Long time no see from me. I have turned into a terrific lurker, lol. Actually, I have had to cut my computer time back to pretty much nothing. My feet and legs swell so bad when my feet are hanging down.
I hope all of you have been doing as well as you can be. Erin you are working again or back in school, which is it? CAMama how are you doing these days. ElCamino are you doing better these days? Does anyone know how Flopsie and Duckey are doing?
I think my medical situation is trying to drive both me & my poor docs nuts. I just got of of the hospital Sat a week ago. I was in the hospital for 8 days. This day and time thats really unheard of. My COPD really got bad and I could not breath, but I was also sitting on the throne with a trash can in my hands. Did this 2 days straight, then got so weak I could not stand on my feet. I was so bad I could not dress myself so I went in my PJ's. It turns out I did not have a crohns attack, but I had a bacterial infection in my colon that mimiced E Coli. All I know is I was sick. I came home with oxygen from a company. I had been having a terrible time with my breathing but chose to keep my mouth shut cause it just seems like I am either sick all the time or something new is coming unhinged. So, here I am with hospital jewelry. My sats at night were dropping in the low 70's and low 80;s during the day. The therapist and I discussed maybe this is why I was having confusion, falling alot, terrible balance. I really feel better with the oxygen on. Recently had lab work done and it came back funky, positive ANA and high CEA. My dr does not know what the CEA is and neither do I. I see a rheumy next month. Managed to get me a hernia too in the stomach, kind of high up. Was in the ER the day before I was admitted, they sent me a copy of my labs stating I have a severe fatty liver and to get into my dr ASAP. Well, I am getting ready to fire my PCP and get me a new one. I learned the day before I was put in the hospital, I had gone to my PCP to see what he thought cause I was so sick, his words is you need to be in the hospital but I do not have hospital priveleges so you will need to go to ER and hope you can convince them to admit you. Hello, convince them hell, well, it did not work that evening, I was sent home. Next day My gi met me at the hospital and admitted me. I need a PCP that can put me in the hospital if it is warranted. I don't need to spend worrying if this is going to be covered or not.
I am still doing Remicade for my crohns but I am feeling like it is not carrying the punch it used to. But, I have been on it 4 yrs. Recent scope in June after being sick for 3 months revealed ulcers in the colon-never had any problems with the colon before. Like I say, if its not one thing, its another. So, I sometimes feel like a bomb getting ready to explode. Erin if you read this and know anything about that CEA please post it.
Hope everyone is doing best too. Hugs, Susie