non-injury tendinitis/crohn's

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

bluemeanies
Veteran Member


Date Joined Jun 2004
Total Posts : 1372
   Posted 2/16/2007 11:42 AM (GMT -7)   
Hi all.  I post mostly on the crohn's disease forum but I am having a problem you might be able to help with.  For about a year I have been having tendon pain off and on.  It usually hurts bad for a week then sore for a week and goes away for a little while.  This week was the worst, I couldn't use my elbow and in my hands I have nerves-on-fire feelings around various joints.  I went to my internal med doc and she put me on a steroid pack.  I have googled tendinits and see that it can be a rheumatic disease.  I know if you have one autoimmune disease you can get others.  I was wondering if anyone here has this problem, I had never heard of tendoinitis that was not injury related.  Any info might help.  Thanks.

Keah
Veteran Member


Date Joined Nov 2003
Total Posts : 7314
   Posted 2/16/2007 2:12 PM (GMT -7)   
Hey Blue, There are many of us Crohnies who have been Dx with some form of Spondyloarthropathy. This is an inflammatory arthritis, which, in it's early stages, primarily affects the soft tissues surrounding the joints. Many times, there is also inflammation in the bone itself too, but there is not generally any visible sign of joint destruction in the early stages.

A bone scan, to determine uptake of the dye might be helpful in determining how many of your joints are affected. That was the first step to my Dx. Sclerosis of my lumbar facet joints was step #2. This is essentially the first step of joint fusion.

There are some drawbacks in trying to get this Dx, especially for a woman. Many "ols time" Rheumatologists seem to be stuck in the original theory that this was a man's disease. The research shows that this idea is a misconception and women are just as likely to sufer from some form of SpA as men. Also, women can present with very different symptoms.

The primary areas that SpA attacks is the spine and SI joints. In my case, it began in my knee and R shoulder. Although I have been treated by a Pain MGmt Doc for 3 years for SI joint pain, my MRI showed no changes to that joint. That combined with my negative HLA-B27 test led me Rheumy to believe that I didn't have AS. He couldn't think enough to et outside the AS box and see the entire group of SpA diseases.

I'd recommend that you find a Rheumy that really is familiar with how this disease works and progresses. The idea of having this is certainly not fun and my joints have become the priority. I've learned to tolerate the gut problems, perhaps because they are easier to manage, but I cant live with the joint pain. My GI was not inclined to treat my CD more aggressively becaue I seem to have mild intestinal involvement, but my Rheumy knew we had to be more aggressive about my joints. I'll be starting Humira next week and am looking forward to getting both diseases under control with just one med.

I hope you find answers and more importantly, relief.
Keah a.k.a. Wormy
 God helps those who help themselves.
Please help us support this invaluable forum.


Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 2/16/2007 10:51 PM (GMT -7)   
Hey blue.. how are you doing?
Moderator of Arthritis/Epilepsy Forums
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea
 


Baybreeze
Regular Member


Date Joined Oct 2005
Total Posts : 315
   Posted 2/17/2007 6:54 AM (GMT -7)   
HI,

I have various muscle and tendon issues on & off over the years (in my hands, hips, and most severely in my right foot/ankle). And i've never injured any of these areas, at least not that I know of. The steroids seemed to be the only meds that made these types of pains go away. I have taken prednisone for 8 months for a lupus flare, Medrol Dose packs, and spinal injections. I am now hearing from some of my docs that it could be lupus related.

bluemeanies
Veteran Member


Date Joined Jun 2004
Total Posts : 1372
   Posted 2/19/2007 8:01 AM (GMT -7)   
Well I'm on day 5 of the 6 day steroid pack.  The elbow felt lots better after 1 day but is a little sore today.  My hands are still hurting but not quite as bad.  I went for blood work this morning for my thyroid levels (growing nodules and hypothyroid) and vitamin d level (it was down to 8.3).  They are also doing a basic metabolic panel.  I should hear about that in a couple of days.  Thanks for the arthritis info.

bluemeanies
Veteran Member


Date Joined Jun 2004
Total Posts : 1372
   Posted 2/19/2007 1:34 PM (GMT -7)   
Update: I found a rheumatologist that has special interest in ankylosing spondylitis and is fairly young. I have an appointment this thursday (wow, I though I might have to wait a month to get in as a new patient). Thanks again for the help.

Keah
Veteran Member


Date Joined Nov 2003
Total Posts : 7314
   Posted 2/19/2007 7:21 PM (GMT -7)   
Congrats Blue! It can take motnhs to get in as a new patient. I'm so glad you have found some who specializes in this area of arthritis too. I hope this new rheumy can help you find relief quickly!
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 02, 2016 5:28 PM (GMT -7)
There are a total of 2,731,853 posts in 300,973 threads.
View Active Threads


Who's Online
This forum has 151131 registered members. Please welcome our newest member, veris.
307 Guest(s), 8 Registered Member(s) are currently online.  Details
Krimpet 🍔, rollout, Tnmproject, F27, Helgramite, Ides, Huddie, NiceCupOfTea


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer