan, esgic plus PRN for migraine)
  Surgeries: hysterectomy 1997, tonsillectomy 2001, deviated septum 2005, cataracts (both eyes) 2006
 
 


elcamino
Veteran Member


Date Joined Sep 2005
Total Posts : 1744
   Posted 11/16/2006 11:39 AM (GMT -7)   

Hi chelle,

I've also taken sulfasalazine before; didn't take it long enough,though, to see if it helps.  It does  helps tons of other people.  I ended up taking it for about 5-6 weeks.  It did make me very nauseous, but my body adjusted to it over time.  The problem was I developed a true sulfa allergy--broke out in a rash from head to toe, in my mouth, ears, nose, etc....  It was truly horrible.  It also ended up lowering my platelets--dangerously low.  I took high dose prednisone for a week which eliminated the rash and brought my platelets back up where they should be.  I think my reactions, though, (body rash and lowered blood counts) are fairly uncommon.  If you can tolerate the nausea, chances are you won't have the problems that I had.  I believe others on this forum are on sulfasalazine, or have taken it with success in the past.

Best of luck!

Elcamino


Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Aciphex, Ultracet, Zyrtec, Allavert-D, Zantac, Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan


curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 11/16/2006 7:24 PM (GMT -7)   
I'm on Sulfazine 500mg I take two tablets by mouth three times aday and I have been on it for over two years now and it has helped and I am lucky because I have not had the side effects with this drug like alot of other people do.
Curley
.........
 


seechell
Regular Member


Date Joined Sep 2006
Total Posts : 362
   Posted 11/17/2006 6:59 AM (GMT -7)   
Thanks for the advise. I'll pray that it works for me and that it will ease this pain that I'm in all the time. My counselor is on it too and she has had awesome results. I'm going to be hopeful. Thanks all.

Take Care,
               Chelle
    "God grant me the serenity to accept the things I can not change, the courage to change the things I can and the wisdom to know the difference."
  DX: ankylosing spondylitis, periferal neuropathy, chronic migraines/headaches, depression/panic attacks, bi-polar, hypothyroidism, hypoglycemia, sleep apnea
  RX: synthroid, estradiol, cymbalta, geodon, lamictal, inderal la, klonopin, seroquel, imiprimine, aspirin, (relpax, phenergan, esgic plus PRN for migraine)
  Surgeries: hysterectomy 1997, tonsillectomy 2001, deviated septum 2005, cataracts (both eyes) 2006
 
 


Harley Diva
Regular Member


Date Joined Oct 2006
Total Posts : 160
   Posted 11/18/2006 9:11 AM (GMT -7)   
Hi there......I have been on Sulfasalazine for about 5 months. I have had a slight increase in on liver enzyme. The rumy says nothing to worry about. I have not had any real side effects. some slight nausea at first but it went away. I don't know if it is working. I am not that much better. My friend said the same thing but then when she went off it she said she got so much worse that she could see it was working. Overall I have alot less fatigue and less swelling. I think it helps in keeping the dragon at bay. I don't think you should expect much in side effects...........................hope you feel better Harley diva

RandomDave
Regular Member


Date Joined May 2006
Total Posts : 164
   Posted 11/18/2006 10:43 PM (GMT -7)   
I take it and love it. In all honesty, since I've been on it I've had tons o' days with absolutely zero joint pain. My bloodwork is always fine, though i'm worried I may be becoming allergic to it as my neck and chest have been going numb a lot lately, and I can't think of any other reason why that should be.

Whenever I tell me rheumy that I don't know if something is working or not (which has been an awful lot of times in the past) she always says "If you don't know then it isn't" and ups the dose or changes the med. I really had no idea what she was talking about until she put me on something that does work. When it starts working, you will TOTALLY know, it's almost like being human again!!

Anywho, stick with it H.D., took about 7 months for it to kick in for me, so you're almost there! I was on five pills a day, but I'm down to three technically. In reality I can get by on one or two a day and even skip days now and then.
-SLE, RA & PA....it's all about the acronyms!

-Current meds: Plaquenil, Sulfasalazine, and a little NSAID du jour for flavouring. Mmmmm NSAIDs.

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