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Harley Diva
Regular Member


Date Joined Oct 2006
Total Posts : 160
   Posted 2/4/2007 11:51 PM (GMT -7)   
Hi All I went to the Rhuemy and I have bone erosions in both feet. We increased my MTX. I found out that MTX only prevents erosions in 50% of people taking it. So it may not be working. I am afraid of the TNF inhibitors because of the increased cancer risk. We discussed Orencia but now I read that it can cause lung cancer. This is all very depressing. I fell like I am #*#* if I do and #*#* if I don't. I havel ost so many friends to cancer in the last few years I am afraid to take risks.
Harley Diva
 
....RA, HPT,  drugs: Sulfasalazine, MTX, prednisone, bp meds


Shaleygirl
Regular Member


Date Joined Jan 2007
Total Posts : 30
   Posted 2/5/2007 4:40 PM (GMT -7)   
Harley I too have bone erosion and thinning but on 20mg of MTX. I have decided to go ahead and start Enbrel and it should be in soon. It was a hard decision but as of right now I have no life and am housebound so I decided to chance it for some hopeful relief. This is a tough disease as the meds for it cause other problems and are full of side effects. There is also no guarantee that a biologic will even work but it seemed to be the only choice I had left.

I hope that you soon make a decision and whatever it is will be right for you.
~Bonny~
Cheyenne,  WY
 
Meds: Enbrel/ MTX/ FA/ Klonopin/ Flexeril/ Lyrica/ Hydrocodone
 
RA Dx Sept05/ FMS Dx Jul05/ OA Dx Apr00
 
"Fear not for I am with thee"


Harley Diva
Regular Member


Date Joined Oct 2006
Total Posts : 160
   Posted 2/5/2007 10:32 PM (GMT -7)   
Hi thanks for the support. I am currently on 17.5 of MTX. Do you have any side effects on 20? I feel like I am getting depressed. It may be the increase. I am very afraid of cancer but I don't want to be crippled either. I am no longer living a normal life. I fell like the joy is going out of it. I am still working and I can get out a ride my bike. That is a good thing. Good luck with the biologic I hope it works for you.
Harley Diva
 
....RA, HPT,  drugs: Sulfasalazine, MTX, prednisone, bp meds


Shaleygirl
Regular Member


Date Joined Jan 2007
Total Posts : 30
   Posted 2/6/2007 10:54 AM (GMT -7)   
about 6 hours after taking it I am nauseous and tired for the rest of the day.

I understand about RA taking away our normal life and we must create a new life that includes RA etc. I haven't worked since 2001 and had to give up my daily 2 mi walks but I have learned to make myself useful in other ways.

One way is to encourage others on these forums and I also do it at our jail. I work with women that are addicted to drugs or alcohol about 1 to 2 hours a week. It's not a lot but does make me feel worth something and the women just love talking to someone that has compassion and I also realize that my life is not so bad after all.
~Bonny~
Cheyenne,  WY
 
Meds: Enbrel/ MTX/ FA/ Klonopin/ Flexeril/ Lyrica/ Hydrocodone
 
RA Dx Sept05/ FMS Dx Jul05/ OA Dx Apr00
 
"Fear not for I am with thee"


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 2/6/2007 1:03 PM (GMT -7)   
hey Harley Diva
{{{{{{{{{ big hug }}}}}}}}}}}}}
this might sound cliche...but when the time is righ for YOU...the right decisions will be made.  they sort of come naturally.
so if you're having so many doubts right now, it might be best to exhaust all other options before climbing aboard the injectables for RA.
it may seem like a lose-lose situation...i think we all feel this way at some point.
 
many of the pill drugs for RA carry as much risks as the drugs via IV and injections.
 
and there really isn't any solid proof that these meds CAUSE cancer.  it might just be that people with AI disorders run a higher than average risk of CA just by having an abnormal immune system.  (then again...a "normal" person who eats like crap, smokes, takes poor care of themselves...they have an even greater risk of cancer!)
 
let us not forget that "we" have more control than we think we do regarding cancer risks.  don't underestimate the power of spiritual/mental well being, a very good diet, and good habits have on preventing ALL cancers! 
 
when you're ready, the decision to start on new meds will be easier than you think.
take good care.
erin
Arthritis Forum Moderator
Active Severe Rheumatory Arthritis. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures (under control!). MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Previous Lymes Disease for 10 years.
Meds: Remicade infusions 300mg Q3weeks; Intra-articular knee injections; Arthrotec; 6MP; Mesalamine 4Grams; Prednisone; Entocort; Meclizine; Augmentin; Reglan; LidoDerm; Diazepam; Restaril; Dilaudid. 


Shaleygirl
Regular Member


Date Joined Jan 2007
Total Posts : 30
   Posted 2/6/2007 5:59 PM (GMT -7)   
This might assist you in your decision.

http://www.nlm.nih.gov/medlineplus/news/fullstory_41192.html


~Bonny~
Cheyenne,  WY
 
Meds: Enbrel/ MTX/ FA/ Klonopin/ Flexeril/ Lyrica/ Hydrocodone
 
RA Dx Sept05/ FMS Dx Jul05/ OA Dx Apr00
 
"Fear not for I am with thee"


Harley Diva
Regular Member


Date Joined Oct 2006
Total Posts : 160
   Posted 2/8/2007 4:26 AM (GMT -7)   
Thanks so much....I am feeling stressed. I'm up again in the middle of the night. Free floating anxiety. I am hoping the higher dose of MTX helps. Erin you are right about having some control over cancer risk. Like annual screening which I am behind on. that's a good reminder to get on the ball. I also need more exercise. I'm still working but thats not enough. I think I have a phobia about medication. I have had four surgeries in the last 18 months and I never took pain medication. I have never taken any medications or drugs and drink a glass of wine about every two months. I think I fell overwhelmed with the amount of medication I now need to take. I always have something on me that hurts. It is a constant reminder that I am not normal.  i also don't trust the pharmacutical companies or doctors. I had four needless surgeries with misdiagnosis because they did not find the RA. I have change rheumatologists and I am very happy with the new one. I feel like he knows what he is doing and he is sensitive to my needs. I am also grateful for this forum.
Harley Diva
 
....RA, HPT,  drugs: Sulfasalazine, MTX, prednisone, bp meds

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