very interesting

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AkiPuppy
Regular Member


Date Joined Feb 2007
Total Posts : 52
   Posted 2/15/2007 7:14 PM (GMT -7)   
Hi All,
I know I have not posted either yesterday or yet today. I have, however been reading all of your posts. I did much research when I was told I had RA but I am learning new things on here all of the time. I am glad we can talk about our issues concerning our health. I think it is important to talk to someone who understands. I am having trouble with my right foot. The doctor says it is because of the way a walk. She also said I can't help because the way my body is now. I am still up and waling, however. So far I have had no problems with the remicade and hope it stays that way. I did not know until this forum the remicade can be tiven in different times for example: I notice that some of you are on it six weeks or I think someone said every three? I am on eight weeks right now. Well, that is about it from here. My body will be glad when it warms up. Take care all and have a good night.
Hugs and Blessings,
AkiPuppy

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 2/15/2007 8:58 PM (GMT -7)   
Hi there Puppy!
 
I think with the Remicade...it is titrated by a person's severity of the disease & response to the drug.
I went on Remicade after failing Enbrel (for 2 years) & Humira (one year...that I was taking 2 shots a week which is more than usual).
My doc started Remicade in October 2006. One infusion than 2 weeks...then he tried 4 weeks and I ended up in the ER.  So we kept it at every 3 weeks at 300mg.
I wish I can go every 2 weeks!
I start to feel worsening of joint pains at about 2 1/2 weeks.
It's really rough with that plus a slew of other immunosuppresants I am on.  Leaves me wiped out. Down for the count!
 
Yeah, HealingWell is wonderful.  There are things w share here that one can only get here and no where else...no doctor or nurse or pamphlet can replace sharing experiences.
 
You're a great asset AkiPuppy here! So glad you found this forum.
 
I feel I have had more influence on my healthcar from here than my own physician! There's this one member, StrayDog...who was a GREAT help for me...stearing me down the right path when a lot of things went wrong...she went through similar things, and ultimately was the one who suggested I push for Remicade. Glad I did!
 
There are a few really strong bonds here between people...makes ya wanna go on a road trip to meet them!
You take care & have a good evening!
When do you go for your next infusion? Do you go at the hospital or an outpatient chemo center at a Dr.'s office?
 
peace/love
erin
Arthritis Forum Moderator
Active Severe Rheumatory Arthritis. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures (under control!). MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Previous Lymes Disease for 10 years.
Meds: Remicade infusions 300mg Q3weeks; Intra-articular knee injections when needed; Mercaptopurine 50mgQD plus 75mg weekly; Mesalamine 4GramsQD; Prednisone 20mgQD mantainance; Entocort 9mgQD; Meclizine; Augmentin; Tigan 300mg; Reglan; LidoDerm Patches; Diazepam 5mg for AS back spasms; Restaril; Dilaudid 4mg tabs for pain. 


AkiPuppy
Regular Member


Date Joined Feb 2007
Total Posts : 52
   Posted 2/15/2007 9:26 PM (GMT -7)   
Hi Erin,
Thanks for the reply. I go to the rhuny's office. She has a little room with recliners. We are really quite comfortable and they take good cae of us. I just take my I-pod and let it happen. I am usually there for two ro three hours. I will say I am better than I was last year at this time. I tried the chatt but because I am blind and use a screenreader I could not keep up. It was worth a try, however. I will try anything new once, as a rule. Well, I need to go and get out of this computer chair. I will say good night. Many bl blessings to you.
Hugs,
AkiPuppy
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