does anybody take sulfasalizine?

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istone
Regular Member


Date Joined Nov 2006
Total Posts : 77
   Posted 1/31/2007 4:14 PM (GMT -7)   
what r the side effects of sulfa
 
did anybody get sulfasalizime ? or get some improvements for joint pain and inflammation
 
i would like to know if r some side effects that affect stomach or lungs or liver.
i know is toxic and is not so easy to tolerate.
 
kind regards

seechell
Regular Member


Date Joined Sep 2006
Total Posts : 362
   Posted 1/31/2007 4:17 PM (GMT -7)   
I was on sulfasalazine for about 2 weeks. It really seemed to be working and I was so happy! Then I got horrible mouth sores, all over my tongue, inside my cheeks, everywhere. I took folic acid and something called the standard solution to swish with. Neither worked. The sores just got worse. Turns out I'm allergic to sulfa drugs. Hope you have better luck than I did.

Take Care,
               Chelle
    "God grant me the serenity to accept the things I can not change, the courage to change the things I can and the wisdom to know the difference."
  DX: ankylosing spondylitis, periferal neuropathy, chronic migraines/headaches, depression/panic attacks, bi-polar, hypothyroidism, hypoglycemia, sleep apnea
  RX: synthroid, estradiol, prozac, lamictal, inderal la, klonopin, seroquel, imiprimine, aspirin, (relpax, maxalt, phenergan, esgic plus, xanax, PRN for migraine)
  Surgeries: hysterectomy 1997, tonsillectomy 2001, deviated septum 2005, cataracts (both eyes) 2006
 
 


yalinda
Veteran Member


Date Joined May 2006
Total Posts : 1179
   Posted 1/31/2007 10:04 PM (GMT -7)   
i took it too or should i say tried it 3 separate times each time i got so sick i couldnt take it! felt dizzy in my head and sick like i was on a boat on the high seas. cant tell u if it would have worked cuz i didnt give it a chance it made me so sick i would be in bed moanin from motion sickness. i took it with the mtx and i can tolerate mtx no problem by itself. i wish i could have tolerated it cuz my doc isnt trying biologics and the mtx isnt cutting it for me.
best of luck if u try it.... i hope it works for u :)

Harley Diva
Regular Member


Date Joined Oct 2006
Total Posts : 160
   Posted 1/31/2007 11:09 PM (GMT -7)   
Hi there I have been on Sulfasalazine for close to a year. I have been on a maximum dose 3,000 mg a day. Taking the six pills a day is a pain. I have not had any serious side effects and only a very little nausea for the first week. It went away. The enteric coated pills give me no nausea. It takes several months to work. It took about four months before I noticed any difference. I can say that it has helped a great deal. I have much better mobility and much less swelling. I am on MTX also. I know the Sulfasalazine is working because if I reduce it I can feel the difference. I have a very slight increase in the most sensative liver enzyme but it is not clinically significant. I feel it has helped me and does not have the risks that the biologics have. I always try and think positive and give the medication a chance. Sulfasalizine and MTX both take a long time to work so be patient and don't expect changes over night. It is also important to take every dose as prescribed to get the maximum effect........Take care and my fingers are crossed that this works for you...............................
Harley Diva
 
....RA, HPT,  drugs: Sulfasalazine, MTX, prednisone, bp meds


istone
Regular Member


Date Joined Nov 2006
Total Posts : 77
   Posted 2/1/2007 6:11 AM (GMT -7)   

hi

thank for message do u have RA or what kind of arthritis

im so glad that this med for u i think depend on the body reaction to med.

im so afraid im allergic too to sulfa..is amazing how u resist with both mtx and sulfa.

i will try to check my body reaction

kind regards

Harley Diva said...
Hi there I have been on Sulfasalazine for close to a year. I have been on a maximum dose 3,000 mg a day. Taking the six pills a day is a pain. I have not had any serious side effects and only a very little nausea for the first week. It went away. The enteric coated pills give me no nausea. It takes several months to work. It took about four months before I noticed any difference. I can say that it has helped a great deal. I have much better mobility and much less swelling. I am on MTX also. I know the Sulfasalazine is working because if I reduce it I can feel the difference. I have a very slight increase in the most sensative liver enzyme but it is not clinically significant. I feel it has helped me and does not have the risks that the biologics have. I always try and think positive and give the medication a chance. Sulfasalizine and MTX both take a long time to work so be patient and don't expect changes over night. It is also important to take every dose as prescribed to get the maximum effect........Take care and my fingers are crossed that this works for you...............................


angelscry
Regular Member


Date Joined Nov 2006
Total Posts : 173
   Posted 2/1/2007 6:50 AM (GMT -7)   
I've been on it for 2 months for UC and for RA/AS... haven't had much relief so I'm quitting it. No side effects here except the bright yellow urine
Zach - 22 y/o college student and business owner
Diagnosed UC 8/06
Currently:
Tapering Pred 10mg/day
Asacol 12/day (4.8g/day)
Sulfasalazine 4/day (2g/day)


CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1884
   Posted 2/1/2007 10:03 AM (GMT -7)   

Hey, can you get sores beyond your mouth from it?

I have been taking it off and on for 3 months now....I'm supposed to take 2,000 mg a day, but am only taking about 1,000 - 1,500. I feel pretty rotten on it if I take a full dose. I get cranky as well. I started with 500, then 1,000 and I'm working my way up to 1,500 to see how I feel.

I took it years ago and did well with it, this time around, it seems to be affecting me differently.

Good luck***


 


Harley Diva
Regular Member


Date Joined Oct 2006
Total Posts : 160
   Posted 2/1/2007 11:58 PM (GMT -7)   
Istone...I have RA. Has you doctor given you a diagnosis yet? If you are not allergic to other sulfer drugs you should be fine. This might be a good answer for you. It does take a long time to work up to six months. So don't give up right away. At first I was dissappointed because I expected results right away. I was in so much pain. I still have some bad days but nothing like what I was experiencing. I can manage now and I am able to do most activities. I still have some sore joints but no swollen ones. Before I was on the drugs my knee would swell up like a ballon and be very hot and red.I don't know if I will ever be in total remission but this is good for now. I do have one bone erosion in my foot.
Harley Diva
 
....RA, HPT,  drugs: Sulfasalazine, MTX, prednisone, bp meds


Marius123
Regular Member


Date Joined Aug 2006
Total Posts : 142
   Posted 2/2/2007 7:50 AM (GMT -7)   
Hi there,
I've been on sulfasalazine (local name Salazopyrine) for 1 month.
I've developed sever neurodermitis on my neck, and my WBC droped very low, so the doc told me to stop it instantly. Otherwise, I don't think i had any benefits related to the disease symptoms.


Official dx, but I have doubts: chronic reiter's syndrome (1yr and 6 mnths).
suffer form occasional conjuctivitis outbreaks, mild arthritis, also showing some short lived mild aches all over the body


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 2/3/2007 10:54 AM (GMT -7)   
Dear Istone,
 
Have you looked into the Arthritis Foundation yet?
There is a process called "self management" that I believe is critical and vital regarding to living with arthritis, arthritic conditions or autoimmune diseases.
It is a great resource for those who need information about medications, truths and myths about diseases and meds, and it provides very useful guidelines on how to get better communication with the doctors you see.
 
Check out www.arthritis.org  and also look into Tips for Good Living with Arthritis.
 
In all it will aid in getting all of what seems "out of control" to an organized point.
Take good care 
Arthritis Forum Moderator
Active Severe Rheumatory Arthritis. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures (under control!). MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Previous Lymes Disease for 10 years.
Meds: Remicade infusions 300mg Q3weeks; Intra-articular knee injections; Arthrotec; 6MP; Mesalamine 4Grams; Prednisone; Entocort; Meclizine; Augmentin; Reglan; LidoDerm; Diazepam; Restaril; Dilaudid. 

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