hi bloo, sry no one has responded to you yet. i know i am also not doing well these days and in the middle of a flare- because i dont take the prednisone anymore. so in answer to your question yes 20 mg of ped verses 15 can make a world of difference- verses 0 mg. i am sry you had a severe flare the past month coming down from the prednisone. it seems when our bodied come down from the pred the pain is almost amplified. i know i had a hard time reducing my pred but i wanted to get off thestuff- my personal thing. i regret it as i am in soo much pain but i see my fhuemmy i 1 week and i am hopeing to go on a biologic, so i dont want to go on and then off again so i am suffering without. i can hardly walk today and am 10% dependent on my cane.
anyhow i think that is what you were asking? keep on the 20 mg if you feel better on it and next time you see your rhuemmy talk to him about your conerns and alternates to pred? elcamino has supported biologics openly to me and i hope tht will be an option that relieves the pain cuz it is all about the pain bloo! ugh oh and talk about fatigue!
well bloo i hope i understand correct you are better now and maybe biologics are they way to go with mtx? i go the 11 th you the 13th i'll wish you luck and i am certain u will wish me the same heheheheheh ((((((((((hugs )))))))))))) to u bloo sry no one responded sooner but we care some of us who post more frequently must not be on.... oh i lost my power sue to 68 mph winds 2 times in the last 24 hours! so that also has put me off line
keep in touch yalinda
wow, well i'm not familiar personally with MTX...so i would hate to put any info in on that one.
the pred? oy! i hear you. i want OFF OFF OFF! but it does work & it does help. it's hard because it seems when we try to come off of it...FLARE!!!!!!!!! or if a little decrease? FLARE!!!!!!!!!!! it sorta feels like it makes ya come dependent on the thang.
for me prednisone is the only thing that helps sorta control the RA joint pain...but i get rebound bone & ligament pain from the pred...plus badchest pain & a rapid heart beat that is wicked. can't stand it.
and yeah sure...once a person has a little relief from pain? your mind will be clear. and functioning better is a goal & desired effect of the steroid as is the same for nsaids & bios and tnf meds. they are all meant to improve RA and autoimmune disease processes & symptoms & pain.
i'm up for 4 nite sin a row from prednisone insomnia...lol...so i can't say i get a clear mind from pred. but i am so happy that someone does!!!
i hope some folks get back to you about the MTX...i'm sure they will.
takegood care. erin
you really struck a chord with me. you are so NOT ALONE in this. it's the same for many many people; the way you are feeling.
that is really somethin' & i really admire you for being a good, concerned parent & single mom...it surely doesn't make things easier i can imagine that.
i feel for ya about the whole "day" thing. it is sad much of the times & it's very difficult to NOT get down about it. i'm still waiting to shower! many times that's the only "activity" i can complete in one given day. if you feel that you are not able to work...then perhaps it is a good idea to start looking into SSDI or temporary dis. i have been in the process of it all for almost 5 years now; that's not a pleasant or easy thing either. i'm in an appeal state right now. but...i have to cover my butt as you know yourself.
we're here to listen, so anytime! there are so many great & understanding/caring people here. sometimes it's the only thing that gets ya by...just hearing someone else that is so similar to yourself & learning how each person goes through things.
one day at a time.