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babybloo
Regular Member


Date Joined Aug 2005
Total Posts : 289
   Posted 2/16/2007 2:05 PM (GMT -7)   
I start it on Monday... YAY YAY YAY>... I sure hope my excitement is warranted... I really want/need this to work for me.... Insurance approved it until 2015... then I guess we start all over again... but heck that is a ways away....
 
Still hobbling... been trying to do too much with my foot because i want to be able to work Monday but now I am hurting more than 2 days ago... ughhh... so this weekend is only PT and non weight bearing otherwise... I gotta feel better... I am broke... LOL
 
I love you all
 
Theresa

Keah
Veteran Member


Date Joined Nov 2003
Total Posts : 7314
   Posted 2/16/2007 2:28 PM (GMT -7)   
Congrats Theresa. I loved Enbrel, but had to stop beccause of a bad infection. Then I switched Docs and couldn't get anyone to script it again. Next wekk I'll be starting Humira and hope to have the same results.

There are 2 things that you need to keep in mind with Enbrel. First, it can take quite a while to begin seeing the results. Very few see an improvement reight away. Although I hope that is the case for you, the peak benefits may not arrive until 3 months after you start it.

Also, the med contains a synthetic human protein. Because this protein is foreign, it's likely that you may develop a reaction at your injection site. These are hot, red and swollen, like an allergic reaction, but they are commonplace for people using Enbrel or Humira. It took 2 weeks for me to start seeing them but when I had my first one, it also reacted at the 3 previous injection sites. I called Enliven to ask what, if anything I can do and they were useless. I called my Doc the next day and was instructed to use a steroid cream on the reactions. That help with the reactions quite a bit. So, since you are just starting, talk to your Doc and find out what you can/should do if you have an injection site reaction. Be prepared and then you'll know what to do before it happens.

I hope that you see the same benefits that I did from Enbrel.
Keah a.k.a. Wormy
 God helps those who help themselves.
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Shaleygirl
Regular Member


Date Joined Jan 2007
Total Posts : 30
   Posted 2/16/2007 5:33 PM (GMT -7)   
I gave myself my first injection this past Tuesday and wow was I sick all day Wednesday and part of Thursday.  I could not stay awake from fatigue and the pain was worse.  Finally by Thursday I was back to my regular bad normal.  Just wanted to mention it.
~Bonny~
Cheyenne,  WY
 
Meds: Enbrel/ MTX/ FA/ Klonopin/ Flexeril/ Lyrica/ Hydrocodone
 
RA Dx Sept05/ FMS Dx Jul05/ OA Dx Apr00
 
"Fear not for I am with thee"


Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 2/16/2007 10:58 PM (GMT -7)   
Woo-hoo Theresa! Ok, disregard last post on previous thread.. I asked if you had injected yet.. Come on Monday! Are you going in to the doc so they can show you how/where to inject? Good luck to you, and hang in there.. I've got my fingers crossed!
Moderator of Arthritis/Epilepsy Forums
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea
 


Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 2/16/2007 10:59 PM (GMT -7)   
Hey Bonny - welcome.. sorry you aren't having much success with Enbrel... Have you told your rheumy of your first experience with it? Hang in there and keep us posted..
Moderator of Arthritis/Epilepsy Forums
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea
 


elcamino
Veteran Member


Date Joined Sep 2005
Total Posts : 1744
   Posted 2/17/2007 5:07 AM (GMT -7)   
Enbrel is a great drug. I must warn you, though, that it took me almost 5 months to feel any effects from it, and even now after I've been on it for almost a year, it does not carry through the entire week. When I combined it with mtx, though, that seemed to make all the difference in the world. Many people gain a benefit from it, though, in just a couple of weeks. Just wanted to point out that results are variable depending on the person.

Best of luck to you!
El
Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Aciphex, Ultracet, Zyrtec, Allavert-D, Zantac, Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan


babybloo
Regular Member


Date Joined Aug 2005
Total Posts : 289
   Posted 2/17/2007 5:19 AM (GMT -7)   
I am assuming they aren't stopping the mtx at least there is no word of that. I am at 25mg so hopefully the two combined will work magic. It needs too...
dx: Rheumatoid Arthritis.  Duration: 10yrs. Dx'ed 2006.  Asthma, hypertension, hypothyroid
 
Meds: Methotrexate 25mg wkly, Medrol Dose pack PRN, Enbrel 50mg wkly, Folic Acid, Fish Oils, Ultram 50mg TID,  Advair 250/50, Diovan HCT 160mg/25mg QD, Synthroid .1mg QD, Women's One a Day, tylenol PRN.
 
 


angelscry
Regular Member


Date Joined Nov 2006
Total Posts : 173
   Posted 2/17/2007 3:05 PM (GMT -7)   
Theresa,
To add a little more optomism to the post, I had my first enbrel injection two weeks ago. The day after I was EXTREMELY tired and laid on the couch for the entire day. But the next day I had my normal energy back and was already feeling deceased symptoms. My morning stiffness was almost non-existant. My second shot yielded the same results, only not as tired the day after.. but 2 days after feeling GREAT! So far no reactions, no side-effects. Very excited about this drug!
Zach - 22 y/o college student and business owner
Diagnosed UC 8/06, AS 1/07
Currently:
Tapering Pred 2.5mg/day
Asacol 12/day (4.8g/day)
Sulfasalazine 4/day (2g/day)
Rowasa 1,000mg suppository at bed time
Enbrel once weekly for AS


elcamino
Veteran Member


Date Joined Sep 2005
Total Posts : 1744
   Posted 2/17/2007 6:02 PM (GMT -7)   
Yes, I almost forgot. Even though enbrel didn't work on my joints so well for 5-6 months, I got an incredible energy boost right off the bat. It was like night and day before and after I started enbrel. Enbrel still gives me tons of energy, although I have my low points just like everyone else.

Elcamino
Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Aciphex, Ultracet, Zyrtec, Allavert-D, Zantac, Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 2/18/2007 3:06 PM (GMT -7)   
yeah  FANTASTIC!!!!!!! Way to go Bloo! yeah
Hah, reminds me of my 1st shot...I was sooped up for a week out of excitement.  So the adrenaline works as a good pain killer.
 
Tip: If the shot stings too much, try injecting to the abdomen.  I found it the best place personally.
Initially, within the first few weeks to the 1st few months...the greatest improvement was in the chest wall pain (costo) & fatigue.  My joints were still unbearable for a while & needed Pred...month 6 things to turn around for the joints.
 
Best wishes!
Arthritis Forum Moderator
Active Severe Rheumatory Arthritis. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures (under control!). MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Previous Lymes Disease for 10 years.
Meds: Remicade infusions 300mg Q3weeks; Intra-articular knee injections when needed; Mercaptopurine 50mgQD plus 75mg weekly; Mesalamine 4GramsQD; Prednisone 20mgQD mantainance; Entocort 9mgQD; Meclizine; Augmentin; Tigan 300mg; Reglan; LidoDerm Patches; Diazepam 5mg for AS back spasms; Restaril; Dilaudid 4mg tabs for pain. 


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 2/18/2007 3:10 PM (GMT -7)   
Hi Bonny,
 
Hmm? You don't happen to be allergic to it are you?
I hope it's just a coincidence that maybe you were getting sick/fighting something off/or in a flare...that you would feel so awful afterwards.
I know that many times after I had a shot...the few days after I wouldd suffer bad fatigue, and still hit bad flares.
 
Report it to your rheummy...but I would say, if you don't have a big rash all over your body or a fever...give the Enbrel a lot more time.  As myslef & so many others will say...it can takes months.
 
Best of luck, hang in there.
Arthritis Forum Moderator
Active Severe Rheumatory Arthritis. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures (under control!). MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Previous Lymes Disease for 10 years.
Meds: Remicade infusions 300mg Q3weeks; Intra-articular knee injections when needed; Mercaptopurine 50mgQD plus 75mg weekly; Mesalamine 4GramsQD; Prednisone 20mgQD mantainance; Entocort 9mgQD; Meclizine; Augmentin; Tigan 300mg; Reglan; LidoDerm Patches; Diazepam 5mg for AS back spasms; Restaril; Dilaudid 4mg tabs for pain. 


Keah
Veteran Member


Date Joined Nov 2003
Total Posts : 7314
   Posted 2/18/2007 7:16 PM (GMT -7)   
PS. As Erin mentioned, I found that it was much better to inject into my stomach. I only did one or two into my thighs and decided that the stomach was preferable for me. I also never noticed any type of fatigue, but I never got any type of extra energy either. Perhaps that was because I was also in undiagnosed thryoid failure at the time.

erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 2/19/2007 1:06 AM (GMT -7)   
yeah, for some funny reason...i never bruised from a shot in the abs! it just seems it much softer skin there, hurts less, and ya don't feel much of the sting/burn from the med.
i also prefer to inject slowly...so i don't know how the auto-inject pens are...but the slower i inject...the less sting there was.
:)
Arthritis Forum Moderator
Active Severe Rheumatory Arthritis. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures (under control!). MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Previous Lymes Disease for 10 years.
Meds: Remicade infusions 300mg Q3weeks; Intra-articular knee injections when needed; Mercaptopurine 50mgQD plus 75mg weekly; Mesalamine 4GramsQD; Prednisone 20mgQD mantainance; Entocort 9mgQD; Meclizine; Augmentin; Tigan 300mg; Reglan; LidoDerm Patches; Diazepam 5mg for AS back spasms; Restaril; Dilaudid 4mg tabs for pain. 

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