rheumatoid arthritis?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

kauaimade
New Member


Date Joined Jan 2007
Total Posts : 8
   Posted 1/21/2007 6:02 PM (GMT -7)   
in the past 6 months or so i've noticed that im having a slightly hard time opening jars and my rings will hardly get past my joint!  i was diagnosed w/ osteoporosis several years ago and have been taking actonel for it + calcium.  is this just another part of osteo?  my doc told me i would improve greatly over the couplea years ive been taking it.  is this something different?? im an avid athlete and have been so for years - i have some autoimmune issues.  i would love some input on this.  thanks and aloha!

BabZ
Regular Member


Date Joined Dec 2006
Total Posts : 74
   Posted 1/21/2007 6:22 PM (GMT -7)   
Dear kauaimade,
 
I understand your concern, and I was just curious have you seen a specialist, like a Rhuematologist, The reason I ask is becuase I had to see a million doctors before I can get a diagnosis....And if you are seeing a Rhuemy, maybe you should get a second opinion..
 
For me my medical HX is way too long but I too have osetoarthritis, But I have my Osteo in my Knees, as well as Aggressive Rheumatoid Arthritis as well as other things that are going on in my body...
 
For me sometimes I have a hard time opening Jars, typing for long periods at work, as well trying to lift shopping bags when Im grocery shopping...soo def get a second opinion, beucase your body is trying to tell you something is wrong....
 
I hope you feel better....take care
BabZ

BabZ
Regular Member


Date Joined Dec 2006
Total Posts : 74
   Posted 1/21/2007 6:23 PM (GMT -7)   
BY the way what other autoimmune issues do you have? just curious?


ttyl
BabZ

kauaimade
New Member


Date Joined Jan 2007
Total Posts : 8
   Posted 1/21/2007 6:46 PM (GMT -7)   
wow!  thankyou for being so quick in replying that was great. im new here.  i too have long med history including cancer.  diagnosed w/ lupus yrs ago but it has stayed in remission thankfully.  know i have osteoarthritis in back w/ bone spurs diagnosed w/ cat, mri and xrs. i have not seen a rheumy would have to fly elsewhere to see one but that said, having read your reply makes me think that that might be the way to go.  if you don't mind me asking what else is wrong w/ you?  what were your first early symptons of ra?  is age a factor? take care and i hope YOU feel better - much aloha and many thanks

BabZ
Regular Member


Date Joined Dec 2006
Total Posts : 74
   Posted 1/21/2007 7:02 PM (GMT -7)   
Hey kauaimade,
well my rhuemy thinks Ive had RA alot longer, I was first Diagnosed about 2 years ago..my first red flag was when I was 16 or so, when I became anemic, but drs brushed it off like nothing, then at 18yrs old, I woke up one day with these lumps like Nodules on my legs, and the pain was a killer, drs told me it was nothing brushed it off, rested for a weeks all the lumps went away all except one..so many Years later when I turned 24 or so, I would have joint pains, but not frequent enough to complain plus when I did complain, the drs told me I was crazy..soo when I was 27, my legs blew up & was swollen, had a few more lumps, hands, arms, back and everything else ache so bad I wanted to dye, my boss made me go to the E.r considering I worked at a hospital...they took me right away and they reffered me to the Rhuemy at the same hosp I work in....he did dozens of test and after all that he told me I wasnt crazy...YAY
 
 
Dx:Rhuematoid Arthiris, Eryrethem Nodosum, and possible early lupus..Raynauds Phemonon
 
I also have gerds, IBS, and Osteoarthirits in the knees....Need I say more...LOL
 
Im from Queens New York....soo tell me where are you from, are you from Hawaii...
 
ttyl
BabZ

kauaimade
New Member


Date Joined Jan 2007
Total Posts : 8
   Posted 1/21/2007 9:06 PM (GMT -7)   
hi babz ... jeez you poor thing!  but you don't sound sorry for yourself you sound upbeat and positive.  i became anemic a couplea yrs ago - but they never found out why - which is interesting because of what you said re; your ra diagnosis.  having raynauds phenomenon must be tough living in the COLD.  yeah im in hawaii and have been for almost 25 yrs.  couldn't leave it, love it.  thanks for the last.  i was told by drs i was crazy too and went undiagnosed with a rare kind of hyper thyroid disease and ended up in er w resting pulse over 200.  some of the drs are unconscionable. STAY WELL!  what is gerds?  what do they do for the knees?  knee replacement?

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 1/22/2007 7:28 AM (GMT -7)   
Welcome kauaimade!
Glad to have you here @ HEALINGWELL! You sound like a very sweet person!
My sympathies as to what you are go ing through now.
My feelings are if a person has a definite autoimmune disease, the likelihood of developing concurrent AI diseases is very probably. Like, some people have SLE plus RA...or Crohns and RA....or Ankylosing Spondylitis and RA. It is possible.
Having a full Rheumatoid Arthritis panel of labs done would be a good idea and also to keep track of you joint symptoms: bilateral joint pain, swelling, redness.
The thing that stinks is that Lupus and RA are so similar that it very tricky to diagnose. However, the treatments and meds are often similar.
Does RA run in your family?
Take good care.
Erin
Arthritis Forum Moderator
Active Severe Rheumatory Arthritis. Crohns Disease. Vasculitis of legs. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures. MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Previous Lymes Disease for 10 years.
Meds: Remicade infusions Q3 weeks; Intra-articular knee injections; Imuran; Mesalamine; Prednisone tapering from 120mg; Meclizine; Reglan; LidoDerm; Diazepam; Restaril; Dilaudid; Avinza and too many others. 


BabZ
Regular Member


Date Joined Dec 2006
Total Posts : 74
   Posted 1/22/2007 8:38 PM (GMT -7)   
hey kauaimade,
well Gerds is Gastro Esophagul reflux disease. basically its like having the worst Heartburn ever, with the occasional Ulcers, Chest pain and basically as long as you dont eat chocalete, Drink Coffee and smoke ciggs, GErds can be easily Controlled....LOL

but of course im my own worst enemy...LOL, I love my coffee, I like my chocolate especially whem im PmS-ing...LOL and I like my ciggs...but I am on the nicoderm Patch. Soo I hopefull I will kick the habit....

***Hey Erin K,
Just curious how are you feeling these days...I was just reading your Diagnosis and list of Meds you take....How Do you manage with everything going...? And tell me about the Remicade infusions, are they better than taking Enbrel?

I hope you all have a great night
ttyl
BabZ

yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 1/23/2007 5:36 AM (GMT -7)   
aloooooooooooooha kauaimade tongue    sry for my korney welcome but as a tourist in Hawaii everyone seemed to drag the o sound.   seems like everyone has been welcoming u to HW and giving good input.  just wanted to let u know we hear ur frustrations with the jar opening etc.  i wish u much luck in finding out whats going on in ur system and i think a rhuemmy is the best place to start.  tongue    can u post some of that sunshine and share warmth with some of us!  scool i am so jealous u live in hawaii!  ~* yalinda
 

kauaimade
New Member


Date Joined Jan 2007
Total Posts : 8
   Posted 1/23/2007 10:36 AM (GMT -7)   
you have all been so kind!  yalinda..laughing at you - yeah we drag the o sound but only for tourists never in real life.
 
why did someone tell me to read the forum rules?  have i done something wrong?  it said she/he was a new member
 
thanks to all the replies!  aloha!

yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 1/23/2007 11:49 AM (GMT -7)   
aloha, it wasnt u it was "mona Vie" 's post (it got erased) and it more than likely had a link or ad 4 marketing which is not allowed here dont worry keep posting! :) i am glad i made u laugh i often try to make peps or myself laugh on HW but i say a smile and laughter heals a 1,000 pains and Lord know i sometimes have what may feel like a 1,000 pains. its snowing here today so soak up a ray for me! let us know if u further find out ur dx. take care alooooooooooha~*yalinda

kauaimade
New Member


Date Joined Jan 2007
Total Posts : 8
   Posted 1/24/2007 1:19 AM (GMT -7)   
yalinda - i like your name - i was having a bad day when i came in here.  i have mvp and had to go off my 20 yrs meds and try new one  - which after 5 days  - left me w/ a resting pulse of 115 (and me an athlete!!!  A serious one!) and an incredible DESIRE TO RACE TO THE ER!  ANXIETY.  doubled up on rx and am fine.  sorry...that little kinda nasty mail from the one person (i blocked her/him) was unnerving. there seem to be so many  NICE people in here with lots of issues it makes me feel better.
 
i've had colon cancer. femur replacemnt, hip replacement, titanium back cage, 6 surgeries and 13 procedures because of all these things in the past 5 yrs.  now the swollen fingers.  cannot even tug off the wedding ring that FELL off when i got cold a year and ahalf ago!  its just unnerving.  thanks for your kindness and the sweet kindness of the others.  feel like im in a great spot

kauaimade
New Member


Date Joined Jan 2007
Total Posts : 8
   Posted 1/24/2007 1:23 AM (GMT -7)   
And..Erin K.  thankyou so much for your reply and info!!!  so great to have people listening to me and responding.  love being able to be ANONYMOUS FOR ONCE!  no one knows who iam.  and you are all so kind.  much aloha

yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 1/24/2007 6:42 AM (GMT -7)   
u made me laugh like if i knew who u were i wouldnt be kind? lol hey my fingers have been swollen for almost a year without my wedding ring on it! i tried again recently to get it back on after my prednisone tx ended but not just yet! i told my hubby he should buy me a rock to replace it! hehehehehehe if it wasnt winter he probaly would have gone out to the rock gatden and given one to me lol

babz ur from queens- fellow new yorker! only i am from wny far away on the other side of the state.

well g2g aloha~ good luck yalinda

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 1/24/2007 7:10 AM (GMT -7)   
hi kauaimade  :-)
holey moley you have been through A LOT!
what type of doctor do you currently see now that you have had the trouble with your hands?
 
i'm just thinking 2 things...either edema/swelling from fluid imabalances; or like you said, enlarged joints in the fingers from either OA or some other inflammatory arthritis.
 
do take good care of yourself.
and yeah...we do from time to time get a lot of soliciters/spammers/and all together "crappy" posts of "Cures" and stuff.  don't mind em' :-) .
erin

kauaimade
New Member


Date Joined Jan 2007
Total Posts : 8
   Posted 1/27/2007 12:14 AM (GMT -7)   
hey you guys, thanks for the posts. yalinda you made me LAUGH again. what i meant is that living in the little place i am - i am so NOT anonymous. everyone knows everyones business. i know things about people i really DONT WANT TO KNOW! lol. i would never discuss myself in the community. or talk about what i've been through. i really don't want anyone to know what i've been through/am going through.

when i was diagnosed w/ colon cancer - i got home from hospital and within FIVE minutes got a phone call from someone from the WEST side of my island...i live on the east side...who ALREADY KNEW!!!! so thats where im coming from

so this is nice. i can ask questions and get replies from real people who are going through the same kinda stuff i am. thanks everyone!

yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 1/27/2007 4:17 AM (GMT -7)   
ok now its ur turn to makeme laugh! lol there udid it hehehehe. having a bad flare so i dont think i can be funny. although i did picture gilligans island and news spreading across the island through gilligan. sry probably bad joke no insult to ur beautiful island lifestyle. remeber i am jealous. and i dont even know if u are old enoughto know gilligans island. or is that a classic for all ages? teehee.
so what is the plan for getting better medical attention to ur needs if the hippa laws seem to be ignored on ur island and u dont want anyone to know? why dont u want people to know? or is it just peps not close to u? most people i care about know but i dont live in a small enough town for gossip.... i think i dont? lol at least i dont gossip or get any info?
well gonna go try to rest again a bit. c whats on HBO. it should be our warmest day today with a high of 9* let me guess in the 60-70 for u today! ugh! i gotta move! lata yalinda

kauaimade
New Member


Date Joined Jan 2007
Total Posts : 8
   Posted 1/27/2007 3:51 PM (GMT -7)   
oh good my day is complete when i make someone laugh.  so..we call it the 'coconut wireless' and its true..just like any small town. and YES i am way old enough to know gilligans island - yeah i think everyone does nowadays tho, its sort of a classic huh?  i would be FREEZING if it was 60.  it is 80 degress today and i have just returned from a 25 mile bike ride - tourists out and happy, whales breeching, amazing clear day! yalinda, where are you?  NINE degrees?  are you serious? i freeze my butt of when we go snowboarding in mammoth and it doesn't get nearly THAT cold.  i hope you're having a good day, feeling well and enjoying the weekend. poor me, now i have to go to beach. oh yeah, there is one medical clinic and the girls talk freely about everyone...you can hear them discussing people whom you sometimes KNOW!  and - of course - lots of it gets mixed up blah blah blah.  so i have slowly worked most of my doc  issues to a larger outer island.  it helps that a lot of off island docs are in private practice vs the basically hmo-minded clinic here.  there are only a handful of private practitioners.  and half of those are hacks. i am going to have the ra blood tests that i think you suggested. have a great one!

yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 1/28/2007 8:01 AM (GMT -7)   
aloha :-) 80* ugh not fair! it did reach 28 yesterday so we were the warmest allweek and now it is going to go back down.. i live south of buffalo new york along lake erie one of the great lakes. actually not far from niagara falls. we get the cold air from canada - thank u dave if u r reading the posts- not a lot of snow this winter as it has been the warmest winter in a long time but we are finally like normal in a cold spell with snow. usually we would have had a few feet of snow by now but it is just a few inches maybe a foot or so all winter. here we say we have 4 seasons fall winter spring and july. lol

i am glad u r getting the RA test but it is not always positive so there are i think 2 other tests that measure inflammation?

erin u can talk more about that if u see this post?

good luck  and aloha ~*yalinda smurf

yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 2/3/2007 2:28 PM (GMT -7)   
hey u up and went to the beach and never came back lol ahloha yalinda

Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 2/3/2007 3:10 PM (GMT -7)   
Shoot! I know I wouldn't if the weather was nice! LOL LOL :)
Moderator of Arthritis/Epilepsy Forums
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea
 


Sardi
New Member


Date Joined Feb 2007
Total Posts : 4
   Posted 2/18/2007 9:21 AM (GMT -7)   
Please read Erin's post below...

Post Edited By Moderator (Ducky) : 2/18/2007 4:14:25 PM (GMT-7)


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 2/18/2007 2:37 PM (GMT -7)   
Sardi,
Just as a reminder, @ HealingWell, soliciting is against forum rules...you can share your own personal experiences & opinions with this particular book/program but advertising links & sales are not permissable.
regards

Keah
Veteran Member


Date Joined Nov 2003
Total Posts : 7314
   Posted 2/18/2007 7:05 PM (GMT -7)   
Aloha kauaimade,
More than anyone else, I can understand the realities of medical care on the islands outside of Honolulu. My Sister lives in Hilo and has the devil of a time trying to see any type of specialist. She has had to fly to Ohau several times and is actually there now for an MD appt on Tuesday. I can't imagine living in that type of medical community, but I do have to admit, Kauai is by far my favorite island.

That said, I'd look into getting over to Oahu and seeing a Rheumatologist. Having an autoimmune disease already (lupus) puts you at risk for others. RA can do extensive joint damage, but the bone spurs in your spine lend themselves more readily to Spondylitis. With that, you would likely test negative for RA and that could explain why you have not been dx with RA. Generally, having a negative RF will lead Docs to call an arthritis Osteo, rather than to look into less common arthritic conditions like SpA. Especially if you are a woman because Spondylitis was intially though to be a man's disease and MDs are just now seeing that it affects women equally, although women tend to present differently. Also, most people with SpA do not have involvement of the hand joints, however, it's becoming more and more common to find people who test RF negative, have Spondy and still get involvement of the fingers.

I hope you can find some answers soon and more important, relief.


Keah a.k.a. Wormy
 God helps those who help themselves.
Please help us support this invaluable forum.
Crohn's Forum Moderator

Post Edited (Keah) : 2/18/2007 7:10:41 PM (GMT-7)


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 2/19/2007 1:09 AM (GMT -7)   
Keah
 
Thanks for all of your fantastic advise. Was great!!!!!!! :-)
Arthritis Forum Moderator
Active Severe Rheumatory Arthritis. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures (under control!). MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Previous Lymes Disease for 10 years.
Meds: Remicade infusions 300mg Q3weeks; Intra-articular knee injections when needed; Mercaptopurine 50mgQD plus 75mg weekly; Mesalamine 4GramsQD; Prednisone 20mgQD mantainance; Entocort 9mgQD; Meclizine; Augmentin; Tigan 300mg; Reglan; LidoDerm Patches; Diazepam 5mg for AS back spasms; Restaril; Dilaudid 4mg tabs for pain. 

New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, December 08, 2016 7:26 AM (GMT -7)
There are a total of 2,734,620 posts in 301,227 threads.
View Active Threads


Who's Online
This forum has 151346 registered members. Please welcome our newest member, heelm007.
315 Guest(s), 11 Registered Member(s) are currently online.  Details
alephnull, Butterflake, JNF, Teamchris, pmm73, blksteeda, Ed Ski, trumpet123, Myself 09, Snarf, iPoop


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer