Anyone on this combo?

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babybloo
Regular Member


Date Joined Aug 2005
Total Posts : 289
   Posted 2/4/2007 7:37 PM (GMT -7)   
Since I have been turned down by the insurance companies for Enbrel, Remicade, or Humira I have been trying to determine what I should do next.  I know I cannot live like this much longer. 
 
1) I was going to ask my doc about trying Methotrexate, Sulfasalazine, and Plaquenil combo?  Anyone on this?  Any ideas or suggestions on what to do next.  I am currently on 25mg of MTX, Relafen, and Folic Acid
 
2) Has anyone had the same course as I.  I have deteriorated so much over the last 6 months its crazy and it seems to be working its way up from my feet to now my neck, shoulders, and wrists.  It is amazing how poorly I am doing compared to just 2 weeks ago.  Makes me wonder if we are treating the wrong thing altogether.  Also, I used to flare and then have some relief even up to months at a time with no symptoms.  This flare of 1 year ago hasn't gone away.  Is this normal?
 
I would love to be armed with information when I call my docs office tomorrow.  Something I can try or do.  Whatever, I don't care.  I am not ready to lose my job yet and I don't like people at work excusing me from things before I say I can or cannot do it just based on how I am moving.
 
Theresa
dx: Rheumatoid Arthritis.  Duration: 10yrs. Dx'ed 2006.  Asthma, hypertension, hypothyroid
 
Meds: Methotrexate 20mg wkly, Prednisone 20mg decreasing,  Advair 250/50, Diovan HCT 160mg/25mg QD, Synthroid .1mg QD, Women's One a Day, tylenol PRN.
 
 


abnalexmom
Veteran Member


Date Joined Sep 2004
Total Posts : 905
   Posted 2/4/2007 7:49 PM (GMT -7)   

Dear babybloo,

I do not have any good answers for you - but just rather wanted to extend to you my prayers and hopes that you'll feel better soon, get the right med combination that you need and that helps you the best.  I also wanted to ask you a question, as I know what you are dealing with and it has to be SO frustrating for you...I can really hear the despair in the words you type - but you did say that this "flare" has been going on for you for a year now.  That is an incredibly long time to be hurting this way.  I was wondering, could you describe your symptoms of your flare to me?  I am the one who is in medical diagnosis "limbo" and I really am convinced this is a Rheumatoid Arthritis type of flare that I'm in.  But I'm not sure about my own symptoms.  I have never exerpienced them before, they are burning hot to touch knees that ache so bad I want to scream, fingers that are pretty much frozen stiff in a curled up position that ache and throb and pulsate in the center joints, and then my feet...same thing, swollen, hot, but yet the tips are frozen cold, they feel like bricks of ice.

Are any of these the same thing you experience?  Add to the list the muscle aches from other parts of my body, namely my back and chest, that are compensating for the hurting parts.  It's real fun, eh?

Again, I sure hope you get to feeling better and that you finally get a doc who cares and will put you on the right combo of meds.  It's really unfair!

Thanks Babybloo, God bless you too,

Beth

P.S. I came back to add this question, as the more research I do, the more questions I have.  I looked up "Systemic Inflammatory Arthritis" and the definition is Rheumatoid Arthritis!  So for 2 years, I've been thinking I didn't have it, but have been told I had SIA, and now I look it up (dont know what prompted me to, mainly curiosity) and lo and behold - I DO have it! 

My question is when they put you on these DMARD type medications, does that actually halt the disease or does it slow it down and if so for how long?  I guess each person will react differently to the medications.  And lastly, have you tried any of those type meds before Babybloo?  If so, what have you tried and what was your experience with it?   Sorry for all my ??s but enquiring minds wanna know!  LOL  Many many heartfelt thanks. 



Hugs and God Bless You,  Beth
 
 
Fibro, RA, Costo, Endo, IBS-D, Anxiety-2004
 
Please help support HW resources with your donation today! 
 
 
 
"I lift up my eyes to the hills-where does my help come from?  My help comes from the Lord, the Maker of heaven and earth." 
 Psalm 121:1,2
  
 
 

Post Edited (abnalexmom) : 2/4/2007 7:58:07 PM (GMT-7)


EveSasser
Veteran Member


Date Joined Mar 2006
Total Posts : 808
   Posted 2/4/2007 8:47 PM (GMT -7)   
Oh, my goodness,

Some of the symptoms in these last two posts sound like fibromyalgia. I am not a doctor but do a great deal of reading in the health area. I don't know much about remission of flares, but I do know that FM can be systemic. Maybe it's time for a re-evaluation. A person can have more than health condition, after all.

My prayers are with you.

Eve

Rallen
New Member


Date Joined Feb 2007
Total Posts : 1
   Posted 2/4/2007 9:35 PM (GMT -7)   

Hey...My name is Rob.  I do not have arthritus that extreme, however, I do have gout. It is very painful.  I was on medication for it, but due to the lack of insurance, it got expensive.  So, I begin to look elsewhere.  I take an organic supplement.  Have you ever educated yourself on organic cures?   I cannot talk about what I use due to the rules and policies, but there is some things that can ease pain, and thats all we want. 

Rallen91@kc.rr.com


abnalexmom
Veteran Member


Date Joined Sep 2004
Total Posts : 905
   Posted 2/4/2007 9:59 PM (GMT -7)   

 Hi Rallen,

I think the rules state that you are allowed to discuss what you're taking and how it is working for you.  However, if you are here for the sole purpose of "Selling" a product or even "promoting" a product, that is strictly prohibited.

But by all means, if there is something in particular you are taking or doing that is helping, then do share. 

Be well,

Beth


Hugs and God Bless You,  Beth
 
 
Fibro, RA, Costo, Endo, IBS-D, Anxiety-2004
 
Please help support HW resources with your donation today! 
 
 
 
"I lift up my eyes to the hills-where does my help come from?  My help comes from the Lord, the Maker of heaven and earth." 
 Psalm 121:1,2
  
 
 


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 2/5/2007 6:26 PM (GMT -7)   
Wow..i think a year has gone way beyond a flare!
Like yourself, the RA i have took a turn for the worst last year...and i have yet to come out of it. so what started as a flare...has ended up pretty much a "progression or worsening" of the disease.
exactly why have you been denied approval for these meds???
sounds like there needs to be a fight...and not by you...one of your MDs should get on the horn with the ins. co. and fight for this.
with the TNF drugs, they do slow down the progression of joint disease...it's needed if things are getting worse quickly.
when i was at my last straw...i simply asked my GI & rheummy,"what are my options". and surprisingly i got a few different paths to take.
in my prayers.
erin
Arthritis Forum Moderator
Active Severe Rheumatory Arthritis. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures (under control!). MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Previous Lymes Disease for 10 years.
Meds: Remicade infusions 300mg Q3weeks; Intra-articular knee injections; Arthrotec; 6MP; Mesalamine 4Grams; Prednisone; Entocort; Meclizine; Augmentin; Reglan; LidoDerm; Diazepam; Restaril; Dilaudid. 


Harley Diva
Regular Member


Date Joined Oct 2006
Total Posts : 160
   Posted 2/5/2007 10:47 PM (GMT -7)   
Hi Bloo hope your feeeling better soon.
Just a suggestion. call your insurance company and ask what needs to be done and then tell your doctor. The doctor may need to write a letter of justification for some companies. Some want medical records. This is a very long time to have a flare. I hope you find some relief soon.
Harley Diva
 
....RA, HPT,  drugs: Sulfasalazine, MTX, prednisone, bp meds


curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 2/11/2007 11:09 PM (GMT -7)   
Hi,I have three types of arthritis and they are RA,AS,OA.I'am on Humira,Plaquenil and Sulfasalazine and I have no problems with these meds exept I have to have my eye's checked every six month's.The last time that I had my eye's checked they had changed alittle but not much.Even thoe I know that one of the side-effect's of the Plaquenil the trade offis worth taking.Now for Humira the only side-effect that i have is it burns when going in and I will get a little puffy and red around the injection site,but other than that it's ok.Now for the Sulfasalazine I had no side-effect's from this med other that it makes me nauseated.I hop0e that this help's you.
Curley
.........
 


Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 2/13/2007 11:22 AM (GMT -7)   
Hey Theresa.. so did they come back and say for sure "no" on Enbrel?
Moderator of Arthritis/Epilepsy Forums
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea
 


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 2/16/2007 4:49 PM (GMT -7)   
Boo why can't you get Remicade or the others? Susie

Have you tried getting it thru the mfg's of the drug?


babybloo
Regular Member


Date Joined Aug 2005
Total Posts : 289
   Posted 2/16/2007 4:52 PM (GMT -7)   
Actually, I was finally approved for Enbrel today.... took a while as they wanted to turn it down... I even got letter today of denial... but it is at the pharmacy so I ain't complaining.
dx: Rheumatoid Arthritis.  Duration: 10yrs. Dx'ed 2006.  Asthma, hypertension, hypothyroid
 
Meds: Methotrexate 25mg wkly, Medrol Dose pack PRN, Enbrel 50mg wkly, Folic Acid, Fish Oils, Ultram 50mg TID,  Advair 250/50, Diovan HCT 160mg/25mg QD, Synthroid .1mg QD, Women's One a Day, tylenol PRN.
 
 


Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 2/16/2007 10:56 PM (GMT -7)   
Woo-hoo! Congrats! Have you had your 1st injection yet? Let us know!
Moderator of Arthritis/Epilepsy Forums
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea
 

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