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kronstoolong
Regular Member


Date Joined Mar 2006
Total Posts : 366
   Posted 1/14/2007 3:09 PM (GMT -7)   

HI!  I haven't posted on this forum.  i do post on the Crohn's Disease Forum.  I have had Crohn's Disease for at least 15 years.  I just saw a Rheumatologist for severe Joint Pain.  She and my G.I Doctor are corresponding about my condition and they decided to put me on Humira.  Does anyone know what I should expect?  I took Remicade for years, but developed side effects so badly that I had to quit taking it.  Any info. or comments are greatly appreciated!  Thank you.  Hope you are all feeling as well as possible today scool


Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 1/14/2007 3:25 PM (GMT -7)   
Hi kronstoolong... welcome to the Arthritis side of the house.. sorry you had to quit taking Remicade... But Humira may do you a world of good for RA as well as your Crohns.. When are you starting it? I personally am not on Humira, but I am on Enbrel... there are a bunch here that are on or have been on Humira, I'm sure they will be along shortly to chime in.. :)
Moderator of Arthritis/Epilepsy Forums
Temp Moderator of Bi-Polar Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea
 


kathy_in_wlsv
New Member


Date Joined Jan 2007
Total Posts : 4
   Posted 1/14/2007 3:54 PM (GMT -7)   
Hi. I was on Humira after Enbrel quit working. I found Humira worked quickly for me, but sadly, like the Enbrel, petered out after about 4 months.

It started working for me after the 2nd shot, but I felt that I didn't get the relief from fatigue with Humira that I got from Enbrel.

The big difference between getting Remicade and getting Humira is that you will need to self inject the Humira. Believe me its a cinch..just make sure the Humira is warmed to BODY temperature not just room temp before you inject and make surre you ice the injection site first.

Good luck with it.
Life is GOOD!
 
I have moderate/severe Rheumatoid arthritis,  and  Cardiomyopathy.
 
We are raising our grandkids girl age 4 1/2 and boy 15 months.


elcamino
Veteran Member


Date Joined Sep 2005
Total Posts : 1744
   Posted 1/14/2007 6:15 PM (GMT -7)   
I took humira for a couple of months prior to taking enbrel (I've been on enbrel for almost 9 months now). Humira did not do much for me, but I wasn't on it long enough. It took almost 4-5 months before enbrel started working for me. Humira also lowered my blood counts a bit--not too low, but enough to warrant some concerns. Enbrel does not do that to me. That being said, humira is probably the perfect drug for you with your crohn's. My rheumy believes I may have IBD issues, which is why he put me on humira to begin with. Enbrel has similar effects, but not nearly as good or as strong as remicade or humira, for your gi system. People who have IBD tell me that with just one or two doses of humira or remicade calms down their bowels considerably. I can tell you that was the case with me when I started humira--lower GI symptoms disappeared. Humira simply didn't work quickly for my joints.

Sorry, this is a bit rambling. In a hurry. In any case, I hope that humira proves to be the next wonder drug for you.
Elcamino
Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Aciphex, Ultracet, Zyrtec, Allavert-D, Zantac, Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan


yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 1/14/2007 6:25 PM (GMT -7)   
kathy! howdy neighbor, i saw the wlsv abv. and thought maybe u were nearby?  i'm a ws/op girl.(WNY) welcome to HW  tongue   i have RA too.
 
sry for hyjacking the post as i am not on Humira~ but i was excited to find a local on HW tongue  
 
hope to hear from u again kathy  ~*yalinda

kronstoolong
Regular Member


Date Joined Mar 2006
Total Posts : 366
   Posted 1/14/2007 7:12 PM (GMT -7)   
Thank you all for your replies.  I actually had my first shot on Thursday.  I am hoping for it to start working soon.  Take Care everyone.

curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 1/14/2007 7:31 PM (GMT -7)   
I take Humira and I gotta tell you it has been a god sine for me because when I was put on Humira I was in a wheelchair due to severe RA and I was dealing with alot of edema(fluid retention)so I waould say that with in two months I was seeing a huge differents and so little by little able to get out of that wheelchaire and my joints had improved as well.Now keep in mind I had to go to phyisacle theraphy because I had to streanthin my leg muscels because of not useing them for about a year.
Curley
.........
 


kathy_in_wlsv
New Member


Date Joined Jan 2007
Total Posts : 4
   Posted 1/15/2007 6:49 AM (GMT -7)   
Hi yalinda, yep wellsville. Where are you? I'm heading out in this nasty weather today to get my Remicade in Olean.. maybe we're close.
Life is GOOD!
 
Confirmed Diagnosis:
moderate/severe Rheumatoid arthritis,  Cardiomyopathy, Asthma, GERD, BiPolar Disorder, Migraine.
 
Current meds: Remicade, MTX, Tramodol, Vicodin, Toporol Lx, Cozaar, Lasix, Spironolactone, Advair, Spiriva, Singulair, Trazodone, Lamictal, Nexium, and a partridge in a pear tree.
 
Past meds include Coreg, prednisone, protinix, prevacid, lithium,
 
Supplements: Multivitamin, calcium, folic acid,
 
We are raising our grandkids  a girl age 4 1/2 and a boy 15 months.


kronstoolong
Regular Member


Date Joined Mar 2006
Total Posts : 366
   Posted 1/15/2007 9:45 AM (GMT -7)   
Thanks for the reply Curley.  I hope it works for me as well as it has for you!!
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