Move or not to move

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Kyle's Mom
New Member


Date Joined Feb 2007
Total Posts : 3
   Posted 2/19/2007 8:36 PM (GMT -7)   
My son Kyle, who is 11, was diagnosed about a year ago with polyarticular JRA.  He is on methotrexate and has had prednisone, but he is still not doing very well.  His doctor says that where we live there are too many cold fronts; we seem to go from hot to cold quickly.  He has encouraged me to move him to a warmer climate to see if that would help him.  Here where we live the nearest rheumatory clinic for children is over 2 hours away.  In Charleston, South Carolina, which is where I have been looking, they have their own clinic.  With my job, I can move anywhere, so that is not a problem.  I know for some, the weather does not change how they feel, but he feels better when it's warmer.  Anyone have any thoughts?  He hurts in 10 joints and even suffers when he goes to the bathroom.  I know this will get better, but I would love to hear from anyone with ideas or some insight!

curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 2/19/2007 9:41 PM (GMT -7)   
Kyle's Mom Welcome to HW,
 
I'am so sorry to hear that your son is having such a hard time right now.My heart goes out to you and your son.I know it is so hard to watch a loved one and even more so when it is a child that is having to deal with this.
 
I know that any typ of arthritis effrect's most people worse when it is old than it does when it is warm for some reason.I see he is on methotrexate is it pill form or shot form?Is this the only med he is on for his RA?I know there are other meds out there that may be able to help your son and i will name a few of them and that way if there is one that he has not been tried on you may want to ask his Rheumy about these meds and prehapes the Rheumy may be willing to try him on them.
 
I would like to say first of all I have RA,OA,AS,Crohns,Sjerens and I also have inflamation of the lining of my nerves.I know it is alot but I wanted you to know where I'm comeing from.
 
So this is what meds I'm on now Plaqunile,Humira azulfidine 500.These are the combo's that I take and out of them Humira has helped me the most.
 
I think that it might be in your and your son's best interest to talk to his Rheumy and see what he thinks about maybe trying him on Humira it is truely a wounderful drug.I take 40 every other week by shot that I give to my self it comes all ready in prefilled so you do not have to load it your self like you have to do with methotrexate.
 
I lived in Mississippi for over 23 years and in the delta and it a lot hotter down there then it is here.I now moved back home about three years ago and to tell you the truth I can't tell any differents as far as the weather goes I do suffer with alot of joint pain and stiffnes it takes me about an hour to two hours to get some of the stiffens to go away so I can move arounf.
 
I know of some childrens that are on Humira so I think this would be a good time to talk to him about the possibility of maybe trying this med on him.The only reaction that I have noticed is I get alittle red around the rejection site and it does sting-burn but it only last a few minutes and then goes away.Oh I would like to say at the time I was put on Humira I was in a wheel chaire and Humira is what got me out of that wheel chaire.
 
Please know that you are welcome any time here and we will help you in any way we can.May god bless you and your son.Please do keep use up on how your son is doing.
 
 
Curley
.........
 


Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 2/20/2007 8:39 PM (GMT -7)   
Hi Kyle's mom.. sorry I am late in welcoming you to the forum, but I see that Curley has done a wonderful job of that for me... thanks Curley! :) May I ask, where do you live? The reason why I ask, is I am in Charleston, SC.. Has he been see by a rheumy here? You mentioned it, but wasn't sure if he was actually being treated by a rheumy here or not... Hope to hear from you soon...

Duck
Moderator of Arthritis/Epilepsy Forums
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea
 


Kyle's Mom
New Member


Date Joined Feb 2007
Total Posts : 3
   Posted 2/21/2007 7:27 PM (GMT -7)   
Kyle has not been seen by a rheumy in Charleston.  We live in Southern Ohio and we get bitterly cold winters and terribly humid summers.  Our summers are 100% humidity daily.  You can even walk outside at 9 or 10 o'clock at night, and still feel the extreme humidity.  Where we live it is in a valley and there isn't any air that circulates.  We had a very difficult time finding a rheumy that would see him here; we actually had to go 45 minutes from where we live.  The one that he sees is not really a pediatric rheumy, but he does work for an arthritis center. There is a clinic in Cincinnati, Ohio, but that is over 2 hours away.  How does Charleston do with your RA?  I know Charleston has one of the best children's hospitals in the nation.  I am going for a visit next week to see what I think of the area.  Thanks for your help!

Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 2/21/2007 8:17 PM (GMT -7)   
Hey Kyle's Mom... :) Charleston is ok.. It does get humid here too though... I am orginally from Arizona, where there is NO humidity, so when I moved here, I had a hard time with it... It rains often also... In the summer between 3 and 4 in the afternoon, there is always a rain shower.. then it gets hotter and more humid... It is rainy right now, and I am in a flare.. but is supposed to be nice later in the week... then supposed to rain again on Sunday... :( But like you said.. the doctors here are good.. how long do you get to stay and visit here?
Moderator of Arthritis/Epilepsy Forums
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea
 


Kyle's Mom
New Member


Date Joined Feb 2007
Total Posts : 3
   Posted 2/21/2007 8:28 PM (GMT -7)   
My name is Julie (so you don't have to call me Kyle's mom).  I will be staying Friday thru Sunday or Monday.  My brother is coming with me.  It is always nice to have someone else to drive.  I am a teacher, so fortunately jobs are numerous.  We get lots of rain here too(50 inches or so).  Have you ever heard of any studies that are being done about rural areas and RA?  I have read a few articles lately about RA and how the rate is higher in farming communities; they think because of pesticides and other environmental factors.  We live in an area that has one nuclear plant, a plastic plant, Dow Chemical, Mead Paper Factory, and two large oil companies.  This is also mostly a farming area.  Most people are either teachers, work for the hospital, farm, or are unemployed (almost a 10% rate).  Our crime rate is 3 times higher than the national average.  Seventy-five percent of the kids I teach get free or reduced lunches.  We live in the Appalachian area of Ohio; you know, hillbillies.  I am just an educated one with a master's degree. 
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 09, 2016 6:30 AM (GMT -7)
There are a total of 2,735,263 posts in 301,287 threads.
View Active Threads


Who's Online
This forum has 151394 registered members. Please welcome our newest member, haggis.
296 Guest(s), 8 Registered Member(s) are currently online.  Details
paul hutchins, at20148, yancync, Paxton, Stanislav, time2reclaim, Brendoni, sam12


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer