New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

babybloo
Regular Member


Date Joined Aug 2005
Total Posts : 289
   Posted 1/27/2007 3:01 PM (GMT -7)   
I am completely off of pred but tempting to start it right back up.  I can't walk without support now.  Seems the MTX really isn't doing anything because now that I am off of pred more joints are hurting than did before making it difficult for me to get around.  I have an appt monday for BW and a DEXA scan but I think something needs to be done about this.  I really don't want to go back on the pred.  What do you guys think the next step would be with the docs?   or will they just wait 6 months to see what happens.... been 12+ weeks on MTX at 20mg.
 
Theresa
dx: Rheumatoid Arthritis.  Duration: 10yrs. Dx'ed 2006.  Asthma, hypertension, hypothyroid
 
Meds: Methotrexate 20mg wkly, Prednisone 20mg decreasing,  Advair 250/50, Diovan HCT 160mg/25mg QD, Synthroid .1mg QD, Women's One a Day, tylenol PRN.
 
 


yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 1/27/2007 3:46 PM (GMT -7)   
me too!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! only been 10 mo on mtx i feel ur pain and situation for real!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! yalinda but this too shall pass

Shaleygirl
Regular Member


Date Joined Jan 2007
Total Posts : 30
   Posted 1/27/2007 4:10 PM (GMT -7)   

Hi and this is my first post.  I tried MTX for 25 weeks and last week my Dr Rx'd Enbrel to go along with it.  Had some erosion and bone thinning so I have hope for the Enbrel.  Maybe you need a biologic added?

Take care and hope you are feeling better soon.


Savvy63
Regular Member


Date Joined Nov 2006
Total Posts : 450
   Posted 1/27/2007 7:30 PM (GMT -7)   
I feel so bad for you as I understand your pain. Call your Dr and tell him straight up that this pain is unbearable and something needs to be done about it because it's affecting your ability to carry out your daily functions and your quality of life is really suffering. Don't sugar coat it and be very matter of fact and look him straight in the eye as you would a child that needs to give you an honest answer. Sometimes they forget we're human and just see the papers in front of thier face.
 
depression                                                combivent
DDD- MRI confirmed                                    probiotics
Arthritis-xray confirmed                               Neurontin
disc slippage in neck-MRI confirmed               Oxycodone
Fibro- night sweats                                     Zoloft
IBS-D-gas                                                 cortisone shots
Ulcers-endoscopic confirm                            Baclofen
dishydrotic eczema                                     Trazadone
Costochondritis                                           B-12
 


yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 1/28/2007 8:12 AM (GMT -7)   
how r utoday bloo? any better? hope so.....

welcome shaleygirl glad u came and posted feel free to post more .....

take care everyone hugs! yalinda

babybloo
Regular Member


Date Joined Aug 2005
Total Posts : 289
   Posted 1/28/2007 8:39 AM (GMT -7)   
Still shuffling. Couldn't sleep at all last night because of the pain... now I am beginning to worry that there is something else... that it isn't RA... maybe I am crazy? Somehow I have to figure out how to get to the store to buy yet another pair of shoes that might allow me to be more comfortable... been trying to do this for the last three weekends... This time I need to get out... I need other things... I don't know, like groceries.... Thank you for asking... Want to know what is freaky... when i did doze off I dreamt about removing my own legs to take away the worst of the pain... that is a bit scarey to me... Think it is time for a cane/walker... can't keep crawling around my house... darn it I feel so useless.

Thank you so much for listening to a loon.

Theresa


dx: Rheumatoid Arthritis.  Duration: 10yrs. Dx'ed 2006.  Asthma, hypertension, hypothyroid
 
Meds: Methotrexate 20mg wkly, Prednisone 20mg decreasing,  Advair 250/50, Diovan HCT 160mg/25mg QD, Synthroid .1mg QD, Women's One a Day, tylenol PRN.
 
 


elcamino
Veteran Member


Date Joined Sep 2005
Total Posts : 1744
   Posted 1/28/2007 2:11 PM (GMT -7)   
Hi Theresa. sorry to hear that you're hurting. Would now be a good time to ask your doctor about a biologic, like enbrel? I know for me, that without the combination of mtx and enbrel, I was hurting pretty bad too. The combination was magic.

Elcamino
Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Aciphex, Ultracet, Zyrtec, Allavert-D, Zantac, Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan


Savvy63
Regular Member


Date Joined Nov 2006
Total Posts : 450
   Posted 1/28/2007 2:58 PM (GMT -7)   
babybloo, you are not a loon.

{{{{{{{{{{{{HUGS}}}}}}}}}}}}
God Bless!!!!!~Savvy~ 
depression                                                combivent-4xday
DDD- MRI confirmed                                    probiotics
Arthritis-xray confirmed                               Neurontin-1800mg
disc slippage in neck-MRI confirmed               Oxycodone-10mg 2xday
Fibro- night sweats                                     B-12
IBS-D-gas                                                 Trazadone-for sleep
Ulcers-endoscopic confirm                           
dishydrotic eczema                                     
Costochondritis                                          
 


yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 1/28/2007 4:43 PM (GMT -7)   
bloo ur not alone .... i just was on the phone with my mom crying cuz the pain has been so bad and i told her i hope they have this right cuz i feel so bad and at times i am good and others bad. i agree with elcamino maybe biologics are the answer? my doc wants me to try with out but then i havent pushed it either cuz i am always not this bad. i kknow how u feel trappped in a body full of pain but with the right treatments we can have good days again! heck i was good for a bit and then vame down with a bug and have been in the worst flare since! a cane does give support only wihen my wrists are bad i feel the pressure on them and then they hurt too..... i think we both need to phone our docs and letthem know how poorly we are doing..... to better days bloo :) soft hugs ......sry bad typing with the gfingers. lol

babybloo
Regular Member


Date Joined Aug 2005
Total Posts : 289
   Posted 1/28/2007 10:17 PM (GMT -7)   
Thank you all for your support. Don't know what I would do without other people who know what this is like. I have been very down about all of this. I see how people at work will start to avoid asking me to help now I guess because they see how I walk... that just bothers me. I was doing so well on the pred but I needed to know if the MTX was working at all and they wanted me to wean off of it, so I did and now I don't really want to go back on it as I am also trying to drop some weight, because the people who are closer to me say that if I lost weight I would feel better and I know I wont because the whole reason I gained weight was from not being as active as I used to be. I want so much to be able to do what I used to do. I don't even know who I am anymore. I am sorry I am whining so much I just don't know what to do and though I am going to ask for something more what if they or my insurance says NO? If this happens I doubt I will be working in the next couple months as I and my family can see the decline it isn't gradual at all, every day seems to be getting worse... is this normal?

Theresa
dx: Rheumatoid Arthritis.  Duration: 10yrs. Dx'ed 2006.  Asthma, hypertension, hypothyroid
 
Meds: Methotrexate 20mg wkly, Prednisone 20mg decreasing,  Advair 250/50, Diovan HCT 160mg/25mg QD, Synthroid .1mg QD, Women's One a Day, tylenol PRN.
 
 


Harley Diva
Regular Member


Date Joined Oct 2006
Total Posts : 160
   Posted 1/28/2007 11:47 PM (GMT -7)   
Hi Bloo.......I'm sorry your felling so bad. call your Rhumy and get back in to see him or her. The squeeky wheel........You need some relief. It is depressing when it hurts to do you daily activities. Did you just go up on the MTX? I know it can take a couple of months to notice any differance from a dose increase. I hope you fell better soon.........................Diva

Harley Diva
 
....RA, HPT,  drugs: Sulfasalazine, MTX, prednisone, bp meds


abnalexmom
Veteran Member


Date Joined Sep 2004
Total Posts : 905
   Posted 1/29/2007 6:49 AM (GMT -7)   

Dear Bloo ~

Just wanted to write you quickly and say "I too feel your pain".  I've begun to have severe swelling in my joints (fingers, knees, ribcage, feet, and lower back) that is unusual and a new symptom for me.  Is this what you experience?  My labs have never shown positive rheumatoid factors...so they wont give me a definitive diagnosis, they just usually mention that its either lupus or ra - so to this day (2 yr timeframe trying to figure it out) I still don't know for certain.

I will keep you in my prayers today that you will be given the pain relief and disease-modifying drugs that you so desperately need.  Bless your heart, please stay strong as you can and hang in there.  You are cared about here, that's for sure.

Gentle hugs,

Beth


Hugs and God Bless You,  Beth
 
 
Fibro, RA, Costo, Endo, IBS-D, Anxiety-2004
 
Please help support HW resources with your donation today! 
 
 
 
"I lift up my eyes to the hills-where does my help come from?  My help comes from the Lord, the Maker of heaven and earth." 
 Psalm 121:1,2
  
 
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, December 08, 2016 11:21 AM (GMT -7)
There are a total of 2,734,778 posts in 301,246 threads.
View Active Threads


Who's Online
This forum has 151352 registered members. Please welcome our newest member, dillon91750.
339 Guest(s), 12 Registered Member(s) are currently online.  Details
ShutterGy, TOOTY, Dc28, tickcheckguy, 1000Daisies, Girlie, reminder, blksteeda, goldengoose, sam12, bdavis, iPoop


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer