thank u so much u answered me .
so to have RA should have swollen joints and positive blood test.
It is so very frustrating trying to get a dx, isn't it? For me, the RA dx came after I had my twin daughters. I suffered horrible joint pain during my pregnancy; ob just chalked it up to being pregnant, even though my feet were so bad I could hardly walk. Six months after my girls were born, the joint pains continued. Because my mom had MCTD and my dad has RA and IBD, I went to the doctor; was referred to a rheumy because I do have a positive RA, although it is only mildly positive. Rheumy told me I had RA. My sx disappeared for a while, and then about 1.5 years ago, my joints through my hips, shoulders, and neck went wild. I limped horribly; I couldn't raise my arms above my head. I felt horrible. That's when I found out how truly wonderful my rheumy is because he acted immediately. I do not have RA (joint pains are not in the typical RA pattern--hands, feet, and wrists), but it is not yet clear what I do have. All I know is that I respond to the same drugs that most AI patients respond to (e.g., prednisone, enbrel, mtx, etc...).
I should also tell you that I do not have the horrible joint swelling that goes along with RA. It is possible, though, to have RA without swelling. It is also possible to have seronegative RA. It is also possible to have inflammatory arthritis which is implicated in lots of different diseases, not just RA. Get yourself to a rheumy and get checked out. If you must insist on it with your primary, then do so. Any rheumy worth his/her weight will give you a thorough examination and will not be so quick to dismiss you based on lab values alone. They can tell if your joints are inflamed even if there is no obvious redness or swelling.
Post Edited (Marius123) : 12/12/2006 5:33:59 PM (GMT-7)
This is so very true. Marius you bring up a very good & important point. There are just as many if not more narrow minded (we like to use the term midget minded!) physicians here in the states just as there are world wide. But there is a difference between physicians who just "don't care" and don't take the time & physicians who in all honesty "don't really know how to deal with certain cases". Doctors are people too and what they don't know?...is a lot sometimes; that's why it's called "practicing medicine".
Rheumatic and arthritic diseases are particularly difficult of a field...it is more like an art than a science because there are so many unclear answers, no answers, no reasons or explanations and really is as frustrating to physicians as it is to patients.
True, the condition I have manifested for over 10 years. No one caught it or diagnosed it. I was even told to ignore it! So 10 years is a sevrely long time to wait & be in pain & look where I am now? Not doing too well. It is not fair to me nor anyone who has to go through this...but it is a part of life for some reason.
I hate to say it...but it seems when a person starts developing joint pain and what looks like an autoimmune disease...it is almost a given that there is a few years of waiting and watching that goes between it.
What would I do???? I would call your provinces local hospital & ask for the equivalent of say personnal or a patient representantive or referel center. I would ask for every single name & address of or a list of clinics, doctors and specialists that deal with autoimmuntiy, rheumatics, and arthritis. Sort of like a list of referels. There has to be more than just these few places...even if it means having to travel it would be worth the while.
When I was being treated for Lymes, I spoke to a person who travels to Massechusetts from New Jersey once a month to take his daughter to a physcian up there....and that's almost a 10 hour commute!
It's easy to get upset & angry & mad at everything...but where does this get us? Not far & may only hurt. Adjusting to this isn't easy either, but it does come with time.
Table 2 List of the "classical" and "new" arthritogenic agents implicated in reactive arthritis
• Chlamydia trachomatis
• Chlamydia pneumoniae
• Ureaplasma urealyticum
• Mycoplasma hominis and fermentans
• Yersinia enterocolitica and pseudotuberculosis
• Neisseria gonorrhoeae
• Shigella flexneri and sonnei
• Borrelia burgdorferi
• Salmonella typhimurium, enteritidis and others
• Clostridium difficile
• ß-Haemolytic streptococci
• Campylobacter jejuni
• Propionibacterium acnes
• Escherichia coli
• Helicobacter pylori
• Brucella abortus
• Calmette – Guerin Bacillus
• Trophyrema whippelii
• Gardnerella vaginalis
• Giardia lamblia