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leeloo67
Regular Member


Date Joined Aug 2006
Total Posts : 81
   Posted 11/19/2006 9:04 PM (GMT -7)   
Anyone else have issues with this? For the most part I'm just happy I can sleep now (before treatment my arthrits kept me from sleeping, while irony was at play in that the arthritis kept me from getting out of bed some days...), but it seems that no matter how much sleep or how much coffee I drink I always feel like it is the end of the day no matter what time it is. It is so bad that recently that if I happen to not get enough sleep I get up anyway when I awaken - I know that even if I go back to sleep (I'm speaking of weekend days here) I will STILL feel just as tired and going back to sleep would only add wasted time to the accomplishments of the day.
 


CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 11/19/2006 9:52 PM (GMT -7)   

Yes, I've been there way too often. What meds are you on? Do you get routine blood checks? Has your liver been checked recently? When my liver acts up (sometimes from meds), my fatigue is 10-fold. I feel like I have narcolepsy (sorry if I chopped that word up!)

However, fatigue from RA can't be scoffed at - it can be pretty debilitating.

Do you take folic acid and b complex supplements? The can help sometimes, especially since some RA meds deplete the folic acid in your body.

***


 


leeloo67
Regular Member


Date Joined Aug 2006
Total Posts : 81
   Posted 11/20/2006 5:43 PM (GMT -7)   
Yes! Sometimes I feel narcoleptic, as if I could fall asleep at any point! Although I am very very thankful to even be able to sleep these days, being so tired is getting old. I came of Prednisone a few months ago, and have been on methotrexate for 13 months. I always forget to take the folic acid. I do get regular blood draws, and the liver function is just fine according to my doctor. I just got the folic acid out and will keep it with me and take it every day.
 


yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 11/21/2006 7:09 AM (GMT -7)   
lets see i went to sleep sunday at 3 in the afternoon and woke up monday morning for work! of course i did 4 loads of laundry before church and woke up a couple of times on sunday but was sooooooooo tired i couldnt be up if i wanted to! hope my liver is ok? and urs too! i forget that dang folic acid too! gotta go take some now while i think of it!!!!
yalinda - sleep is my middle name- so my mom tells me.

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 11/21/2006 11:04 AM (GMT -7)   

hey there,

my empathy to you!  RA fatigue is a very different and not like any other sort of fatigue.  despite the number of hours or quality of sleep...sleeping is not the issue.  i mean, sleep is great sure....but ya know what i mean.  RA fatigue is relentless.  it's an exhaustion of the body.

personally, some days i'll get so fatigued thatif i don't sit down or lay down JUST THEN! i'll fall down!

i know what your sayin' my friend. hang in there.

 


Active Severe Rheumatory Arthritis. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures. MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Previous Lymes Disease for 10 years.
Meds: Remicade infusions; Intra-articular knee injections; Imuran; Mesalamine; Prednisone; Meclizine; Reglan; LidoDerm; Diazepam; Restaril; Dilaudid; Avinza and too many others. 


CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 11/27/2006 10:02 PM (GMT -7)   

I tell people, "i was born tired!"

I would suggest adding a B complex vitamin to your supplements as well. Take it in the morning and take the folic acid at night, or vice versa.

I crashed for most of Sunday as well.

***


 


Marius123
Regular Member


Date Joined Aug 2006
Total Posts : 142
   Posted 11/28/2006 8:57 AM (GMT -7)   
I have fatigue when I run fever.
have you measured it durring the day when you feel fatigued?
Fatigue is abs logically explained when you run low-grade fever constantly .


Official dx, but I have doubts: chronic reiter's syndrome (1yr and 6 mnths).
suffer form chronic uveitis, conjuctivitis, mild arthritis, subfebrile fever and fatigue, also showing some strange kidney pain

Post Edited (Marius123) : 11/28/2006 11:44:51 AM (GMT-7)


Harley Diva
Regular Member


Date Joined Oct 2006
Total Posts : 160
   Posted Yesterday 2:13 AM (GMT -7)   
I feel for you. I also have fatigue most of the time. I have sat down on my luch break and fallen asleep. I have been late back to work due to sleeping at lunch. I always feel my good days are the ones when I am not exhausted, not the ones when I have less pain. I can deal with the pain. The exhaustion makes me feel old..................
Harley Diva
 
....RA, HPT,  drugs: Sulfasalazine, MTX, prednisone, bp meds


BabZ
Regular Member


Date Joined Dec 2006
Total Posts : 74
   Posted Today 8:29 AM (GMT -7)   
Having RA & Fatigue goes hand in Hand, and most people dont understand how exhausted we can feel, for me I notice that I get the most Fatigue when a major flare is about to hit, or sometimes Im going thru a major flare up, and the RA Flare is most painful and then the exhuastion is soo bad i feel as though i cant even function, what ive learned is when im that tired, i try to listen to my body, and just rest, when I do that, my flare ups are not as bad....but I know if i dont rest, then my flare ups are out fo control...

I've been DX w/Ra for about 2 1/2 years going 3 yrs, but according to my Rhuemy ive had it for alot longer.....

Medications I take are, Enbrel, Plaquenil, Sulfasalizine, Diflinsal, Colchincines, and Vicondins...(sometimes when im too swollen I will take a Celebrex...)

im also supposed to take Folic acid, Vitamins b complex and Childrens Tylenol...and a Daily asprin....but i cant possible swallow all those pills, soo i guess im my own worst enemy but honesty it gets hard to swallow all those pills... so i have to pretend its candy....I know its stupid, but its the only way i will take all those dammm meds....

just listen to your body, and try to keep active on your good days....

ttyl
babz

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 12/11/2006 2:44 PM (GMT -7)   
Hey Babz & welcome to HealingWell!
I hear you about the meds...my count is 33 pills a day; yuck. It really is hard to keep up with & is like a full tme job.
Thanks for sharing with us.
How long have you been on Enbrel? Make any improvements on it?
Take care,
erin
Active Severe Rheumatory Arthritis. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures. MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Previous Lymes Disease for 10 years.
Meds: Remicade infusions Q3 weeks; Intra-articular knee injections; Imuran; Mesalamine; Prednisone tapering from 120mg; Meclizine; Reglan; LidoDerm; Diazepam; Restaril; Dilaudid; Avinza and too many others. 


Harley Diva
Regular Member


Date Joined Oct 2006
Total Posts : 160
   Posted 12/11/2006 9:28 PM (GMT -7)   
Ha Ha I thought I was the only one pretending the pills are candy! I got the evil eye from my rumy when I said I only take calcium once and a while because I just feel like I can't swallow any more pills. I know fish oil and calcium are good for me but enough is enough. I hope to get off the sulfasalazine in the future. Maybe then I can make room for the vitamins. I am grateful there are meds to help. Babz welcome and your not alone
Harley Diva
 
....RA, HPT,  drugs: Sulfasalazine, MTX, prednisone, bp meds


curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 12/18/2006 7:53 PM (GMT -7)   
I'm tired all the time some times the fatigue.Most day's I have to have a nape or else I would not be able to make through the rest of the day.I hate it I can tell you that.I do take a muliti viteamen and I take B-12 shots.
Curley
.........
 


BabZ
Regular Member


Date Joined Dec 2006
Total Posts : 74
   Posted 1/6/2007 6:14 PM (GMT -7)   
I've been taking Enbrel For about a year & half...on and off....sometimes when I get a Back cold or an infection, Or a Fever, I have to stop taking the Enbrel until my immune system gets stronger...Its always an eternal struggle, I just wish those dam pills that we have to take were smaller, then maybe it wouldnt be so bad taking them on a daily basis....I hope everyone on this Forum is having a healthy holiday...

Baybreeze
Regular Member


Date Joined Oct 2005
Total Posts : 315
   Posted 1/7/2007 7:36 AM (GMT -7)   
Hi,
 
Yes, I've gone through many bouts of unrelenting fatigue. Same thing, I felt like I could sleep forever no matter how much sleep I actually got. And I would also have extreme body fatigue (it felt like every mucsle in my body) and felt like I had massive lactic acid build up or something. Like I just ran a marathon without ever training for it. Just to go up one step was a big project.
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