Anyone get sores in the nose?

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Swanfleweast
Regular Member


Date Joined Nov 2006
Total Posts : 146
   Posted 11/20/2006 10:36 AM (GMT -6)   
Hello,
I was just wondering if anyone gets sores in their nose? I've been getting them since august 06. I've had them now probably 20 times. Sometimes they don't hurt but when they get infected the pain is intense. But only Four times I had to be put on antibiotics for bacterial infection. And my doc. still can't answer me to what they are. But the thing is I don't get fevers with them. Any input would be much appreciated. I haven't seen this in here yet. It's not a sinus infection. It is actually in the nostril and it does switch sides. The longest time in between them was nine days. Other than that two or three days go by and it's back. Right now I'm on Septra for it. I'm just wondering is this part of the disease or will it eventually go away.
Thank you for listening.
Lori
Fibro, RA, IBS, Anxiety, insomnia
 
Meds:Serax 10mg, Mobic 15mg, Prednisone 15mg, Prilosec 20mg, Vicodin 5/500, Flonase, Calcium and magnesium
 
Currently-Septra, Mupirocin 2% for the nose
 

Post Edited (Loea09) : 11/20/2006 8:47:31 AM (GMT-7)


PiaSava
Regular Member


Date Joined Sep 2006
Total Posts : 265
   Posted 11/21/2006 1:43 AM (GMT -6)   
Do you have any other problems Loea? I know sores in the nose are part of other diseases like IBD, lupus and other autoimmune diseases.
Hospitalized with Infectious Colitis.
Colonscopy showed ulcers.Diagnose changed to either UC or Crohn's
Whatever it is, I was told its mild...
Medication Asacol 1x3 
Never had a good follow up - no small bowel test at all.
Gastroscopy was normal, but Still have a burning feeling in my stomach.
Looking for a doctor in Oslo who knows what he's doing atm.
 


Swanfleweast
Regular Member


Date Joined Nov 2006
Total Posts : 146
   Posted 11/21/2006 1:51 AM (GMT -6)   
Hi PiaSava,
No, that's it for now, but i am going to have my Rheumy test me for lupus...but it is very frustrating. I hide at home because it even gets red on the outside of my nose. And my nose gets lop sided...well thank you. I will further investigate.
Lori
Fibro, RA, IBS, Anxiety, insomnia
 
Meds:Serax 10mg, Mobic 15mg, Prednisone 15mg, Prilosec 20mg, Vicodin 5/500, Flonase, Calcium and magnesium
 
Currently-Septra, Mupirocin 2% for the nose
 


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 11/21/2006 1:10 PM (GMT -6)   

eeek, me too! ewwwwwwww, i hate em'.  i get them on the inner, lateral sides of the nostril (inside the nose) and they THROB! can't blow my nose because it's so sore.  and it's like a big hard lump.  about maybe pea size or smaller, and to look in a mirror in there...you can see that the nasal passage is blocked from the swelling of this sucker!  and yeah, it makes the outside look swollen too, like a punch in the schnoz'.  mine subside over a course of 5 days. i never took anything for them, but it seems like when i go on pred they go away (or dwindle).  i also get simialr things all over my hairline & on my scalp too.

i feel for ya!


Swanfleweast
Regular Member


Date Joined Nov 2006
Total Posts : 146
   Posted 11/21/2006 3:03 PM (GMT -6)   
Erin , Thank you..
Same exact thing with me, to the T......
These things are driving me nuts. How long have you had them? Does yours ever get infected? I ask my Doc. what they are and he doesn't answer me. Or he'll say just a little skin infection. Did you get an answer from your doc. of what they are? I'm always on the pred and they don't go away. When they start to get pink, hot and swollen and seen from the outside I go to the doc. but I never get a fever with them. What I would like to know is what causes them....
Thanks so much..I'M NOT ALONE....sorry, just gives me a little relief that I'm not the only one.
Lori
Fibro, RA, IBS, Anxiety, insomnia
 
Meds:Serax 10mg, Mobic 15mg, Prednisone 15mg, Prilosec 20mg, Vicodin 5/500, Flonase, Calcium and magnesium
 
Currently-Septra, Mupirocin 2% for the nose
 


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 11/21/2006 3:52 PM (GMT -6)   
i really never, come to think of it...have ever pointed them out to any of my docs! however, this week my PCP noticed them. he attributed them to the steroids. now, yesterday i showed the nurses at the chemotherapy center and she thinks it's the immunosuppressants.
in my opinion i think they're from the immunosupressant meds, and pred is one of them as well.
i just think when we go on immune-modulators...the skin is prone to pustules, eczema, and abruptions. and don't forget that acne CAN get infected too!
one little sucker on the side of my head, my hairline near my eye...it's so gross now, green & white...yuck, and i'm puttin' all this goop on it to keep it from dryng out & scabbing...and NOTHING is making it go away! aaargh. peroxide, alcohol, ????? what else, OXY stuff, umh....oh, CHOLESTEROL! hah, yeah they sell hair cholesterol. looks like CRISCO.
umh...hemorrhoid cream, A&D ointment, Bacitracin????????
what else? if ya have any i missed, let me know. do antibiotics really clear it up?
i can't say whether or not mine come with fever because i run fevers quite often...so i'm unreliable in that area.
they are awful aren't they? they don't make you feel very attractive neither.
pooh!
;)
Active Severe Rheumatory Arthritis. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures. MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Previous Lymes Disease for 10 years.
Meds: Remicade infusions; Intra-articular knee injections; Imuran; Mesalamine; Prednisone; Meclizine; Reglan; LidoDerm; Diazepam; Restaril; Dilaudid; Avinza and too many others. 


Swanfleweast
Regular Member


Date Joined Nov 2006
Total Posts : 146
   Posted 11/21/2006 5:44 PM (GMT -6)   
Yes, the antibiotics do clear it up when it's infected. But they just come right back. But they don't always get infected. And yes they are very embarassing. The doc. gave me this ointment called Mupirocin 2% , but I was only to use it for five days. So I'll have to call him to see if I can use it for the nexr one. I guess the trick is to keep them moist. When they scab is when they hurt. I aske my Reumy if he thought they were from the steroids, and he said no...go figure hunh? Well I'm going to get to the bottom of this so if I learn anything new I will definitely let you know. And thank you so much for responding to me...
Lori
Fibro, RA, IBS, Anxiety, insomnia
 
Meds:Serax 10mg, Mobic 15mg, Prednisone 15mg, Prilosec 20mg, Vicodin 5/500, Flonase, Calcium and magnesium
 
Currently-Septra, Mupirocin 2% for the nose
 


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 11/22/2006 2:05 PM (GMT -6)   
hey Lori,
so i went to my pharmy today to pick up my meds...and the pharmy is actually a Doctor back in his country (Egypt), and he's one smart cookie:-) i showed him the lesions on my face, hairline & neck, mouth and nose.  he completely understood & ACTUALLY is quite familiar with this happening to people with AI diseases.
he said, it's absolutely a systemic reaction from all of the medications we take for AI conditions and it just manifests in the skin as a side effect.  it's a bizarro thing that JUST HAPPENS.  he said in his opinion, the best thing that works is a topical hydrocortizone cream by RX.  he said the stuff you can buy OTC doesn't really work as well as a RX one will.
geesh, ya know...don't you just hate it when highschool follows you around? tongue and we thought we had left BAD SKIN behind. eyes oy!
is the stuff you have from your doc hydrocortizone?
take care.
Active Severe Rheumatory Arthritis. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures. MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Previous Lymes Disease for 10 years.
Meds: Remicade infusions Q3 weeks; Intra-articular knee injections; Imuran; Mesalamine; Prednisone tapering from 120mg; Meclizine; Reglan; LidoDerm; Diazepam; Restaril; Dilaudid; Avinza and too many others. 


Savvy63
Regular Member


Date Joined Nov 2006
Total Posts : 450
   Posted 11/22/2006 9:25 PM (GMT -6)   
Well, I have had the same nose sores as you guys, but I had them long before I had the cortisone shot...hmmm. Do you ever get a super tiny white bump that hurts like the dickens on the edge of your tongue? I get those and they hurt so dang bad! It's like a single taste bud gets super inflamed or something. :(
I am listing symptoms/test results cuz my Dr is still trying to figure out exactly what's going on with me. If any of this rings a bell with you, email me at daisyhen at msn dot com.
 
DDD- MRI confirmed
Arthritis-xray confirmed
disc slippage in neck-MRI confirmed
Fibro
IBS-D
Ulcers-endoscopic confirm
dishydrotic eczema
Costochondritis
Had both knees scoped in '93' (awesome improvement)
Are we having fun yet?


Swanfleweast
Regular Member


Date Joined Nov 2006
Total Posts : 146
   Posted 11/22/2006 9:36 PM (GMT -6)   
Wow,
Interesting, I did ask my Rheumy about the steroids causing that because that's all I have really been on until recently, but he said no.....but maybe he just doesn't know....thanks for sharing..I'm not going to be too concerned about them then...unless they continue to get infected....It really sucks being so messed up with all this stuff...I have so many things going on at the same time it's hard to place what is what. and what's causing what.....I guess time will tell...I must and will be patient.
Thanks Erin, Hope you have a wonderful Holiday...
Lori
Fibro, RA, IBS, Anxiety, insomnia
 
Meds:Serax 10mg, Mobic 15mg, Prednisone 15mg, Prilosec 20mg, Vicodin 5/500, Flonase, Calcium and magnesium
 
Currently-Septra, Mupirocin 2% for the nose
 


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 11/22/2006 10:43 PM (GMT -6)   
have a great holiday as well.
take care.
:)
Active Severe Rheumatory Arthritis. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures. MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Previous Lymes Disease for 10 years.
Meds: Remicade infusions Q3 weeks; Intra-articular knee injections; Imuran; Mesalamine; Prednisone tapering from 120mg; Meclizine; Reglan; LidoDerm; Diazepam; Restaril; Dilaudid; Avinza and too many others. 


curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 11/23/2006 10:47 PM (GMT -6)   
Hi,I get them every one in awhile and I do agree they are painfull that's for sure.My GI told me that it was just a side effect of crohns and he gave a script for nasel spray that numbs them,it does help quiet a bite.
Curley
.........
 


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 11/24/2006 10:19 AM (GMT -6)   
now my question is: are these growths specific to Crohns? i know for example like skin tags are a skin manifestation specific to CD...but these bump/pustule thangs???????? so a side effect of the disease? or side effect of the meds FOR the disease????? "I be stumped" lol.
open for opinion!
Active Severe Rheumatory Arthritis. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures. MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Previous Lymes Disease for 10 years.
Meds: Remicade infusions Q3 weeks; Intra-articular knee injections; Imuran; Mesalamine; Prednisone tapering from 120mg; Meclizine; Reglan; LidoDerm; Diazepam; Restaril; Dilaudid; Avinza and too many others. 


Swanfleweast
Regular Member


Date Joined Nov 2006
Total Posts : 146
   Posted 11/24/2006 7:36 PM (GMT -6)   
Hmmmn,
I was never diagnosed with crohns but do have very irritable bowels..
vey interesting I'll be bringing that up in my next appointment to my Rhuemy. But then again they keep passing me back and forth.
Thanks,
Lori
Fibro, RA, IBS, Anxiety, insomnia
 
Meds:Serax 10mg, Mobic 15mg, Prednisone 15mg, Prilosec 20mg, Vicodin 5/500, Flonase, Calcium and magnesium
 
Currently-Septra, Mupirocin 2% for the nose
 


sorenoselady
New Member


Date Joined Nov 2006
Total Posts : 1
   Posted 11/26/2006 7:32 AM (GMT -6)   
Hi, I am new to this forum and website, I found it because I was searching for info on nose sores. I am relieved to know I am not alone. I thought I was the only one dealing with this kind of thing. I feel like a freak!! I always get itching really bad in the spot and then a few hours later I notice these little blister type things, then it hurts really bad. My nose gets all red and one side of my nose looks a lot bigger than the other side. I look like a freak, I dont even like going in public with these stupid things in my nose, I feel like everyone is looking at me like Im some kind of monster. I think there may be a link to lupus with all of this, 2 years ago  I had a postive ANA test done, along with extreme fatigue and muscle and joint soreness, I also get a skin rash if I am in the sun too long, I have to wear sunscreen. I have a cousin with full blown Lupus and she is taking medication for her symptoms because they are more complex than mine. I do not have health insurance so I havent been to a Rheumatologist as my doctor referred me too.  Another thing does anyone's lymph nodes get swollen and very tender under their neck? Mine always does and sometimes my face on the same side as the sores gets tingly and swollen also. I went t the doctor about my sores in the nose several times and they said it is a form of Herpes, Like a cold sore. They put me on Valtrex for 7 days, but that stuff only works if you take it when the tingling starts, before the actual sore is there , so it didnt really help. Im sorry to go on and on , I just needed to let you guys and gals know what I experienced with these nasty sores. I get them like 4-5 times year, I also get cold sores on my lips and outer edges of my lips several times a year. So I thought maybe the sores in my nose were also cold sores, but in your nose? If anyone has any info or related experiences please share them it would help me a lot, as I have not been able to find out much info about these stupid sores. Thanks alot!! eyes   

downupside
Regular Member


Date Joined Dec 2006
Total Posts : 20
   Posted 12/26/2006 9:17 AM (GMT -6)   

Lori, do you get canker sores as well?  I've suffered with canker sores my whole life.  Sometimes so bad, I can't eat for days.  Last week, for the first time, I got one in my nose.  It was so painful.  I also had a chronic runny nose , dry cough and digestive problems.  Once I was put on prednisone, it all cleared up. 


Baybreeze
Regular Member


Date Joined Oct 2005
Total Posts : 315
   Posted 12/26/2006 9:58 AM (GMT -6)   
I've also had sores in my nose but back when I was given prednisone and plaquenil, the sores slowly went away....and i've been on plaquenil at least 2 yrs now and still have had no more nose sores.

Flaminguts
Veteran Member


Date Joined Dec 2004
Total Posts : 962
   Posted 12/27/2006 5:04 AM (GMT -6)   
I have Crohns and Inflammatory Arthritis and I also get these sores in my nose- it is some kind of autoimmune related problem... these things are like mini boils in the nose and my doctor gave me a cream to apply to them. They do get really really sore when they are infected... most of mine get infected.

Hope you get help soon!
Diagnosed Jan 25th 2004, Resection Jan 25th 2005, trying to keep this disease at bay, taking Imuran, Prozac, Methadone, Phenergan, Lots of vitamins. If you want to know more about me go to my MySpace page http://www.myspace.com/131555682
"History does not long entrust the care of freedom to the weak or the timid"
 Gen. Eisenhower


elcamino
Veteran Member


Date Joined Sep 2005
Total Posts : 1740
   Posted 12/27/2006 7:07 AM (GMT -6)   

I believe nose sores are related to SLE, IBD, and other autoimmune problems.  I get them too, but only on mtx--I think it's a side effect of mtx.  Are you currently taking mtx?  They sound extremely painful, and I know the few that I have had are real pains.

El


Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Aciphex, Ultracet, Zyrtec, Allavert-D, Zantac, Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan


Swanfleweast
Regular Member


Date Joined Nov 2006
Total Posts : 146
   Posted 12/27/2006 6:15 PM (GMT -6)   
I haven't had them since I took Bactrim.11/18/06..the last of the four antibiotics I have taken for them, and yes they hurt so bad. They would get so big they would actually block the passages. I thought it was a reaction to the enbrel, but then I stopped the enbrel, but kept getting them. I was diagnosed with vasculitis so I'm headed in that direction with them. And also could be from the steroids. I have been on them for a year. I'll I know is that I have enjoyed the past month and a half or so with out them and I hope I don't get them back...


Lori
Fibro, RA, IBS, Anxiety, insomnia,(Pluersy, Pericarditis, and now Vasculitis) in the last three months
 
Meds: Serax 10mg, Mobic 15mg, Prednisone 15mg, Prilosec 20mg, Vicodin 5/500, Flonase, Calcium and magnesium, Robaxin 500mg, Nortriptyline 50mg, Baby aspirin 81 mg, zocor 20 mg
 
 
 


depotrl
New Member


Date Joined Jan 2009
Total Posts : 1
   Posted 1/15/2009 7:05 AM (GMT -6)   
I was getting these and the idiot ENT guy's answer was "stop picking your nose," which of course I wasn't (they were painful enough without touching them....)

I tried putting antibacterial ointment on them and it eased the discomfort but didn't get rid of them, so they are probably not bacterial in most cases. Also a later doctor told me the ENT guy should at the very least have tested me for herpes (a virus, so again, antibiotics won't work). It turned out I didn't have it, which I already knew, but maybe you do.

Anyway, by accident I discovered that when I started taking mineral supplements the nose sores went away. A lot of people are magnesium deficient, and it can contribute to many problems, including hypertension, anxiety, and insomnia. Alcohol and sugar intake can further deplete magnesium. I had a lot of other symptoms along with the sores, and it turned out I was hypothyroid and also had low adrenal function; that's all better now thanks to raw thyroid supplement, but I still get the sores occasionally if I eat too much sugar or drink too much for a prolonged period (like, two months over the holidays, for example). The equivalent of just one drink a day is enough for me to get them back.

When I got them the first time, and when I get them now, I take higher than usual doses of cal/mag -- up to 1500 mg of magnesium. Potassium is also important and the supplement I take has that too, 300 mg ratio to mag's 1500. When I get the nose sores I also get insomnia, slight depression or low energy, and general muscle tension, so magnesium might help you with those too, and is way better than taking medication if it works. Good luck.

JeanMichel
New Member


Date Joined Dec 2009
Total Posts : 1
   Posted 12/8/2009 1:54 AM (GMT -6)   
Hi I have gotten these buggers in my nose a few times now and they are maddening. They swell up, I drain them with pressure and a kleenex and tears in my eyes. They hurt!
Sometimes they go away, sometimes my nose turns red and swells up and gets very painful. Many times it gets flaky after deflating.

I use a triple-antibiotic cream "with pain relief" to treat them but sometimes they seem intent on not healing.

I had one looked at last year and declined to go on antibiotics as I'm on so much stuff already and it was on its way out. A swab tested positive for staph, however.
I did take the 'scrip for Altabax - $70 for a tube 1.5 inches long!

I am experiencing one now - my purpose for Goolging around, and am relieved to know I'm not alone, and intrigued that it's not just HIV - the common thread here seems
to be immunodeficiency in general.

I also get bumpy pustules on the back of my head that flare up - twice following haircuts so I blamed folliculitis and changed to a better barber (!).

And (Savvy 63) I did get those tiny, white, intensely painful things on my tongue 6 years ago before I was diagnosed HIV positive - right before I developed hairy leukoplakia (sp?),
which is what led me to get tested.
HIV+, healthy otherwise (!)

Meds: Truvada, Norvir, Lexiva

Supplements: Vitamin D3, Added Protection Multivitamin, Methyl B12,
ThiolNAC Ultra Antioxidant (Alpha-lipoic Acid / N-Acetyl-Cysteine combo), Acetyl-L-carnitine


vitaka
Veteran Member


Date Joined Jun 2006
Total Posts : 747
   Posted 12/10/2009 10:27 PM (GMT -6)   
Wow, what an old post!

I get these sores as well. They started around the time I was first diagnosed with Crohn's. I get them primarily when there is active inflammation, and they can last anywhere from a week or two to two months. They can be extremely painful and cause me daily bloody noses. Very annoying. Since they're usually right inside my nostril, I find that a little neosporin goes a long way in speeding up the healing process.
29f, PhD student, originally diagnosed with Crohn's in 2/06
10/09: Prometheus test shows results consistent with UC
10/12/09: beginning treatment for inflammatory arthritis
Currently taking: 7.5mg methotrexate weekly (pills), 2g Pentasa, tapering from 20mg prednisone, 150mg Trazadone, multivitamin, vitamin D, magnesium, probiotics, folic acid


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 12/12/2009 6:08 PM (GMT -6)   
I have lupus and celiac disease as well as RA....sores in the nose and mouth are common with lupus, and sores in the mouth and on the tongue occur frequently in celiac disease.

Have any of you with RA been diagnosed with lupus too? If so, were you told that you have "rhupus" = lupus + RA? That's what my rheumy said I have.
Autoimmune hepatitis, Hashimoto's thyroiditis, lupus, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD.

Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Darvon, Levothyroxine, Atenolol, Cozaar, Mirapex, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP


autoimmunediseasesgfliving.blogspot.com


Bleeding_Rose310
New Member


Date Joined Feb 2010
Total Posts : 1
   Posted 2/5/2010 2:57 PM (GMT -6)   
I have had a sore in my nose for about a week and a half now but it's much better now and I think it's almost gone. I have been cleaning my nostril out with a q-tip and cleaning it with a little peroxide on a q-tip and it has made it feel much better everytime I clean it. It tingles from the peroxide cleaning it but afterwards it feels so much better. I was searching the internet for solutions and came across putting an antibotic on it as well. i'm going to try that to see if it heals any better. I hope you all can get some relief. I know how painful it is. I get sinus infections all the time so I think that's what caused this for me. Good luck to everyone.
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